ChronicDailyMigraine

There are so many things happening right now and that have happened to me in the past six years.
I cannot even begin to explain the level of despair I am feeling. I no longer feel like I am a person. I don’t even feel like reaching out for help any more.
I am not staying in a safe location. I have contacted countless people and agencies for help. But resources are stretched and somehow that makes it okay for me to not access resources to meet basic human needs.
My “friends” and “family” act like it’s okay for me to have to deal with it. I have had complete ptsd meltdowns and they have just stepped over me (sometimes literally) and continued on with their lives. When they tell stories, they talk about how they could never go to the hospital alone and how scary it is. But they never connect back with that to empathize with me when I’m in the ER for a migraine. This is one example of countless things that have happened just in the past year.
I am connected with community agencies and I’m not getting services. I have an awesome therapist and she is appalled by everything that has happened and how I have been treated. We are considering filing a grievance because I am about to lose my housing voucher because my case manager will not follow through on her part (I have already switched case managers a couple of times and gone up the chain of command to advocate for myself).
I don’t even know what else to say anymore. I’m feeling really hopeless and I’m experiencing a lot of depersonalization (both of which are highly atypical for me, which indicates the level of crisis I am in)
Can anyone relate?
#CPTSD #ChronicDailyMigraine #Agoraphobia

Hi Mighty Friends,
I am in extreme distress and I am feeling really alone. I will be homeless at the end of the weekend and there isn’t anyone who is actually willing to help me, even for a night.
I have severe #CPTSD from #DomesticAbuse and I have been struggling to make it through the days for years. I have a therapist who is really helpful but she is only one person and can only provide so much. She has already gone above and beyond to try to help me.
I also have a case manager from a community-based service provider, but she has not returned my call.
I feel paralyzed, which is incredibly unfortunate, considering I need to take action now.
I don’t see a way out of this.
Please, if you can, share some positive thoughts to get me through the next couple of days and/or longer.
Thank you

Hi friends!
Does anyone else have a hard time with holidays?
As an extrovert, as well as someone with several problems that make it extremely challenging for me to leave my home, I often struggle with loneliness. It’s so much more painful during the holidays.
I have tried taking control and calling people during the holidays rather than waiting on them to call, but people don’t usually respond. I have tried accepting that this is just not something I can control, but it’s really painful. I have even tried talking to people about how I feel when I don’t hear from anyone on the holidays.
I don’t think there is anything I can “do” about this, so I am hoping I can reach out to know I’m not the only one experiencing this.
💗
#Loneliness #CPTSD #GeneralizedAnxietyDisorder #PanicDisorder #ChronicDailyMigraine

I left high school as a senior in November. I’d been struggling with chronic daily migraines for nearly 2 years and just couldn’t come to school every day anymore. Now the whole school is online due to covid-19, and they’re making their classes pass/fail. It’s selfish to be feeling bad for myself right now, but I was never offered any of these accommodations. So now I’m behind, going to be graduating late, and feeling very frustrated and disappointed. I understand that the need now is far greater due to the virus, but I’m still disappointed that I was not given this kind of understanding and flexibility. Feeling frustrated and invisible right now. #ChronicDailyMigraine #InvisibleDisability

I was going to go prom dress shopping today and have dinner with my godbrother, but once again, #ChronicDailyMigraine has changed all my plans. Not surprised, just discouraged.

I’m 16 and have had chronic migraine for the last 2 years. I wish healthy people understood that I’m not going to be cured in the foreseeable future, and I wondered what you all thought. #ChronicMigraines #ChronicPain #ChronicIllness #ChronicDailyMigraine #ChronicMigraineSyndrome

Brain fog diaries:

yesterday i knocked on my bedroom door before walking out into the hallway. why? i couldn’t tell ya.

today i picked up a bottle of hand sanitizer and looked at the back for nutrition facts. yeah. i don’t know either.

Since I’ve been chronically ill, my friends have all seemed to distance themselves. They never check up on me and barely ever invite me out. I always see posts of them out at fun places or having sleepovers. I feel like they just don’t know how to talk to me and don’t care enough to try. #isolated #ChronicDailyMigraine