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Do you suffer from an invisible illness?
BEING CHRONICALLY ILL MEANS SUFFERING INVISIBLY. #InvisibleIllness #invisibledisease #MadeVisible #ChronicIllness
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invisibledisease
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This year I survived , Next year I want to live
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Invisible Disability
I have a really hard time because people think I’m fine, because you can’t see my disability. I have friends and strangers ask me why I don’t work, why I park in a disabled spot, etc. I literally have a hard time taking a shower and just plane “doing life.” Feeling frustrated
#Disability #invisibledisease
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Feeling multiple sclerosis
Feeling Multiple sclerosis
I want to be well
Please, I pray to heal me
Let me be me again.
I miss myself
I miss being healthy
I feel I'm dettererating
From inside out.
I was once a strong individual
Who was never scared to get back up
From crashing so hard to the ground
Now
Barley able to lift a single limb
Yet alone my body back up
Is detramental
To accept this new life
As good, as strength
Is not acceptable in my mind
My body deserves more
My soul deserves to be pain free
My life deserves to break these chains
Weighting me down with disease.
The constant battles
Of if I can or cannot
If so how long
What do I need to prepare for
Is waring thin.
I once wore scars proud
To show others how strong I was
Now my scars are all on the inside
Affecting my thoughts actions words and breath.
A little more each day
As each day new scars form
Never to show
Only for me to know.
I want to be well
Please alow me to be me
Again
To be judged no more
Of the shape
I am in.
#mswarriors #msfamily #Inspiration #innerstrength #invisibledisease #Awareness #innerstruggle #Spoonie #ChronicIllness #ChronicPain #Understanding #humanity #budaswarriors
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Thinking how you think about life. #invisibledisease #awaren
Think about having no feeling
in your fingers, your toes or half of your body.
How does that feel?
Think about having no feelings
just one constant emotion
a new emotion
one that isn't happy but you only smile.
one where you are sad, but can only laugh.
one that doesn't allow any other true feeling or emotions.
how does that feel?
Think about being hungry
and only getting nauseous at the smell yet alone taste of food
Think about your favorite meal and one thing you would never eat to both taste the same.
How does that feel?
Think about when you want the volume up on the T.V.
but you can't because the volume is already blaring in your head.
How does that feel?
Think about wanting to tell someone a story about yourself
but not knowing the words to use or how to put a sentence together to deliver a proper conversation.
Think about knowing what you want to say in your head
but never being able to speak because by the time your thought gets to your lips you had forgotten it.
How does that make you feel?
Do you feel angered? Anxious? Humiliated?
or Do you feel misunderstood? or that others think your antisocial?
Do you feel misrepresented? or like crawling under a rock because you cannot do things as simple as speaking like you did before?
How do you feel?
How do you feel when it's all taken away?
When all you once had is now gone?
How do you feel when you try your hardest?
And your hardest is to weak to even make the smallest scratch in life?
How do you feel?
Tell me...
How do you feel?
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When Relief Comes
It's an unprecedented event after years and years with the pain. This pain responded to no remedy, no therapy, no amount of will or passion inside me that could abate the torment. It turns itself on and off now, the off position giving me blessed reprieve, relaxation, and energy to keep stoking the fire of self-love by which I press earnestly forward into a quality of life I've only ever seen glimpses of in dreams.
The brain is creating new neural networks in alignment with a blueprint of recovery that means I can live with the pain and still be capable of knowing my wholeness. In the knowing I fill more space than I ever thought possible. I cultivate so many other aspects of myself now in service not only to my own healing but to that of others. I send all of you who suffer with chronic pain many blessings and much love today! I am with you in solidarity and full support. 💜
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Autoimmune Disease
Hi guys! Wanted to share with you my experience and how i am coping every day. Ever since i am a person who can do multi-tasking without feeling pressured. I always wanted to make everything in order and submit all reports ahead of the deadlines. I have worked hard, not because i wanted to but because i wanted to set as an example to my collegues and to show to others how passionate i am in the field i have chosen to serve. I am a preschool teacher, i enjoyed every single day working and simply being with my students. Severe asthma attacked, severe allergic rhinitis, frequent flu, and IBS doesn’t change anything to be as effective and efficient teacher i would want for my classes. But January 2018 when i started feeling a little tired. I have noticed a simple taking a bath, just sitting, a short travel would exhaust me so much. Waking up in pain and feeling exhausted. Palpitation that has been a bothersome for quite sometime. Went to cardiologist, then bubbles start appearing everytime i pee, flu went often, body pain, and alternating high and low grade fever has been on a regular basis (and i started getting used to it). Until i was asked to seek for Rheumatologist for opinion. Had series of lab test that i almost went backrupt (because it was too expensive). November last year i was diagnosed with an autoimmuned disease. I have to take plaquenil. My activities are now limited. I started feeling guilty, for i can no longer give my 100% dedication to my work, because i have to minimized movements (bec i have to save more energy to end the day with them), i have to leave work early bec i was too weak and needed to rest for tomorrow is another day. I couldn’t enjoyed my weekend, for i often been on bed bec my lower extremeties are in pain and usually having fever and if i’m lucky enough i have nausea for almost the whole day. I started feeling depress not bec there’s nothing i couldn’t handle BUT bec there are people do not understand what i have been going thru. They though that i am making excuses to free myself from the work that i was supposed to do with them. It breaks my heart feeling that way. People should be educated and should be more compassionate to people suffering from invisible disease. Today, i have learned to live one day at a time. And live my life as if it’s my last. My faith keeps me figthing. My family, my friends and my students gave me the reasons to live. And for someone who has been enduring all the pain and depression for having this challenge. I am one with you. You are all in my prayers. This too shall pass. God bless everyone! #invisibledisease
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So Damn Tired
My body is battered
And so damn tired.
My brain is scattered,
Jumbled and quagmired.
I can’t feel anything.
My heart is numb.
Still I’m stunned by every sting.
And pain makes me succumb—
To these visions of dread,
Voices howl in my head,
I shatter into a billion pieces.
I build colossal stone walls,
Brace for plummeting falls,
But the ache in my chest never ceases.
And the hurt never heals or decreases.
#MySymptoms#chroniclyme #chroniclillness #Migraines #ChronicPain #Fibromyalgia #invisibledisease
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