Hi!
I have a question for other people with chronic illnesses who see a number of specialists.
I have two therapists, a psychiatrist, a case manager (finally!), a primary care doctor, a neurologist, and an autonomic specialist. Most of my symptoms come from unrelenting panic attacks and high anxiety which trigger severe intractable migraines. The autonomic specialist is helping with the symptoms more related to pots- movikity, nausea, lightheadness, dizziness, fast heart rate, etc.
I’m on a number of medications to treat multiple conditions. I am medication hesitant; my providers know and I discuss my fears with the people who prescribe anything so I can feel comfortable taking it.
There have been far too many times where someone (a medical professional) who doesn’t understand the complexity of my conditions and the severity of my symptoms try to tell me I’m on “too many meds.” Which just starts the fear all over again. I end up spending my sessions trying to talk to my therapist about if I “really need it” or if I am “damaging my brain.” I talk to my psychiatrist about seeing if I can reduce my medication yet (I cannot, we still are trying things out). Not only that- probably almost half of my meds are as needed- especially for panic and migraines.
I may have told this story on here before, but last year a pharmacist wouldn’t let me pick up my adhd medication unless I explained why I need it. (BTW- I specifically request the psychiatrist test me for this because I’ve had the diagnosis but never was tested, and i wanted proof before I started meds again). I told him to talk to my psychiatrist because she advocates for me and I’m tired of explaining over and over again why I am on what meds. I was able to pick up my meds by the end of that day and my psychiatrist reported him because there was no interaction and I have been taking these meds for awhile and picked them up from that pharmacy.
Last week , someone from insurance asked me to explain my meds and why I am on them. And now I’m recycling these fears and know that my trauma therapist and I are going to have to work through that fear again.
I’m going to type out a document with all of my medications and what they are used for because it really does activate me and make me less likely to take my as needed medications like I’m supposed to.
My question is: Does anyone else experience this frequent request to justify their medications to not just all the service providers, but also other people who are “involved” but don’t know me (pharmacist, insurance people, intakes to get new services)? Does anyone else get triggered when this happens? Is it just me?
Thanks to anyone who read through my long essay on being afraid to take my as needed meds, again. ❤️
#ComplexPosttraumaticStressDisorder #MentalHealth #Agoraphobia #PanicDisorder #ADHD #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Migraine #ChronicVestibularMigraine #ChronicIllness #Disability