fatique

How much of your day do you spend thinking about the disorder you live with?

Somedays it's hard not to spend your whole day focused on the disorder. That's what I find anyway.

Today I had 5 #Seizures and the #fatique hit me really hard. So hard, I had to have my underwear cut off to use the toilet! And then almost fell of the toilet!

So today, I've spent alot of time thinking about #FunctionalNeurologicalDisorder
It's been hard not to.

But on good days, I try to focus my energy on something else. Like my family, friends, creative writing, drawing, raising awareness. Anything.

The disorder you live with doesn't own you. No matter how hard that is to believe at times. Your personality is who you are, spend your time being you.

I would love to hear your thoughts on this if you're comfortable enough to share.

#ChronicIllness
#ChronicPain

Morning Mighty Family

I slept most of yesterday and I mean slept. I'm on new meds and I think they are making me very tired. Yawn.
As soon as I wake up I want a nap.
So yesterday I gave in to the tiredness and slept all day. Guess what I'm still blooming tired.
Time to speak to my Doctor I think. 😂😁🤔

I'm awake now but give me an hour and all I want is to go back to sleep. I suppose this is a good way to pass lockdown but ......how long will it last...

So from being an insomniac to being asleep all the time is very strange indeed. A very strange situation indeed. They are helping my cluster headaches a bit.

Mmm what to do?
😴😴😴 I'll catch you when I'm awake next. Yawn . I need match sticks to keep my eyes open
And something to stir my brain to make it work. 🤯
🤗😘🧡❤Tj love n hugs
#Yawn #tired #fatique #sleeping #RareDisease #ClusterHeadaches #Bekind #checkonyourneighbours #Love #Family