Chronic Fatigue

Braille translation: This is how I navigate my words,

I am blind, yet I can still see some things, but it's going away. Week after week I see less and less, to a degree I'm sure I won't have any useful vision left by the end of the year... And I try to rationalise that my grandparents are narcissists, my dad and stepmum are very mentally rigid autistics - and since I also am autistic I should understand this rigidity - and my mum is trying her best to support me, she's the only one who doesn't frustrate me honestly... But it still is so hard to be so lonely in this...

My dad and stepmum aren't the biggest of issues to face, but yes I'd love if they could understand how traumatic and hard this is being for me, stop sending me job applications for a day, understand how much I'm struggling, understand how much it hurts. And then here I have my grandparents not making any effort to understand this is real, this is happening and it's happening fast. Using "this that" language, pointing at stuff or asking me something without the word. Just some minutes ago my grandpa wanted me to get him the cutlery drying cylinder... And he asked me "get that thing for me", and I'm day after day so much more frustrated so it's being hard to mask my body language emotional response, and I pulled my hands up in a sign of frustration and asked "what thing?" And he really sounded a bit annoyed that I didn't know.

It doesn't help to point at something, it doesn't help to say this, that, there... I just want some clear language and I want to feel like I belong, like I matter! They make no effort to accommodate me, to listen to me, to understand when I'm venting out my frustrations about this ableist world. I have an appointment tomorrow that I'll go by myself, and I'm already pre suffering because I already wonder how much I'll have to advocate for myself, I am tired.

I am exhausted!

And I feel completely lonely.

I moved here a couple of years ago and I haven't met any fellow spoonies yet. Would be great to have some friends who get the struggle. Say hi if you're local!

#ChronicPain #Fibromyalgia #ChronicIllness #Spoonie #ChronicFatigue

It's that time of the week again, Mighties! Tell me your three favorite things from the week in the comments below 👇
#Addiction #AnorexiaNervosa #Anxiety #AutismSpectrumDisorder #ADHD #BorderlinePersonalityDisorder #BipolarDepression #BipolarIDisorder #ChronicFatigue #Depression #Epilepsy #KidneyDisease #ObsessiveCompulsiveDisorder #Cancers #Grief #Lupus #HemiplegicMigraine #AutonomicDysfunction #PTSD #POTS #Hemophilia #SjogrensSyndrome #Endometriosis #InterstitialCystitis #HearingLoss #Deafness #SuicidalThoughts #Selfcare #Selfharm #IrritableBowelSyndromeIBS #JointHypermobilitySyndrome
#MightyTogether

Living with Lyme disease can be unpredictable, frustrating, and exhausting. Symptoms can range from chronic fatigue and pain to rashes, neurological and cognitive challenges, mental health struggles, arthritis, heart palpitations, and much more. Because many symptoms are invisible or fluctuate over time, the realities of living with Lyme disease are often misunderstood.

What do you wish others understood better about living with Lyme disease? What has been the most challenging part of your experience? What resources, treatments, or coping strategies have been the most helpful? Where do you feel you need more support right now?

#LymeDisease #ChronicIllness #MentalHealth #CheckInWithMe #ChronicPain #ChronicFatigue #Arthritis #Anxiety #Depression

You deserve so much more credit than we often give ourselves. You're doing your best & that's what matters. ❤️
#BorderlinePersonalityDisorder #BorderlinePersonalityDisorderBPD #Anxiety #AnorexiaNervosa #BulimiaNervosa #ChronicFatigue #Addiction #Anxiety #Depression #Grief

Hope this cheers you a little 🌼

Whether it’s for a holiday, birthday, special occasion, or just because, a thoughtful gift can go a long way in lifting your mood—especially when health conditions keep you home or in bed. Sometimes, loved ones want to show they care but aren’t sure what would be most helpful or meaningful, and may need a little guidance or inspiration.

What’s a gift you’d truly appreciate?

⭐ Your answer may be used to update a Mighty article! ⭐

#ChronicIllness #Disability #ChronicPain #BackPain #Spoonie #ChronicFatigue #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis #Lupus #Cancers #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness #alwaysinbed