ceds

I’m sitting here in the veterans home with my dad who doesn’t have long with us and my heart is so broken. I lost my baby brother, 55 years old, in June, had lost my oldest brother in 2011, 54 years old and then it was me and my daddy. He lives on my property and was very independent, on December 7th he fell after coming back from the grocery and broke his femur, he is 89, and has declined since. I just needed to put this in writing, kind of like having all of y’all to talk to. I ask please, that y’all will keep us in your thoughts and prayers, that he will have a peaceful transition. I will miss him so very much💔
#ceds #CRPS /RSD #Gastroparesis #Brokenhearted

Apparently being hypermobile gives us advantages in life aside from just being particularly difficult. How many of you are talented in means of art, music, sport, etc?
My specialist believes that hypermobility gives us a strong advantage in these things. Most zebras I've met are gifted in one or sometimes all of these categories. So tell me, what's your talent?

#EDS #EhlersDanlosSyndrome #hypermobile #Hypermobility #ChronicPain #ChronicIllness #jointhypermobility #HEDS #ceds #VEDS #JointHypermobilitySyndrome #hypermobilityspectrumdisorder #begnignjointhypermobility

worst time to have a broken arm that you had to have surgery on and have a long arm cast I broke my left ulna with an open fracture 3 weeks ago and I had to have surgery and I am left-handed I just started my first college course, an algebra course, chosen by my mom, who is my guardian I told her that I wanted to do a different class first explaining that it is a terrible class to do with a broken dominant arm but she wouldn't listen now I can't work out the problems because I can't write. #MadelungDeformity #EhlersDanlosSyndrome #southpaw #brokenbones #OsteogenesisImperfecta #lefthanded #MedicalZebra #College #CollegeHumor #ceds #741741 #Autism

#TheBible #Pleaseremoveifnotallowed I feel other people with #EhlersDanlosSyndrome would like to do this with me it is about what the Bible says about #ChronicPain it is on the Apple app the Bible by you version here: bible.com/p/18316358/d1065e416e24d27726953311f170e3ee I think you can also do it online if you want you can join me #EhlersDanlosSyndrome #EhlersDanlosSyndrome #EhlersDanlosSyndrome #HEDS #ceds #Jesus #Pain

I found themighty.com when I was looking online for a place where people with Ehlers-Danlos Syndrome could come together and share their thoughts on this illness.
Not only did I find people who struggel with EDS on a daily basis, but also people who have many of the same issues as I have, such as Borderline Personality Disorder, Migrain, Tension Headache.
I live in Norway, and when it comes to having Ehlers-Danlos Syndrome.. Well, that can be really lonely. I know a few people who have EDS, but unfortunatly they don't live in my city. We have this facebook group for people in Norway, but I was looking for a larger, more or less International group or a community. I found it here at We Are #mighty Together / themighty.com

Let me tell you a little about me :

My name is Beate Kolset Johnsen, I'm a woman, 46 years old (or young... I still feel young in so many ways) and I live in a city - Tromsø /Tromsoe - in Northern Norway.
Because of a number of healthissues, I don't work anymore and it's 24 years since I had a proper job.
I live by myself in my own apartment and that's okay, but some times I wish I had to go to work every day, just to be like the "normal" people. I often feel that I don't fit into the society, much due to the fact that I seem to have more illnesses than all of my friends put together. I've been in and out of hospitals since I was a teen, and most of my friends are people with healt issues.

I have many things I like to do, I love horses & riding, music, painting, goth & alternative clothing, drawing, travelling (like on holiday), writing, languages, movies /film, reading, sports (I can't stand soccer!!!), magazines, politics, hiking, decorating (DIY), food, culture, going out during the weekends to pubs, bars and eating places /restaurants.
That's some of the things I like, but of course there are much more.

I'm so, so happy I found themighty.com, cuz it's good to know I'm not alone having all these weird feelings about Ehlers-Danlos Syndrome, my Borderline disorder and all these other illnesses.
I would love to get to know people all around the globe, cause I love having friends to chatt with, laugh, cry. Life is hard enough as it is and having friends to share things with is nice. I would like to travel around the world to see new places (and faces :)), even if I have to do it in a wheel chair. I'm not in a wheel chair yet, but in a couple of years I'll probably need one for days when my joints don't work.
I almost forgot to mention that I'm a member of The Fountain House in Tromsø, and I'm thinking of going to USA, Great Britain or Australia to a course in a year or two. If you are Fountain House member in one of these countries, OR in another country, please message me, either here or on Facebook. Of course you don't have to be a member of a Fountain House to message me. 😀It's worth becoming mighty!
#Depression
#Friends
#Pain
#suicidal
#Ehlers Danlos syndrome
#ceds
#Borderline Personality
#migrain
#pancreatitis
#Life