cluster headaches

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    New here

    Hello, new to the group. Dr suggested I look for alternative ways of coping with my chronic pain as it seems the pain meds I'm on are either not working/making my other symptoms worse. Hopefully I can get some great advice here! #JointHypermobilitySyndrome #PosturalOrthostaticTachycardiaSyndrome #restlesslegs #ChronicMigraineSyndrome #ClusterHeadaches

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    To my mihgty freins, my famly neer an far 🌍🌊love ya'll πŸŒŸπŸŽ„β˜ƒοΈπŸŽ…

    Me no dis day is tricki fore al ob us, jus wantd to say fank u fore bein u ! de speshial uniqu u dat u r , u r brabe ,strong, carin, kind an bein a speshial part ob my jorney !!!πŸ’œβ€πŸ§‘πŸ’›πŸ’šπŸ’™πŸ–€πŸ€πŸ€ŽπŸ’œπŸ¦‹ #Anxiety #Agoraphobia #Abuse #CPTSD #ChronicDepression #ChronicHeadaches #ChronicPain #ChronicPain #Disasociativedisorder #Disability #DomesticAbuse #Depression #Emetophobia #EmotionalAbuse #FunctionalNeurologicalDisorder #FearOfAbandonment #fearofjudgement #FearOfVomiting #Gaslighting #ClusterHeadaches #NeurologicalDisorder #PsychologicalAbuse #physicalabuse #Seizures #SuicidalThoughts #SexualAssault

    Question
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    When did you first decide to talk to a doctor about migraine?

    If you’ve experienced migraine in any frequency (chronic or episodic), you’ve probably heard that the condition can be β€œdifficult to diagnose” because the pain is invisible.

    But undiagnosed migraine often leads to a person going without proper support, symptom relief, and treatment. When did you first decide to talk to your doctor about your migraine pain? How long had you been living with it How did you start the conversation and how did it go?

    I’ll post my story in the comments!

    #Migraine #mightywithmigraine #ChronicPain #ChronicIllness #Fibromyalgia #ClusterHeadaches

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    Bad day no way #CheckInWithMe #SmileAnyway

    Here's a lamb

    To make the bad day go away

    It always works for me

    Here's a pictures of a smiling Lamb πŸ‘β€πŸ˜˜πŸ€—
    Now have a fabulous day
    Love Tj
    #Family #Friends #MightyTogether #RareDisease #ChronicIllness #ChronicPain #Depression #Anxiety #SuicidalIdeation #Arthritis #TrigeminalNeuralgia #Migraine #ClusterHeadaches

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    It's the Weekend Yayyy #sleeping #Selfcare #CheckInWithMe

    Hello Mighty Family n Friends
    It's the Weekend at last yayyy

    Time for all the things you didn't do during the week.
    Like sleeping, some much needed self care on you, or as I call it.

    Me time, maybe a soak in the tub or reading a book, sitting in the sun out on the deck. Spending some time with the pups grooming them. It's all selfcare in my book, as it's good for me and Its relaxing For me.

    What's your selfcare, what is your ME TIME?!

    Do tell
    Whatever it is
    Give yourself some time in the weekend or week to do that much needed selfcare. To relax and recharge those batteries.

    Love n hugs Tj
    β€πŸ§‘πŸ˜˜πŸ€—πŸ˜ŽπŸ•πŸΎπŸ˜ΌπŸ›ŒπŸ“–β˜ŽοΈπŸ“±πŸ€³πŸŽ­
    #Bekindtoyourself #Love #Hope #Arthritis #RareDisease #TrigeminalNeuralgia #GlossopharyngealNeuralgia #ClusterHeadaches #MigraineWithAura #Bekind #Family #Friends #Anxiety #Depression #MentalHealth

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    Cats playing dress up #laughterisgoodmedicine #giggleswithafriend

    Good Morning Mighty Family πŸ–

    'I really wish my human would have children'

    I couldn't help but laugh at this and also think how adorable that puddy cat looks. Boy my cats would not let Me do that to them πŸ˜…πŸ˜…πŸ˜…πŸ˜…πŸ˜ΌπŸ˜ΌπŸ˜Ό
    They'd be fur flying and claws out.

    Hope it brings a smile to your face today what ever you are doing.
    πŸ–πŸ€—β€Love as always Tj from migraine bed 😎 πŸ›Œ

    #MigrainesWithAura #RareDiseases #Hope #PsoriaticArthritis #InflammatoryArthritis #Selfcare #Bekindtoyourself #ClusterHeadaches #CheckInWithMe #Positivity

    Question
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    What are some unexpected things that trigger your migraine?

    People often think of bright lights and strong scents as β€œclassic” migraine triggers. What are some that you’ve experienced that were surprising to you?

    #Migraine #Headache #SUNCTHeadache #ClusterHeadaches #ChronicPain #ChronicIllness

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    Home Alone but not alone #neighbours #CheckInWithMe

    Hello Mighty Family n Friends πŸ–

    This migraine and the UK heatwave we are having must be having a very strange effect on me.

    I fell asleep last night at about 9 pm and woke up around 11 am
    My 2 pups didn't even wake me up with their usual antics to go out for a wee πŸ’©
    But alas I awoke to day 6 of this dam migraine thing πŸ˜•
    But finally the heatwave has ended so that must have been why I finally slept at last.

    I came out into my kitchen and my neighbour Was washing my dishes and making me a cup of tea.
    She must have checked in on me 4 times today.
    She has picked up my parcels and tidied up too.

    The pic is of all the different uk helpline centres available.
    Please copy it and save it if you are in the uk.

    Remember we are never truly alone. Someone is always there for us.
    Love n hugs Tj
    πŸ€—β€πŸŒžπŸ€žπŸ§‘πŸ’ͺπŸ’šπŸΆπŸ’©πŸ˜˜πŸ˜

    #Love #ClusterHeadaches #PsoriaticArthritis #RareDisease #Anxiety #Bekindtoyourself #Selfcare # #Migraine #Kindness #Depression

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    Morning !!!! #CheerMeOn #Migraines #Giggles

    Hello πŸ–πŸ–πŸ–πŸ–

    I can't say Good Morning
    Cos I've still got the dam migraine. Day 5 now

    I'm ok just completely fed up with left side numbness pins n needles neck pain and of cause the one sided head pain πŸ˜₯
    I think I know what it is too.
    But until I get to the headache clinic I can't formally get diagnosed with it.

    With the Pandemic how long will that take. Both my local hospital won't take me on.
    Neurologist are working on coronavirus patients aren't they!!

    But hey what's new with that.
    I've been dealing with chronic illnesses for 20 years now. So it's nothing new . Just so so so dam annoying frustrating and making me angry..... 😠😡

    Its no ones fault, I'll just carry on as I always do. With a smile and a laugh . I'll cry when I need too, rant and get it out of my system.

    So thanks for listening My Mighty Family n Friends.
    You are all the very best.
    Love you all . Tj πŸ€—πŸ˜˜πŸ§‘β€πŸ’šπŸ’›πŸ˜πŸ–

    #Undiagnosed #frustrated #RareDisease #Arthritis #Migraine #ClusterHeadaches #Anxiety #MightyTogether #Bekindtoyourself #Selfcare #Love #Hope #rant #Vent #talkingtherapy #CheckInWithMe #NeverAlone #SphincterOfOddiDysfunction #PsoriaticArthritis #GastroesophagealRefluxDisease #HiatalHernia #Pain #Chronicpainwarrior