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    Is there something wrong with my stomach?

    Hey, everyone. I hope you’re all okay and staying safe and well.

    I have a bit of a strange question. I have several chronic health conditions, including Postural Orthostatic Tachycardia Syndrome, Dysautonomia, Ehler’s Danlos Syndrome, IBS, Non-Alcoholic Fatty Liver Disease, Diabetes, Interstitial Cystitis, Migraines, Gastro-Esophageal Reflux Disease and some mental health difficulties. So there’s a lot of stuff going on.

    Anyway, I regularly get stomach aches, or just an iffy stomach in general. I’ll sometimes go 2-5 days with a very minimal amount of food because I’m just not hungry and I feel sick. I’ve had lots of tests and scans and beyond having a Hiatal Hernia and some inflamed blood vessels in my stomach lining, they can’t find a reason behind this. But I’ve recently discovered that when I feel like this and/or I’m bloated… I can get it all to go away by drinking something fizzy. Doesn’t matter what it is, but as long as it’s fizzy… It almost instantly makes it better.

    Does anyone have any idea why this is? I do struggle to burp a lot - I always have. When I burp, they are tiny and don’t make much difference, even after I’ve drunk the fizzy stuff. I’m completely open to suggestions. I take all kinds of medication for my IBS and GERD. Antacids, Buscopan, Mebeverine, Metaclopramide (an anti-sickness). But they have a minimal effect when I have these stomach aches, bloating, nausea and loss of appetite.

    Thank you all in advance! Any suggestions would be greatly appreciated. Stay safe!

    #ChronicPain #chronicillnesswarrior #POTS #EDS #Dysautonomia #GERD #IBS #nausea #NAFLD #LiverDisease #InterstitialCystitis #Diabetes #Migraines #BPD #HiatalHernia #Advice

    3 reactions 8 comments

    Hiatal Hernia #hernia #HiatalHernia #illness

    Anyone here able to help me regarding my hiatal hernia diagnosis. What steps should I take? Best medications? Is surgery helpful? #HiatalHerniaRepair #hiatushernia


    I saw my PCP today to follow up on the hyper mobility, joint and muscle pain, and weakness. I also brought up that I subluxed my back on Saturday and he didn’t say much about either thing.

    Told me my echocardiogram was normal, which is a plus. Told me he will not start me on any more meds as I’m already on 14 but that includes vitamins too. Told me a brace is okay but good luck finding something for joints other than ankle and wrist that are readily available. He did put in a referral to the EDS specialist at the University of Iowa but who knows how long that will take to get set up.

    I did mention how my PT didn’t seem to do much. Yeah the pain is diminished, but it was replaced with numbness. I also mentioned the comments PT has made about hyper mobility being normal which I agree with to an extent, but the amount I have isn’t normal. Again he didn’t say much about it.

    I guess I’m at a loss for what to do. I know there’s nothing they can do for hyper mobility, but can’t they still do the MRI that I pushed through 6 weeks of PT for? Can’t that help me find a PT that works with hyper mobility and knows how to treat it?

    Yes, I know I’m fat. Yes, I have mental health problems. If my weakness, pain, and hyper mobility were related to those things it would’ve been a problem 20 years ago, not just an annoyance and me being “clumsy” with bad posture. Also it would’ve improved when I lost 20lbs a couple months ago, but it didn’t it actually got WORSE!

    Sorry about the rant/vent I just don’t know what to do. I’m missing work because of subluxations which I can’t afford. I have a support team, but they’re all paid to support me (therapist, dr, and home aides). I feel lost and alone and my mental health isn’t doing the best.

    #EhlersDanlosSyndrome (?) #Hypermobility #Depression #Anxiety #quietborderline #BorderlinePersonalityDisorder #GastroesophagealRefluxDisease #HiatalHernia #dismotility #Gastroparesis #Endometriosis (?) #Anemia #Malabsorption #BingeEatingDisorder #Tachycardia #Hypertension #ChronicPain #weakness


    Feedback on experiences with alternative treatments and surgery for sliding hiatal hernia that actual work #HiatalHernia #IrritableBowelSyndromeIBS

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    Morning !!!! #CheerMeOn #Migraines #Giggles

    Hello 🖐🖐🖐🖐

    I can't say Good Morning
    Cos I've still got the dam migraine. Day 5 now

    I'm ok just completely fed up with left side numbness pins n needles neck pain and of cause the one sided head pain 😥
    I think I know what it is too.
    But until I get to the headache clinic I can't formally get diagnosed with it.

    With the Pandemic how long will that take. Both my local hospital won't take me on.
    Neurologist are working on coronavirus patients aren't they!!

    But hey what's new with that.
    I've been dealing with chronic illnesses for 20 years now. So it's nothing new . Just so so so dam annoying frustrating and making me angry..... 😠😵

    Its no ones fault, I'll just carry on as I always do. With a smile and a laugh . I'll cry when I need too, rant and get it out of my system.

    So thanks for listening My Mighty Family n Friends.
    You are all the very best.
    Love you all . Tj 🤗😘🧡❤💚💛😁🖐

    #Undiagnosed #frustrated #RareDisease #Arthritis #Migraine #ClusterHeadaches #Anxiety #MightyTogether #Bekindtoyourself #Selfcare #Love #Hope #rant #Vent #talkingtherapy #CheckInWithMe #NeverAlone #SphincterOfOddiDysfunction #PsoriaticArthritis #GastroesophagealRefluxDisease #HiatalHernia #Pain #Chronicpainwarrior

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    Am I right?? ( I’m hiding my sick face 😂)

    So I’m currently sick now and have all the #COVID19 symptoms except for 1 important thing. I feel some congestion in my chest but only feels like a kitten sitting on my chest, not an Elephant. I can still breathe easily. My fever is about 102. I think it’s the flu and monitoring it. If my breathing changes I will call Dr. My bestie is telling me to get my ass to the hospital now. I’m immune compromised. #AutoimmuneDisease #sjogrens #CoronaVirus #Flu #Fibromyalgia #ChronicPain #Spoonies #HiatalHernia #Depression # Anxiety #PTSD


    #Colostomy #BorderlinePersonalityDisorder #Anxiety #TreatmentresistantDepression #HiatalHernia

    My landlord is going to come over to my house tomorrow, Sunday, to repair my bathroom. He wants to come in the morning and I don’t really function well until the afternoon. I hate not owning my own home and having to arrange things around the landlords schedule. I’ve been sick from a hiatal hernia for several months now and so my house is messy and very dirty. I’m embarrassed to have anyone come in especially the landlord. I haven’t been well enough to clean or even pick up messes. Depression has me in its grip too. I just want to stay in bed. Actually I don’t want to be alive anymore.


    #Scleroderma #Crest

    #Gastroparesis #raynauds #Hypoxia #PVCs #Anemia . #pottssyndrome #EsphogusDismotility #GERD #hashimotos #Hypoglycemia #Migraines #ReactiveAirway #HiatalHernia #So MuchMore....= #autoimmunecringeworthy ... that's how I feel anymore.
    Yet with still with so many saying I look "so great!!" on the outside (well meaning, of course,) it's a common thing said to me / people with an auto immune, Scleroderma, chronic illnesses.
    But I find explaining myself now that my "problem list" is SO LONG that I almost feel like I AM the nightmare.
    The problem.
    It's cringe worthy.
    And isolating.
    And lately,
    Anxiety producing, which is
    something new.
    I can't put my finger on the pulse of what I'm anxious "of" exactly, but the "feeling" is flat out horrible.
    When I go to a specialist they want me to stay "in their lane" only = i.e. not discuss anything other than what they specialize in.... This becomes difficult when your disease affects so much (see list above) h
    If I get told a new diagnosis, (like recently one of, #Gastroparesis ) after so many other diagnosis's, it wasn't so much surprsing or earth shattering as it was worrisome...
    The conversation was short.
    Will we ever talk about it again?
    Is that it?
    Do we move on?
    Is it now another word on my list?
    And I say that kindly as my Dr's are great. But you see what I mean?
    "What now?"
    He goes to another patient.
    I have another Dr's appt.
    Did that happen? Matter?
    On the outside, I look exactly the same. Internally obviously "we" know the "drill"... I asked "is there a cure?" "no, no there is not".
    But I get explaining this messy situation I am living or sharing it or talking about it to people would be probably odd.
    But right now as I may be a #Auto ImmuneNightmare on the inside and appear ok on the outside. I'm actually feeling #Anxiety and #Uncertainty & I wonder about all the different diseases /diagnosis's progressions.
    But I guess these #Thoughts come with the territory.
    Thanks for listening.


    Thanksgiving fears #MyastheniaGravis #CVID #EDS #Gastroparesis #RareDisease #ChronicLymeDisease #HiatalHernia #POTS

    Going to family for thanksgiving and family will be there from out of state. Plus my 100 year old gram who doesn’t know what’s wrong with me. My swallowing trouble from MG is at the level I was put on thickened liquids and baby food consistency food. My gastroperesis has reached a new level over the last few months . I mostly use a wheelchair but can walk a little. Usually after sitting upright for more than an hour and my legs don’t work when I try to get up. So my wheelchair will be in the car and I’ve ensured there will be a little special soupy mashed potatoes. I’ll bring my liquid thickener. I’m scared for my family seeing me struggle to eat and walk. I’m scared because I’ve been flaring for a few weeks. I know I shouldn’t be embarrassed but that’s the reaction I have. My last solid meal in a restaurant I chocked and started crying out of frustration. I don’t want that to happen in front of family. Is anyone facing similar challenges?

    1 comment

    Gastroparesis Weight Loss

    I was diagnosed with GP last month. I've been having symptoms for quite some time now (years) but I didn't know it was related! Early symptoms were getting full fast after eating little quantities of food, little appetite and then the chronic nausea. Sometimes I'd get really bad stomach pains after eating. Sometimes out of the blue I'd get these horrible stomach pains that reach my colon. I couldn't even walk. I'm still unable to link that with possible IBS.

    I'm suffering, been suffering since May. But here's the weird thing...I was never much of a big eater to start with. Somehow after my diagnosis I started losing weight faster even though my eating habits have pretty much stayed the same. I usually eat an actual meal only once a day. The rest of the day I'll drinking liquids and/or a smoothie, eat pretzels, banana. Since then I've lost 12lbs and I'm still going. I'm deficient in Vitamin D, I've had low potassium and am usually dehydrated.

    I was at the Urgent Care just the other day for bronchitis. My immune system has been compromised. I haven't been this sick in years! I'm really starting to get concerned I just don't know when it's an actual red flag 🚩 #Gastroparesis #nausea #WeightLoss #sick #ChronicIllness #InvisibleIllness #GERD #HiatalHernia #AcidReflux #Malnutrition