Epilepsy

Hi, my name is Dylan Rothbein. I'm here because I'm always looking for support and I care about community and disability. I'm currently a rabbinical student and a musician and filmmaker. I have been and activist and disability studies scholar for 10 years. I have a BA in history and an MBA in music business.
#MightyTogether #BipolarDisorder #Migraine #LymeDisease #CerebralPalsy #EhlersDanlosSyndrome #Epilepsy #PTSD #Dyslexia #Blindness

Hi, my name is binxy888. You can call me Binx or Binxy. I've been diagnosed with Epilepsy, Lupus, Autism Spectrum Disorder, ADHD, Insomnia, Depression, Anxiety, and PTSD. I work as a director of programs at a major insurance company and own another company. I am a single mom of two teens. I spend most my time masking and hiding my conditions from people as most people do not understand chronic illness. It is very lonely and isolating. I am looking for people that are going through similar situations to relate to.

#MightyTogether #AutismSpectrumDisorder #PTSD #Anxiety #Depression #Lupus #Epilepsy

I keep having what I believe to be seizures due to my past experiences with them and the pattern, it scares me at times when I feel an aura. I don’t want to lose my awareness, I don’t want to suddenly be thrown in a void unable to register anything until passes. I am fortunate enough that I don’t convulse to my knowledge but they can be rather scary.
How do you cope?

#Epilepsy #Seizures #SeizureDisorder

Hi, my name is Useless49. I'm here because
I've been put in mental hospitals against my will.and the people who have done it caused the rigamarole. I also have epilepsy. People don't care, unless they get their way. My brother is a troublemaker, dad don't care. It's all about him and my brother and his SIL that made jokes about me. I'm human. GOD gave me life they didn't #MightyTogether #Anxiety #Depression

Hello, my name is Harvey. I'm undiagnosed and I’ve had 5 (probably more) episodes this year where I suddenly stop responding, stare, and become confused afterward. They last less than a minute, though one lasted about 4 minutes. I also get déjà vu and eye flutter. I had seizures in childhood.

What happens is usually the following;

Déjà vu → Head pressure → Staring → No response to name → Sometimes eye flutter → Confusion/Dizzines → Aware again.

They are brief usually but when they happen I’m not aware of anything that happens, like I’m in another realm or void of some kind, basically a total loss of awareness. I’m supposed to be driving soon but this seems so unsafe, what should I do? I think I could be experiencing Epilepsy but I’m not sure.

#MightyTogether #Epilepsy

Hi, my name is Rae. I'm here because I have a lot of chronic disorders. I’m only 23 and it is almost impossible to live. Every year I get diagnosed with something new. I don’t know anyone like me. I know people who have the individual issues and disorders. But I’ve never met or talked to anyone who struggles with everything. I just want to know more about these things and how to deal with them. I came from nursing but it’s different to be in it. It’s also taken over my whole life to where I cannot work. I pass out consistently. I just need someone who can understand some what.

#MightyTogether #Anxiety #Depression #Migraine #PTSD #EatingDisorder #OCD #EhlersDanlosSyndrome #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #PolycysticOvarySyndromePCOS #Endometriosis #Gastroparesis #HypothyroidismUnderactiveThyroidDisease #CeliacDisease #IrritableBowelSyndromeIBS #Grief #Epilepsy #Arrhythmia