Chronic Fatigue

Hi, my name is 901BluesBirdy. My diagnosis includes fibromyalgia and chronic fatigue syndrome. I have joined to connect with others who experience chronic pain in order to obtain advice on how to manage my daily life. I am presently dealing with a flare and am optimistic about the prospect of maintaining my quality of life. However, I am in search of information regarding the availability of mobility aids and resources that can offer me daily support.

#ChronicFatigue #ChronicFatigueSyndrome #ChronicPain #ChronicIllness #ChronicLungDisease #Asthma #Fibromyalgia

Hi, my name is Chronicallyn77. I'm here because I was a nurse specialising in community, oncology, chemotherapy and palliative care for all my adult life until an accident started off Complex Regional Pain Syndrome. I have always suffered from migraines, both hemiplegic migraines and cluster headaches, and also had bouts of anxiety and depression throughout my adult life, from the age of 15 when I lost my dad, friend, cousin, auntie and uncle within a 6 month period. Having to take an early retirement due to my ill health caused a lot of anxiety and depression within the first year or so as I missed my patients, my colleagues and my identity as a nurse. I have since also been diagnosed with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome and Fibromyalgia. I was extremely active before my accident, enjoying mountain hiking, and playing roller derby aswell as the gym and going for walks. I grieved for my old life for a long time. Using bilateral crutches, a forearm rollator and a wheelchair to get around (depending how I am at that moment in time). I have slowly regained my confidence and adapted to my new life. I was referred to a local Chronic Fatigue Team and learnt ways of how to cope with my chronic illnesses. I'm not perfect, I still overdo it on my good days and end up in bed needing help for days on end. I saw The Mighty on Instagram and also an article written by someone from The Mighty, I decided to come along and meet some other people in similar situations. At times I feel my family do not understand what I go through, which is okay, as unless you are dealing with it, you are not fully going to understand. It would be lovely to be understood. I have a teenage daughter who is Autistic and has ADHD and anxiety. I feel like I have missed a great deal of her lifetime due to being chronically ill and not able to cope. We are very close and do as much as we can together these days. We keep each other going ♥️ We go to Comic Cons together and dress up (never too old!!), we go to the theatre, read comics, sing to music and watch TV together, we have also just started going back to roller derby together (obviously I can't skate! But I help by being on the bench or sin bin as we call it) and she has to wait until she's 18 to join the team, but it's good to get back into the game!

#MightyTogether #Migraine #Fibromyalgia #ADHD #OCD #Anxiety #Depression #ComplexRegionalPainSyndrome

There’s a fire in me I can’t ignore anymore.

For years, I’ve lived with chronic illness. It’s shaped every decision, every plan, every ounce of energy I have. And for a long time, I thought it meant I had to shrink my dreams, keep quiet, stay grateful just to survive.

But something’s shifting.

I recently heard Rutger Bregman, author of Moral Ambition, say:
“What if you aimed your ambition at doing the most good? Not chasing comfort or prestige—but choosing the path where you contribute the most?”

And it stopped me cold.

Because I have always wanted to do good. But chronic illness made me believe that my voice wasn’t loud enough, that my effort wouldn’t be enough. That’s a lie I’m done believing.

I may not be able to march every day or stay up all night organizing, but I’m still here. I still see what’s broken. And I still burn to change it.

I want universal healthcare—including dental, vision, mental health.
I want reproductive rights—for all genders.
I want corporate monopolies broken, oligarchs taxed, and clean jobs prioritized.
I want protections against predatory tech, social media harm, and biased AI.
I want a public education system that’s safe, brilliant, and free.
I want women’s health research funded like our lives depend on it—because they do.

I’m tired of pretending that just surviving is all I’m here to do.

Living with chronic illness hasn’t weakened my ambition—it’s clarified it. It’s sharpened my sense of what matters. It’s made me fierce.

So here I am. With less energy than most. With more pain than I ever wanted. And with more fire than ever.

I’m done waiting for the world to make space for me. I’m carving it out.
And I’ll use every ounce of strength I have to leave this world better than I found it.

Hi, my name is EnvelopingNightjar0. I'm here because I have rheumatoid arthiris, atopic dermatitis, chronic fatigue, FND and NES

#MightyTogether #Depression #MultipleSclerosis #Fibromyalgia