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Hi, I’m new!!

My name is Mandy and I’ve had fibromyalgia for 20 years. Some people disagree with me when I say that fibromyalgia is progressive but I seem to get worse every year, even the warmer months no longer make me feel better. I feel the same symptoms all year round. Does anyone feel the same?

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Feeling Isolated

Just feeling isolated. Fibromyalgia sucks. The fatigue, pain, brain fog, and everything about Fibromyalgia sucks. Some days during the week I just want to lay in bed, but bills keep me getting up to work. Thankfully, I work remotely- I don't know how I would make it most days if I had to commute everyday. And for the past week Fibro has been flaring with the heat wave and it sucks!!!!! #Fibromyalgia #fibrosucks

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Thoughts on Lyrica

My fibro has gotten worse over the last 6 months. I am not currently taking any meds for it. I was at my primary yesterday and she is suggesting Lyrica. I am a bit nervous. Cymbalta and Gabapentin did not work for me. #fibrosucks


New to here

This my first post, not really sure why I feel today is the day to post but here goes nothing. I have fibromyalgia which feels like the end of the world some days when the depression raises its head. I am in so much pain that I have to try and hide the effects from my husband and daughter, I had to give up the job as a social worker that I loved. Although I have very bad days I am still here, living each day to the best I can and keep smiling. This is what all of us can do when living with a hidden painful disability. #keepsmiling #fibrosucks



I wrote a long comment and when I went to post, poof it was gone. Oh well,wanted to say that all the post sound like me, of course with a different issues. I agree that not all people understand (even Drs) and think I'm faking. BUT like everyone here the constant pain is real and so is the depression. Thank you all for your post',s it's helped knowing I'm not alone.... 🙂
#notalone , #fibrosucks .

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#Fibromyalgia can vary from person to person. There is a long list of symptoms that can be contributed to either Fibro, or an underlying condition that didn't occur until the Fibro was present. What is your Fibro experience? For more, visit the link in my profile #ChronicIllness #chronicpainawareness #chronicfatigueawareness #ChronicPain #InvisibleDisability #invisibleillnesswarrior #InvisibleIllness #fibrowarriors #fibromyalgiaawareness #fibrosucks #Fibro #spooniewarrior #Spoonies #writtenbydida

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Living with #ChronicIllness

I am one of those people that has a really hard time asking people for help. The more my conditions have progressed, the more I've had to "get over it," and ask for help. It still feels like chewing on glass every time I have to. For multiple reasons, but mostly because I can always tell when someone doesn't really WANT to help. That leads to me feeling badly about asking in the first place, making me want to just do whatever I can by myself, and go without whatever I can't do by myself. I know that's not really at all healthy, but this is one of those things I still struggle with daily, no matter how hard I try to feel differently about it. But that's okay. I am always a work in progress. For more from me, visit the link in my profile #ChronicIllness #MentalHealth #InvisibleDisability #invisibleillnesswarrior #InvisibleIllnesses #spooniewarriors #Spoonie #fibrowarriors #fibrosucks #Fibromyalgia #MyalgicEncephalomyelitis #covıd19 #COVID19 #AloneTogether #stayhome

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#SpoonieThoughts #6

Some more Spoonie Thoughts for you💜 Eventually they'll be so many that I'll have to give them their own section on the website😂 I have another "Negotiations with My Body" in the works, too. The comical battles with my body always make for a good read. For more, visit Written by Dida (link in profile) #ChronicIllness #fibrowarriors #fibrosucks #Fibromyalgia #invisibleillnesswarrior #InvisibleIllnesses #fibromyalgiaawareness #ChronicPain #SpoonieThoughts #Spoonie #writtenbydida #MentalHealth