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What do I do now….?

Had a thorough few appointments with a neuropsychologist. FINALLY. After many, many years of turmoil and suffering searching for one; searching for someone to listen and take me seriously. I thought this was finally it.

WHAT do you do, though, when the doctor basically says to you that your SYMPTOMS are causing your symptoms???
Without even realizing it on their own that they’re saying something almost criminally absurd? And then leaves you with nothing. No answers.

I’m just sitting here crying and feeling like I can’t keep going on today… #Depression #Anxiety #ChronicPain #HEDS #EhlersDanlosSyndrome #Fibromyalgia #HashimotosThyroiditis #ThyroidCancer #ChronicMigraineSyndrome #chronicmigraine #BrainFog #SocialAnxiety #MigraineWithAura #DoctorVisit #DoctorShopping ?! #ADHD #AdultADHD #UndiagnosedADHD #ADHDInGirls #Adhdinwomen #Dyscalculia

3 reactions 17 comments

When dealing with a number of conditions/comorbidities, do you find one doctor or many? If the latter, how to get them all to communicate? Thoughts?

I am the parent of a teen suffering from a number of conditions the initial of which was/is NDPH. I believe we're at a crossroad in her care and am thinking about how to proceed. Right now, we have a number of doctors - none that I'm thrilled about for various reasons and none are necessarily specialists in her specific disorder(s). Based on your experience, would you recommend seeing specialists for her individual conditions, going to an inpatient program to try to deal with all conditions holistically, or some other model?



I’m in Gilbert Arizona and need a doctor to treat my fibromyalgia. I’ve never posted before. Can anyone help me out with using this site or give me a recommendation? #DoctorShopping


Not Letting It Slide

I don’t know why I’ve been putting this off, but I have to find another doctor. if not this week, then next week, but I’m not letting another month go by without getting this squared away. #Depression #MentalHealth #DoctorShopping


Naturopathic Doc Update!

About a week ago, I posted about how nervous I was to go see this new doctor. I was afraid it was going to be another dead-end. Turns out, she is a wonderful person with a lot of great ideas! The first thing I learned was that even though she is certified in Naturopathy, she also has an MD so she is a “Naturopathic Doctor”, which is different than just a “Naturopath”. So I get all the benefits of a general practician, plus the natural side! So far, we are doing pressure point therapy, ozone therapy, and rebuilding my gut health through a temporary elimination diet while taking collagen. I also learned that she is good friends with my primary care doctor AND the pharmacist who created a compounded rinse that has been helping my sinuses, and she’s going to talk to him and see if he has any more ideas for me. Best of all, I get to see her twice a week—which, when you’re used to waiting weeks or months to see a doctor—is amazing!! Today I had to miss school for a migraine and she was able to see me the same day for treatment. What an incredible resource. I only met her a week ago and we’ve already had 4 productive appointments. Of course, every doctor is different, so if you consider seein a ND make sure to do your research, ask around, or ask for a referral. My GP is all about wholistic care, but she just doesn’t have the time to devote to my health problems the way my ND does. That said, I highly, highly reccomend it if the standard medical model is just not working and you need someone to see you regularly! I hope this can encourage even just one person to take the next step, however scary it might seem. Us spoonies get used to living without answers, but you never know when you might be surprised when you keep an open mind. PS sorrry for the long post! Thanks for reading! #ChronicIllness #ChronicPain #Spoonies #DoctorShopping #Hope