chronicpainawareness

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    A Journal that keeps being empty #chronicpainawareness

    I have always been told to keep a journal to let whatever damage my illness has made and I do not wish to spill on others...and Ive tried. I remember trying hard to keep my little word document every 2 months to the point I felt it was overwhelming so I erased it, from every file on my laptop..all traces of it.

    That could be seen as mental decluttering, well I didn’t know...I just kept writing , it helped..and I Intend to do the same, I intend to write to cheer someone up, to relate to someone who may not have the space or the tools...just now... to express what never ending illness plus pain and the rest of attachments represent.

    Well, Im here, Im hurting, I cant think of a good idea to be awake because this amount of pain requires a long nap. Well, of course, work...no comments.

    I translate and I teach, and Im kind of lucky to work on fields that allow me to take small, tiny break...except from tutoring..that is relentless and Im seriously tempted to stop, I feel so bad that it is more and more difficult to pretend Im one of those happy, flawless teachers all parents want( All the strength used to put the mask, needs a serious, infinite refill) Im really sorry, for my beautiful students...Im mainly sorry for myself, I love teaching, it is my calling. But I need to set priorities, this ongoing nerve pain is going to literally and metaphorically kill me. HELP!

    So, while still trying to organize and journal as properly as those Pinterest journals look, I will try to show and describe and redefine, how my journey looks like, for me, for my non disposable writing habit and mainly for any reader that feels related to this bizarre content. Thank you for being here.

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    What CAN you do today?

    Stuck in a 5 day flare. Thoracic Outlet Syndrome affects my entire left side and makes it hard to move. Yesterday, I could barely walk through the mall without stopping and leaning against a wall. It causes such unbearable pain, stiffness and fatigue.

    They say get out of the house when you don’t feel well, it will make you feel better. Sometimes, it's better to rest and stay home. I’m still only able to walk small distances today.

    Days like these are mental days. Where my hands and body don’t work well enough to do much at all.

    Too much time spent in my head day. Watching what others can do.

    Fighting back tears day, and trying to be strong.

    Dreaming day. Dreaming of the day I can be more than this.

    Angry day. Angry that I can’t do what I’m dreaming of.

    These days I need people to distract me, but I’m so in my head it’s hard to pretend I’m ok.

    Yesterday, I was able to look up and take this photo, even though I was stuck in the chair because I could no longer walk through the mall.

    Today, I was able to make this post.

    What CAN you do today?
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    #teetheredcord #ThoracicOutletSyndrome #ChronicIllnessEDS #EhlersDanlosSyndromes #MentalHealth #ChronicPain #ChronicFatigue #RareDisease #Fibromyalgia #Chronicpainsucks #chronicpainlife #chronicpainawareness #chronicpainartist #Hope #Dream #fibrowarrior #ehlersdanlostype3 #EhlersDanlosSyndrome

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    I’m back!! 👋🏻

    Hi everyone, sorry I’ve not posted anything for a few weeks - I haven’t been very well lately. Thankfully it’s not Covid related, I have been battling severe Tonsillitis and it’s been really draining all my energy. It’s hard enough living with chronic illness without having to battle extra health issues on top of it all. The main thing is that I am back on The Mighty, I’ve missed you all! 💝🥰
    #CheckInWithMe #MightyMinute #52SmallThings #CheerMeOn #MightyTogether #MentalHealth #Anxiety #Depression #Stress #Asthma #Disability #FunctionalNeurologicalDisorder #FND #FNDAwareness #fndwarrior #JointHypermobilitySyndrome #JHSAwareness #JHSWarrior #ChronicIllness #chronicillnessawareness #chronicillnesswarrior #ChronicPain #chronicpainawareness #Chronicpainwarrior #SpoonTheory #spooniewarrior

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    My Personal Reminder!

    A while back, I recognised that I was starting to slip back into the same dark place that I had needed the help of a Psychologist to get out of in the past. The thought that I could end up “back a square one” (as the saying goes) scared me because I didn’t want to ever end up in that dark place again, not if I could help it. I started to realise that the feelings that I was experiencing were similar to the feelings of grief I had when my mum passed away. That’s when I realised that I was grieving, but this time it wasn’t because of death - I was grieving for my “old” self, the one who could do all those things that I still wanted to do but no longer could. That’s when I decided I needed to do something, so I took a photo of my “old” self, laughing, doing something fun, being happy, and I added “STAY STRONG I’LL BE BACK!!” Then I made this updated photo the lock-screen on my phone so that every time I picked my phone up I saw that reminder, from myself, to myself, that things won’t always be difficult and that I could be happy again. Some days I kept picking up my phone just to see that reminder and slowly it started to help me - I no longer feel myself slipping into that dark place again, if anything, I actually feel like I am slowly climbing back out of the darkest. I might not have made it to where I want to be yet but I’m not where I was before and that’s good enough for me.
    #CheckInWithMe #MightyMinute #52SmallThings #CheerMeOn #MightyTogether #MentalHealth #Anxiety #Depression #Stress #Disability #FunctionalNeurologicalDisorder #FND #FNDAwareness #fndwarrior #JointHypermobilitySyndrome #JHS #JHSAwareness #JHSWarrior #ChronicIllness #chronicillnessawareness #chronicillnesswarrior #ChronicPain #chronicpainawareness #Chronicpainwarrior #creativity #EnjoyTheLittleThings

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    I think I’m in shock!!

    I have just found out that my story - my first ever submission - to The Mighty has just been published!! I am beyond stunned and I don’t think that it’s actually set in yet, I can’t believe it! 😳🥳 I really hope that my story helps other people who might be facing the same struggles, and feeling the way that I used to. 🤞🏻🙏🏻💝 themighty.com/2021/03/functional-neurological-disorder-diagn...
    #FunctionalNeurologicalDisorder #FND #FNDAwareness #fndwarrior #ChronicIllness #chronicillnesswarrior #ChronicPain #chronicpainawareness #chronicillnessawareness #Disability #JointHypermobilitySyndrome #SpoonTheory #Spoonies #MightyTogether #fndhope #MightyMinute #CheerMeOn #CheckInWithMe #52SmallThings #MentalHealth #Depression #Anxiety

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    It's hard.

    I've been getting a hard time lately for not being able to make an income, and it's really wearing on me. Things got worse when my father passed away 2 1/2 months ago- in pretty much every way, but the financial strain seems to be what requires all my attention. Instead of being able to grieve, I have to struggle to keep utilities on. It's never- ending.#ChronicIllness #chronicpainawareness #chronicillnesswarrior #InvisibleIllness #invisibleillnesswarrior #mecfsawareness #Fibromyalgia #fibromyalgiawarrior #MyalgicEncephalomyelitis #spooniewarrior #spoonie

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    For Your Door

    Figured I'd make this for people to print out for their doors since we have a ton of people talking about being irresponsible and going door-to-door for trick-or-treat. Feel free to cut the logo off the bottom when you print. I made it very small and faint so it wouldn't be hard to remove or cover upon printing if you don't want it to show. I just have it there for digital sharing to make sure people know where it came from. For more, follow me here or on other social media platforms under Written by Dida or visit the link in my profile #ChronicIllness #chronicpainawareness #chronicillnesswarrior #fibromyalgiawarrior #Fibromyalgia #mecfswarrior #spooniewarrior #Spoonie #InvisibleIllness

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    Living with #ChronicIllness

    I would give just about anything (short of my children & soul,) to be able to function properly. I was never a 'stay-at-home' type- until I got sick. At one point, I worked two more-than-part-time jobs and went to school. I planned on a successful career. I never planned on this, and I fought tooth and nail to prevent having to stay home, but I lost, and now have no choice but to do the best I can to survive while people look at me as a failure. The messed up part about that is- it could have so easily been them. They just got luckier than I did. I didn't do anything to bring this on myself, but I'm treated like I did. There are many of us with chronic illnesses in this situation. People just have a hard time understanding things they can't experience. For more, follow me here or on other social media under Written by Dida or visit the link in my profile #chronicpainawareness #chronicillnesswarrior #Spoonie #spooniewarrior #Fibromyalgia #fibrowarrior #MyalgicEncephalomyelitis #InvisibleIllness #MentalHealth

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    #ChronicIllness & #FoodProblems

    Food and I have a love/hate relationship. For several years now, I've been very limited on what I can eat, and it gets progressively worse. I am now to where I end up eating the exact same thing for months because it's the only thing that doesn't make me sick. It's exhausting. For more, follow me here or on other social media under writtenbydida or visit the link in my profile #ChronicIllness #stomachissues #InvisibleIllness #chronicpainawareness #chronicillnesswarrior #spooniewarrior #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #MyalgicEncephalomyelitis #cfsme #nausea

    4 comments