Chronic Fatigue

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Chronic Fatigue
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Lane Issues

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

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Cracked

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis

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The Maze of Mirrors of

Chronic illness isn’t just what happens inside your body. It’s what happens around it too. It’s the maze of mirrors the world builds around you. You try to walk forward, but in every direction, there’s a disordered reflection of yourself. Not the kind you laugh at in a mall funhouse, but a warped, dizzying trap where every door leads to another hallway, another dead end, another gatekeeper pointing you the wrong way.

And the mirrors don’t just make you look shorter or taller — they show you as lazy, dramatic, hopeless, beyond fixing, too sick, not sick enough. And sometimes, even when you know your own truth, those mirrors convince you they’re real.

You spend months. Years. Decades. Wandering the maze. Bumping into glass. Begging someone to break it. You bump into the medical industry that silences you in polite language:

“We didn’t find anything.”

“Let’s wait and see.”

“It’s probably anxiety.”

You bump into caregivers who mean well — but trap you in their fear. Into insurance companies that tell you your survival isn’t cost-effective. Into doctors who send you down another hallway because they don’t know what else to do. You even bump into yourself — the part that whispers, Maybe it really is all your fault.

The system is built to look like it’s working, but inside it’s rotting. And people outside the maze can’t see that while they imagine you’re being “cared for,” you’re actually crawling, crying, begging anyone to stop the damage. You are surviving — barely — in a system that wasn’t designed to save you.

I’ve been bumping into mirrors for seven years. I survived neglect that so many others didn’t — not because the system saved me, but because God did. He kept me here for a reason. Maybe I don’t fully know what that reason is yet, but I do know I have a story to tell.

So I write. Even when my screen intolerance threatens to steal my voice.

I write for that people who didn’t make it.

I write for everyone still crawling through this maze, wondering if anyone sees them.

And if you’ve never stepped inside this maze yourself, maybe you’ve walked right by it, oblivious, — do you see me now?

👉 I even turned this piece into a spoken word poem. Here’s the video:

youtube.com/shorts/PpQ5dn1xCqE

#ChronicIllness #ChronicPain #ChronicFatigue #POTS #Dysautonomia #BrainInjury #MedicalTrauma #chroniclife #InvisibleIllness #chronicillnesscommunity #chronicwarrior #chronicillnessawareness #chronicpainawareness #PoetryCommunity #poetryvideo #spokenwordpoetry #chronicillnesspoetry #InvisibleIllness

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I’m new here!

Hi, my name is Paige61.
I’ve had major depressive disorder (MDD) since age 15 and anxiety issues since around 30. Until the past couple of years, I had not had a depressive episode since 2006 when I received successful day treatment at Mclean Hospital. I’m here because I’m struggling and nobody gets it. My one friend (friend since birth) who mostly got it & who would always listen, when/if I could get the words out, died unexpectedly a few weeks ago. The grief from that & major MAJOR losses the year before, have left me depleted. Numb. Lost. Overwhelmed. Wondering how to keep putting one foot in front of the other. And since COVID, I have become permanently disabled with physical issues, which just turns the depression up along with chronic pain & chronic fatigue. Okay, I’ve spilled it. Can anyone else relate?

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Tryna figure it all out

Been struggling with different symptoms for 3 years now. First diagnosed with chronic migraine, then ebv, then pcos. Lately things hadn't been adding up. We're suspecting pots, perhaps lupus, or other autoimmune. It's been kinda tough... the anxiety is the worst:(

#PolycysticOvarySyndrome #POTS #AutonomicDysfunction #ChronicEpsteinBarrVirus #Migraine #ChronicVestibularMigraine #Undiagnosed #Lupus #ChronicFatigue

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Thoughts

What's hardest for me as an undiagnosed patient is the feeling that I have no place. I'm too healthy for the sick but too sick for the healthy. I'm expected to do everything everyone does, keep functioning, in a body that is just broken. I don't have a valid medical ticket to validate and excuse myself

#Undiagnosed #POTS #AutonomicDysfunction #ChronicFatigue #Migraine #ChronicVestibularMigraine

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Making Sense of My Lab Results: How I Learned to Understand Insulin Resistance

For years I struggled with unexplained fatigue, body aches, and weight changes that didn’t seem to match my lifestyle. My doctor eventually suggested checking for insulin resistance. That’s when I first learned about the HOMA-IR index.

Like many patients, I found the lab report overwhelming. Numbers were printed, but no context was given. I wanted to know what those numbers meant for my health and how I could follow up.

After some research, I discovered that HOMA-IR is a calculation that uses fasting glucose and fasting insulin to estimate insulin resistance. This is important because insulin resistance can be linked not only to diabetes but also to cardiovascular health, hormonal balance, and even chronic fatigue.

What helped me was breaking the information down into three steps:

1. **Get the right labs.** Always ask your doctor for fasting glucose and fasting insulin. Without both, HOMA-IR can’t be calculated.

2. **Use a reference tool.** Online calculators can help you make sense of the numbers. For example, this [HOMA-IR calculator]After some research, I discovered that HOMA-IR is a calculation that uses fasting glucose and fasting insulin to estimate insulin resistance. is a calculation that uses fasting glucose and fasting insulin to estimate insulin resistance.

lets you enter your results and gives you an estimate. I only use it as a *reference*, not a replacement for medical advice.

3. **Discuss with your healthcare provider.** Armed with the numbers and a bit of understanding, I was able to ask more informed questions at my next appointment.

Learning to understand my lab results didn’t cure my fatigue overnight, but it gave me a sense of control. It turned confusion into a conversation with my doctor, and that made all the difference.

If you’ve ever felt lost looking at lab numbers, know that you’re not alone. With the right tools and the right support, those numbers can become the first step toward better health.

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NEED YOUR HELP!🤓

Hello, loves!🥰 I am considering submitting an article for publication here on The Mighty and would love to get your thoughts! I have 4 topics that I feel would potentially be well received by The Mighty subscribers. Please type the emoji of your favorite topic in the comment section below! Your opinions mean so much to me! Thank you!! Wendy🌻🫶🏾

✈️Tips For Traveling With A Chronic Illness
♿️ Assumptions People Make About Chronic Illness
🏠 Tips For Living Alone With Chronic Illness
💎 6 Must-Have Items For Chronic Illness
#MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #Fibromyalgia #MentalHealth #HypothyroidismUnderactiveThyroidDisease #MultipleChemicalSensitivity #Depression #Anxiety #Caregiving

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