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It’s #Fibromyalgia awareness month!

It’s been a little over 6 years since the first symptoms started. It’s been a hell of journey trying to find what works and what doesn’t. I did trial and error with medications for years until we ran out of options. I never stopped looking up different things that could help me. Today I use a combination of herbal supplements, cannabis oil & gummies. I’m grateful my drs have been helpful and understanding. Although I still have bad days(mainly due to weather changes & my periods) the bad days are not as bad as they used to be. For that I am grateful! We are still working on the correct dosage for the oil & gummies but since starting it last November I’ve seen a major improvement. A good diet helps as well. I’ve switched to mainly plant based diet. I won’t say vegan because occasionally I have chicken. After years of doing various forms of therapy to help with my mental health issues i switched to using meditation and breath work in the mornings to help manage those pesky racing thoughts. Which isn’t easy and has taken many months of practice(started working with a teacher in December 2021) I still have days I struggle but I feel I’m better equipped to deal with it. #fibromyalgiaawareness #IBS #Migraines #Anxiety #Depression #SuicideAwareness #PTSD #ChronicIllness #InvisibleIllness

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Chronic Pain Is Not "Just Pain"

It's frustration, sadness, anxiety, depression, worry, emptiness, and anger.

It's wondering if it will really be forever. It's asking yourself how you'll be able to keep paying bills, medication, and food.

It's missing the past, barely floating in the present, and dreading the future.

It's feeling different every moment of your life. It's feeling dependent on so many things - dependent on medicines, people, circumstances, and sometimes on sheer luck.

It's withstanding mockery, blame, and criticism.

Surviving chronic pain means getting up in the morning and facing another day of uncertainty and doing it with a smile or at least with as few tears as possible.

And while we continue to take the fight towards invisible illnesses like CRPS, the real reason we get up every day is to be there for our family, our friends, and, yes, perhaps even ourselves. Although living with these challenges is hard, we all do the best we can.

For us, survival is all about embracing the unknown, accepting the unthinkable, and never... never... never... giving up on ourselves. It's only then that we feel like victors, not victims of this devastating illness.

I know it's hard for you to understand truly, and sadly you may never really grasp its magnitude unless you get it yourself. Although for your sake, I hope you never do.

So why am I sharing this now after seven long years in silence? It's not for your sympathy or pity, but rather to give a voice to the voiceless. To remind the millions of us who have and continue to struggle in silence that you are not alone.

Keep putting one foot in front of the other, for everyone matters to someone, and you are loved whether you know it or not. While, yes, we can't predict the trials and triumphs we'll face in life, I can tell you it's unquestionably a better place with you in it.

Know, as I have, that all you need to overcome all you encounter already lives within you, everything! So when life gives you a reason not to smile, smile anyway.

Your spiritual gangster,

~ Charlie Cryder

#ChronicIllness #Fibromyalgia #ChronicPain #ChronicFatigue #Dysautonomia #potssyndrome #MECFS #CRPS #Healing #chronicillnessawareness #fibromyalgiaawareness #MentalHealthAwareness #InvisibleIllness #InvisibleDisability #ChronicIllness #Fibromyalgia #ComplexRegionalPainSyndrome

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#Fibromyalgia #fibromyalgiaawareness #FibromyalgiaSucks #FibromyalgiaAwarenessDay

Yup I Don't look sick u don't look stupid logo.
Searched it up last night found it on the Canadian Amazon site
Reposting it cuz last time had so many questions on where to purchase it !

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Don't Hate; Educate


My S.O. is a great guy. He's the rock I hold onto when everything in my life feels as though it will wash me away. We got together before #fibro, so he fell in love with me at my best & has stayed with me through the rest.

He's talented, good looking, a great cook, honest, hard working & he loves me beyond the shadow of a doubt. He's financially stable, works full time with great benefits. But his job is very physically draining, and that fact makes him need rest because his body is sore (we, as #fibrowarriors understand the need to rest better than most). He's also messy and lets his "chores" pile up (he's only got two: the floors and recycling/trash).

I don't generally nag him; #Fibromyalgia , my #Depression , #BPD & general experiences in life have taught me much. But, though for some time I asked nicely & lovingly; nothing changed. My next approach, (being a mother of 2 boys) was automatically reverting to the "mom" tone of voice & giving instructions (It's incredibly difficult not to revert to that when the behavior of a grown man becomes that of a teenager). This builds frustration in my S.O., &, inturn; that frustration comes out in (what I like to call) "asshole tone of voice". Literally, we are left with a communication breakdown; because when asked why he thinks I started talking to him that way, he was literally clueless. (Ack! Right? )

So we discussed that & he brought up another frustration: "when you say you're going to do something, if you don't think you'll be up to finishing the task, don't say you're going to do it." He CLEARLY needs to be educated further on my chronic illnesses. Who among us can make those sorts of guarantees?! & then he followed that up with: "you should have a handle on your condition by now to know what you can & can't get done ahead of time." *me rubbing my forehead in irritation*
He just truly has no idea.

So instead of becoming outraged by this, I once again (but silently this time) took the mom approach & decided to find a way to educate him. The true literal definition of ignorance is basically: "not having had learned that yet". So he needs to be taught (& yes, his general disposition lends itself to learning).

Here's where y'all come in:

Are there books or manuscripts out there that help the mates of "us" understand? Perhaps a video?

#Fibromyalgia #FibroFog #BorderlinePersonalityDisorder #Depression #MentalHealthAwareness #MentalHealthAwareness #fibromyalgiaawareness #EDUCATE

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Recognizing #ChronicIllness

I notice little things that tip me off- a look in the eyes, maybe shadows others wouldn't notice, that little adjustment they make for pain- it's different for everyone, but I started consciously noticing that I do this on a regular basis with celebrities on tv. Even through all that makeup, the signs are there for someone else that goes through it. #ChronicIllness #chronicpainawareness #chronicillnesswarrior #fibrowarriors #Fibromyalgia #fibromyalgiaawareness #spooniewarrior #spoonies #invisibleillnesswarrior #invisibledisability #invisibleillness #mecfs #MyalgicEncephalomyelitis #chronicfatigueawareness #anxiety #MentalHealth

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Being #chronicallyill in a "healthy" world

I am so tired of fighting with healthy people who call me fearful for still not going back to normal. They were all about it when government officials were telling them to worry, but as soon as the politicians decided we needed to reopen, it was magically all different. Even though nothing AT ALL has changed, we're supposed to go back to normal & because I have a brain and can see that science says it's not safe for me- I'm weak, lazy, stupid, and 800 other negative things. None of which I actually am. If those healthy people had to spend even an hour in my body, they would feel differently. We gotta have serious change though cause I'm about sick of having a President who seriously does not give a damn about the chronically ill, minorities, or anything else he should. Vote him out so overwhelmingly he can't buy his way out. Visit the link in my profile for more #ChronicIllness #chronicillnesswarrior #spooniewarrior #Spoonie #InvisibleDisability #invisibleillnesswarrior #Fibromyalgia #fibrowarriors #fibromyalgiaawareness #mentalhealth #cfsme

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Pause and Breathe

Taking time to listen, reflect, breathe, relax can have such a positive vibe for me. Hope everyone else can find their pause and breathe.