Chronic Fatigue

Good evening, mighty warriors. Like every year, i like to follow the social media challenge of the EDS society. For the new ones, here is the concept: every day, a prompt around EDS and HSD is offered throughout the month of May. This year, I don’t feel able to follow him day after day, so I’ll make a big post on Sunday. I hope you enjoy reading them, that they will help you a little at least.

Day 1: the beggining of this journey : I am Wolf. I was diagnosed with HSD during my early teens after 13 years of medical wandering. My favorite animals are canids and large felines.

Day 2: then and now: Since the diagnosis, I have largely evolved from a sullen and annoying teenager who did not know they were suffering from chronic pain. Today, I try to be a more conscious person about my limits, my emotions and why I feel such things but also try to be more empathetic towards others even if sometimes it’s hard. I see HSD as a traveling companion, sometimes quite boring in my life.

Day 3 – One Thing That Might Surprise You: the link between autism and HSD. It’s what allowed me to finally be understood and accepted. I’m just not depressed because I’m disabled, but I was masking. Often, HSD is not really understood by those around us like all invisible diseases, so we are expected to be "productive" as society demands. Sometimes, setting limits, resting or choosing to be productive in your own way one step at a time is the biggest victory of a day.

#EhlersDanlosSyndrome #Autism #Disabled #ChronicFatigue #ChronicPain

Hi everyone I’m Fibrosteph , I have Fibro with Chronic Fatigue. Hoping to meet others that understand what I go through on daily basis and also to learn from others

Hi, my name is Sharon222. I'm here because I have chronic fatigue and fibromyalgia, and my close friend has arthritis and osteoporosis, and will be in a wheelchair, we are both grieving and looking for ways to live like this.

#MightyTogether #Grief

This migraine appears to want to be my friend and comes back daily. So after two ER visits the 2 nd one gave me the right meds. I got a CT scan followed up w my doc. Checked al kinds of bloodwork and vitamin D and I am healthy as ever at 65. Why I see my doc and tell him I spend 90% of my time in bed and then I get to do it some more. I turned on a comedy show and laughed a lot. I feel like every few years I just got to check and see if anything is wrong nope just migraines and fibromyalgia and chronic fatigue. Oh well a good week spent now back to the couch to finish Kevin James special.

I was recently diagnosed as having hEDS in addition to my longtime diagnoses of fibromyalgia, chronic fatigue and psoriatic arthritis. It is the diagnosis however, that finally connected all the dots - early onset osteoarthritis, muscle tears (1st one at age 8), and many other things that didn’t quite fit. So, learning about hEDS and how that affects things going forwards. #EhlersDanlosSyndrome