How can you incorporate some ☀️ sunshine, water 💦, nature 🌳 or rest 💤 today?
These are all great suggestions that help us heal and feel happy 😄
Meet me in the comments below 👇
#Addiction #AnorexiaNervosa #Anxiety #Agoraphobia #AutismSpectrumDisorder #ADHD #BorderlinePersonalityDisorder #BipolarDepression #MentalHealth #PTSD #Schizophrenia #Lupus #ChronicFatigue #CeliacDisease #Grief #Cancer #Migraine #SjogrensSyndrome
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Hi, my name is Aloha621. I'm here because I have PPMS and have been falling more than usual. I even fractured my left foot (this side has been impacted the most). I hardly drive and if I do, it can only be within a few miles. I hate that I am disabled and losing my independence!!! I also hate having to rely on others for help shopping and keeping up in my house. I find myself not caring about the mess these days, which is so unlike me.
On top of my PPMS, my husband is bedridden and I'm his primary caregiver. I also still work full-time because I have to. It's depressing seeing my husband in this state and I just think about that being me in the bed in the future. That scares me big time. I notice my decline more and more. I notice my foggy brain and the chronic FATIGUE, which worries me because it's starting to make my job harder. The fatigue is unbelievable, I find myself drifting off in meetings and at the computer. WTH?!!!
I have a 2 story house that we live in and raised our children in. It's getting so hard to do the stairs, but I remain grateful for the fact that I'm still able to navigate the stairs, but it's not pretty. I am normally a very positive person but this has really been rough. I was diagnosed in 2023 and it's the worst form, PPMS. I mean, really? I didn't even have the luxury of time to slowly get used to this ever-changing new normal. My family doctor always attributed any symptoms to my needing to lose some weight. However, it took me going to a different doctor and about 6 years later (had to start from scratch to figure out what was going on.
There's more but I'm exhausted typing and checking my spelling and sentence formation. Any insight, advice, support, suggestions would be greatly appreciated. I get so lonely and I feel so alone and isolated.
#MightyTogether #MultipleSclerosis
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I'm curious how many of u have this issue I've begun having semi recently. Being bed ridden AND knocking out as if u have narcolepsy (but u don't, just CFS and other disorders that also have fatigue as a symptom). So to paint the picture, I got good deep sleep, I got 7-10 hrs of that deep sleep, but as I go thru my day,or when I get home I may just automatically knock out, like literally despite myself/despite my attempt to stay awake and wait for "bedtime". Then when I am finally up again,I still feel myself aka sluggish. Knowing I'm more than physically and mentally rested but my body still feels sluggish. It's baffling how extreme it all is, that I can get legit sleep, legit hrs AND knock out for hrs (a narcoleptic type "nap") wake up and still feel physically sluggish. (Mentally I'll feel good off the "nap" though). So I'm curious how many go thru this....show of hands?? #ChronicFatigue
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So so true. #TheMighty #Anxiety #CheerMeOn #ChronicFatigue #Depression
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Went home unbelievably nauseous with a migraine since I opened my eyes and I’ve been having a heck of a couple weeks. Yet getting to enjoy this - zen - my GSD girls - nature - a book - quite . Did I mention it’s 75 with a slight breeze blue sky’s and suns out. Ideal for me. #MixedConnectiveTissueDiseaseMCTD #MentalHealth #RheumatoidArthritis #AutonomicDysfunction #ADHD #Anxiety #ChronicFatigue #RaynaudsPhenomenon
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If it's a hard season, month, week or day- please just take it minute by minute.
#Addiction #MentalHealth #Agoraphobia #Anxiety #AnorexiaNervosa #BorderlinePersonalityDisorder #BipolarDisorder #BipolarDepression #ChronicFatigue #CeliacDisease #Depression #Grief #AutismSpectrumDisorder #ADHD #PTSD #Schizophrenia #Lupus #ChronicFatigue #SjogrensSyndrome #Cancer
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Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue
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Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis
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Chronic illness isn’t just what happens inside your body. It’s what happens around it too. It’s the maze of mirrors the world builds around you. You try to walk forward, but in every direction, there’s a disordered reflection of yourself. Not the kind you laugh at in a mall funhouse, but a warped, dizzying trap where every door leads to another hallway, another dead end, another gatekeeper pointing you the wrong way.
And the mirrors don’t just make you look shorter or taller — they show you as lazy, dramatic, hopeless, beyond fixing, too sick, not sick enough. And sometimes, even when you know your own truth, those mirrors convince you they’re real.
You spend months. Years. Decades. Wandering the maze. Bumping into glass. Begging someone to break it. You bump into the medical industry that silences you in polite language:
“We didn’t find anything.”
“Let’s wait and see.”
“It’s probably anxiety.”
You bump into caregivers who mean well — but trap you in their fear. Into insurance companies that tell you your survival isn’t cost-effective. Into doctors who send you down another hallway because they don’t know what else to do. You even bump into yourself — the part that whispers, Maybe it really is all your fault.
The system is built to look like it’s working, but inside it’s rotting. And people outside the maze can’t see that while they imagine you’re being “cared for,” you’re actually crawling, crying, begging anyone to stop the damage. You are surviving — barely — in a system that wasn’t designed to save you.
I’ve been bumping into mirrors for seven years. I survived neglect that so many others didn’t — not because the system saved me, but because God did. He kept me here for a reason. Maybe I don’t fully know what that reason is yet, but I do know I have a story to tell.
So I write. Even when my screen intolerance threatens to steal my voice.
I write for that people who didn’t make it.
I write for everyone still crawling through this maze, wondering if anyone sees them.
And if you’ve never stepped inside this maze yourself, maybe you’ve walked right by it, oblivious, — do you see me now?
👉 I even turned this piece into a spoken word poem. Here’s the video:
youtube.com/shorts/PpQ5dn1xCqE
#ChronicIllness #ChronicPain #ChronicFatigue #POTS #Dysautonomia #BrainInjury #MedicalTrauma #chroniclife #InvisibleIllness #chronicillnesscommunity #chronicwarrior #chronicillnessawareness #chronicpainawareness #PoetryCommunity #poetryvideo #spokenwordpoetry #chronicillnesspoetry #InvisibleIllness
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For many of us, shifting of seasons can effect our physical & mental health. This is a gentle reminder we could all use.
#AddictionRecovery #Addiction #Agoraphobia #AutismSpectrumDisorder #BorderlinePersonalityDisorder #BipolarIIDisorder #BipolarDisorder #PTSD #Schizophrenia #Lupus #ChronicFatigue #Grief #SjogrensSyndrome #SuicidalIdeation
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