Dysphasia

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Hey y'all!

I'm new, my name is Labradored. I am here because of multiple medical and mental health issues. My oldest daughter was born with Rett Syndrome (a pervasive developmental disability with serious health issues) and died from a seizure in my arms at 12 years old in 1993. My youngest daughter died in a car accident at 17 in 2000. They were my only children. I was so very blessed to be their momma.
My medical issues include long term insulin dependent diabetes II, exocrine pancreatic insufficiency, Celiac disease, asthma, osteoarthritis, severe food, drug and environmental allergies, dysphasia, Barrett's esophagus, eosinophilic esophagitis, GERD, chronic stomach issues, and IBS.
My mental health concerns include Major depressive disorder, generalized anxiety, OCD and ADHD, and complicated grief related PTSD.
The memes on this site are helping me get through this current gastro flare, I've been nauseous all day today with vomiting and diarrhea for the last 12 hours . This happens about twice per month. My food menu is quite limited due to allergies to gluten, soy, most non citrus fruit, lactose intolerance and tree nut and peanuts. I feel like I develop a new food allergy every year.
My medical issues began shortly after my youngest girl died. Don't let anyone tell you that grief is just an emotional response, grief has wrecked serious havoc on my body.
I have a wonderful husband, supportive and loving friends, a great career as a behavioral health counselor and three fur babies who provide unconditional love and entertainment.
Most of the time I manage pretty well, but when my health conditions flare, it tanks my mental health as well.
Looking forward to sharing and receiving. 🩵🩷 Blessings upon you all.

(edited)
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Swallowing problems

Went to a GI recently for some ongoing issues I’ve had and found out I have dysphasia and need an EGD and barium swallow to figure out what’s going on. Has anyone else had dysphasia/issues swallowing or esophageal motility issues? I know IBS like symptoms can be common with EDS but I havnt encountered anyone else with swallowing problems. Just curious if this is directly related to EDS somehow! # GI Issues

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And Another One!

Hey Mighties! I’m coming back. Happy 2023! I have some news to share about how my 2022 ended and how 2023 is my year of taking better care of myself. Stay tuned for a published story on life after life support. Are there any Mighties who live with a G-tube or Peg for feeding? #CheckInWithMe #MightyTogether #ChronicIllness #FeedingTube #Gtube #Dysphasia

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Food was a pleasure, now it’s a chore

Just over six years ago I was diagnosed with dysphasia and what was suspected to be an Esophagogastric junction Outflow Obstruction. Sadly this progressed and worsened and I was eventually diagnosed and confirmed to have #Achalasia . Food, eating out, grilling out and picnics were a pleasure. Events that would brighten my day, week or month. But with the progression of the disease, the thought food and struggling to eat caused pain. All food was then ground up and put in the blender for swallowing. Dilations worked but were only temporary and that is when the #Depression really kicked in. This week I “celebrated” the 4 years anniversary of my heller myotomy. Over time th swallowing issues are back and now is the depression. I know it could be so much worse like others but things just hit me today and I needed to vent.

My apologies. Have a blessed and positive day

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I don’t know what is wrong with me.

Literally in so many ways! I have been on a desperate quest for a diagnosis for 10 years now. 12 years ago I had my first daughter and I started feeling off. I went to see my OBGYN for a pap and to talk about depression. I refused anti depressants because I thought maybe birth control would help and it was situational/ hormonal. I had just had a child as a single mother at 19! Who wouldn’t be overwhelmed! Then I got an abnormal pap. She ended up removing the cell dysphasia and the year following my pap was normal. Then for the next years to follow symptoms became full body. I was diagnosed with fibromyalgia in 2011. Today I have numberous full body symptoms and now head aches dizziness and shortness of breath. Now presumably Rheumatoid Arthritis and Lupus. I have my very long awaited appointment with a Rheumatologist an hour and a half away from home. After waiting for referral after referral, 3 denials! (Thanks state insurance) Finally I will be seen next week!
But, a week ago I had an ultrasound of my throat for my enlarged thyroid... nodules all over... one of which fairly large on the right of my tracea with high suspicion.
I am living under a dark cloud of fear right now as my most unbearable pain is bone pain, every pain makes me scared that for the last 10 years there was something missed!
I don’t have the support I need to badly and I’m finding my self in the darkest place.
My husband of 6 years lost his father to cancer three years ago.
When he heard the possibility of me having the c word, he completely shut me out.
Today he told me he doesn’t know if he wants to be with me anymore.
We just lost our home to a severe mold infestation. We lived in that mess for 5 years and we reluctantly moved into a rental when he noticed how sick I was falling!
Now after every bump in the road you can imagine he’s just to tired to go thru this with me anymore. With all of my anxiety, depression, OCD and what ever the hell is causing my pain and unbearable symptoms... makes me an unlovable person I guess!
I’m so broken and lost and I just don’t know what is wrong with me!?

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ME newbie

Today after two years trying to find a cause for extreme fatigue cognitive changes, speech,muscle spasms, dysphasia, and occasional inability to walk along w loss of muscle strength and feeling my doc decided this is the diagnosis in the absence of any other diagnosis that can be made. I’m frustrated at no treatment and curious what everyone else has tried?
#MyalgicEncephalomyelitis #newdiagnosis

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Checking In

It’s been a while and my symptoms come and go but a couple days ago I was admitted to the hospital with dysphasia and speech therapy says it’s spasticity in my neck and vocal cords. I’m home now on a liquid diet using thickeners for food. Theee years, still no diagnosis or treatment but slowly losing myself. Frustrating.

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