Hi, my name is Sharon222. I'm here because I have chronic fatigue and fibromyalgia, and my close friend has arthritis and osteoporosis, and will be in a wheelchair, we are both grieving and looking for ways to live like this.
6 reactions •
3 comments
Finding Your Balance. Managing a career while navigating the unpredictable nature of fibromyalgia is a balancing act that requires a mix of self-advocacy, and radical self-compassion. Remember to take care of yourself! You’re more than a Conqueror
4 reactions 
Take it One Day at A Time
4 reactions 
Experiencing long COVID can be confusing, frustrating, and disorienting—especially since there’s still so much to learn about navigating its fluctuating and sometimes unpredictable symptoms.
What has your experience been like? What symptoms have surprised you the most? What information or guidance has been most helpful for you?
#longcovid #COVID19 #CheckInWithMe #Spoonie #ChronicIllness #PosturalOrthostaticTachycardiaSyndrome #ChronicFatigue #Fibromyalgia #MentalHealth
4 reactions •
1 comment
This migraine appears to want to be my friend and comes back daily. So after two ER visits the 2 nd one gave me the right meds. I got a CT scan followed up w my doc. Checked al kinds of bloodwork and vitamin D and I am healthy as ever at 65. Why I see my doc and tell him I spend 90% of my time in bed and then I get to do it some more. I turned on a comedy show and laughed a lot. I feel like every few years I just got to check and see if anything is wrong nope just migraines and fibromyalgia and chronic fatigue. Oh well a good week spent now back to the couch to finish Kevin James special.
4 reactions •
1 comment
I was recently diagnosed as having hEDS in addition to my longtime diagnoses of fibromyalgia, chronic fatigue and psoriatic arthritis. It is the diagnosis however, that finally connected all the dots - early onset osteoarthritis, muscle tears (1st one at age 8), and many other things that didn’t quite fit. So, learning about hEDS and how that affects things going forwards. #EhlersDanlosSyndrome
13 reactions 
This morning routine has been incredibly powerful for me. Morning grounding really helps our nervous system! If you try it, let me know if you try it!
#Addiction #AnorexiaNervosa #Anxiety #Agoraphobia #AutismSpectrumDisorder #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #BipolarDepression #BackPain #ChronicPain #ChronicFatigue #CeliacDisease #Cancers #Grief #Lupus #AutonomicDysfunction #PTSD #Hemophilia #SjogrensSyndrome #SuicidalThoughts #Selfharm #Selfcare #MentalHealth #Schizophrenia #KidneyDisease #ObsessiveCompulsiveDisorder #ChildLoss
14 reactions •
3 comments
I've recently discovered an amazing accessibility program of a local museum. There are so many options for people with different disabilities! I personally used a wheelchair that you can rent there with zero struggle. I'm an artist myself so visiting art galleries is very important to me, but my mobility issues and chronic pain make it impossible to stand and walk for long enough. I'm so happy to have a chance to enjoy art in person again!
4 reactions •
1 comment
So, after years of the drs saying that while yes, the blood works confirms i DO have lupus, as i have for many years but i must be exaggerating the intensity of the pain, but my blood markers were not showing THAT huge of disease activity, they (the VA) agreed to send me to a fibromyalgia specialist who actually read my medical records (unlike the VA) and diagnosed me with also having fibro. So what is your advice? Not the basic stuff like pace yourself, the lupus als gives severe pain and chronic fatigue so i know that, but what other advice do you have? The stuff they don’t put in the medical books? The real life things that work and/or don’t work? Any advice at all
3 reactions 
I have been taking my two year old to the butterfly garden a lot this winter. Breathing in the hot, humid, sweet air always brings a smile to my face. This has been a snowy bitter cold winter so the escape to green growth and warmth is even more important. Don’t forget to enjoy the beauty around you and look at things through the eyes of a child. Trust me you will be happier! #Butterfly #MentalHealth #Depression #EhlersDanlosSyndrome #Anxiety #ChronicFatigue #POTS
13 reactions •
1 comment
Latest
