spooniewarrior

My life will continue to unfold.

I’ll never fully understand the impact I’ve had on others.
I’ll never fully know who I’d be without my disability.
I’ll never fully know who I will become, or the impact I’ll continue to have.

Will I write a bestseller? Maybe not.
But will I give my child the greatest chance at a full life—without generational trauma, without confusing identity with productivity, without tying worth to patriarchy, capitalism, ableism, religion, anti-fat culture, fascism, heteronormativity, gender bias, the institution of marriage?

Yes. I have. I do. And I will continue to.

I am the best version of myself because of these symptoms. I’m making it so.

There’s no rhyme or reason in this universe, but hear me now—
damn the oppressive institutions that have caused relentless suffering.
Damn the chronic illnesses with not enough research because they’re seen as women’s diseases.

I’m here. And I’m not going anywhere.

Depression.
Nausea.
Pain.
Fatigue.
Paralysis.

None of it has stopped me. And none of it ever will.

I will create a life from underneath my blanket if I have to.

I’m a spoonie warrior.

Hi everyone, sorry I’ve not posted anything for a few weeks - I haven’t been very well lately. Thankfully it’s not Covid related, I have been battling severe Tonsillitis and it’s been really draining all my energy. It’s hard enough living with chronic illness without having to battle extra health issues on top of it all. The main thing is that I am back on The Mighty, I’ve missed you all! 💝🥰
#CheckInWithMe #MightyMinute #52SmallThings #CheerMeOn #MightyTogether #MentalHealth #Anxiety #Depression #Stress #Asthma #Disability #FunctionalNeurologicalDisorder #FND #FNDAwareness #fndwarrior #JointHypermobilitySyndrome #JHSAwareness #JHSWarrior #ChronicIllness #chronicillnessawareness #chronicillnesswarrior #ChronicPain #chronicpainawareness #Chronicpainwarrior #SpoonTheory #spooniewarrior

I'm human, so while MOST of the time, I am well-adjusted to the trauma I have experienced & being chronically ill, but I still have my days where I feel so guilty for being sick that it almost breaks me. I'm not sure those will ever fully go away just because of the type of person I am. I was career-oriented, driven, efficient, a perfectionist- and I still am, I've just had to calm those parts of me down & adapt them to my situation (which is part of how my site, these posts, and all these graphics came about, of course.) It's a very hard thing to accept, but that doesn't mean it's wrong to have to adapt because our bodies won't do exactly what we want them to do. For more, follow me, or visit the link in my profile #chronicillnesswarrior #Fibromyalgia #fibrowarrior #MyalgicEncephalomyelitis #mecfswarrior #MultipleSclerosis #spooniewarrior #Spoonie #MentalHealth

I've been in a pain flare since Thanksgiving, on top of trying to figure out money constantly, still grieving my dad passing, really not at all liking this holiday season, & of course, we're still in a pandemic and our government is not helping us at all...yay. But I'm still here, even if I am losing track of days😂 For more from me follow me here or on Instagram or Facebook or visit the link in my profile #ChronicIllness #ChronicPain #chronicillnesswarrior #spooniewarrior #Spoonie #InvisibleIllness #fibromyalgiawarrior #Fibromyalgia #mecfsawareness #mecfswarrior #MyalgicEncephalomyelitis #fibrowarrior

It can feel hopeless when you're in the depths of depression or debilitated by anxiety, or other mental health issues. It's not. It IS possible to manage them with time, effort, and a combination of methods. What helps is unique to each person. It will still be there, and still affect you, but there are times of joy and happiness, too. Sometimes, it's the smallest thing- a pretty flower that catches your attention, or a small kindness from a stranger or friend, etc. Other times it may be months of "normalcy" where the depression isn't dragging you down, and even joyous occasions that you are able to attend, because, that day, you were able to keep your mental health managed. You have to take those one day, or even couple of hour, victories and revel in them so you can use them to get through the hard times. Don't lose hope. For more, follow me here or on Facebook or Insta under Written by Dida, or visit the link in my profile #Depression #Anxiety #ChronicIllness #Spoonie #spooniewarrior #chronicillnesswarrior

Figured I'd make this for people to print out for their doors since we have a ton of people talking about being irresponsible and going door-to-door for trick-or-treat. Feel free to cut the logo off the bottom when you print. I made it very small and faint so it wouldn't be hard to remove or cover upon printing if you don't want it to show. I just have it there for digital sharing to make sure people know where it came from. For more, follow me here or on other social media platforms under Written by Dida or visit the link in my profile #ChronicIllness #chronicpainawareness #chronicillnesswarrior #fibromyalgiawarrior #Fibromyalgia #mecfswarrior #spooniewarrior #Spoonie #InvisibleIllness

I would give just about anything (short of my children & soul,) to be able to function properly. I was never a 'stay-at-home' type- until I got sick. At one point, I worked two more-than-part-time jobs and went to school. I planned on a successful career. I never planned on this, and I fought tooth and nail to prevent having to stay home, but I lost, and now have no choice but to do the best I can to survive while people look at me as a failure. The messed up part about that is- it could have so easily been them. They just got luckier than I did. I didn't do anything to bring this on myself, but I'm treated like I did. There are many of us with chronic illnesses in this situation. People just have a hard time understanding things they can't experience. For more, follow me here or on other social media under Written by Dida or visit the link in my profile #chronicpainawareness #chronicillnesswarrior #Spoonie #spooniewarrior #Fibromyalgia #fibrowarrior #MyalgicEncephalomyelitis #InvisibleIllness #MentalHealth

It makes me crave all kinds of stuff it won't let me eat. If I try to, I get two bites in and it all goes bad. It's no fun. For more, follow me here or on other social media under Written by Dida or visit the link in my profile #FoodProblems #stomachissues #digestiveissues #IrritableBowelSyndromeIBS #ChronicIllness #InvisibleIllness #spooniewarrior #Fibromyalgia #MyalgicEncephalomyelitis #fibrowarrior

Food and I have a love/hate relationship. For several years now, I've been very limited on what I can eat, and it gets progressively worse. I am now to where I end up eating the exact same thing for months because it's the only thing that doesn't make me sick. It's exhausting. For more, follow me here or on other social media under writtenbydida or visit the link in my profile #ChronicIllness #stomachissues #InvisibleIllness #chronicpainawareness #chronicillnesswarrior #spooniewarrior #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #MyalgicEncephalomyelitis #cfsme #nausea

I'm all about transparency and being honest about my life because I feel too many people pretend like they have a perfect life and it makes others feel alone in their problems. I posted this one on my other platforms today because I'm feeling all of these right now. I know I just have to get through, but able-bodied people just don't get it. They don't understand that it's nearly impossible to have a savings when you started getting sick at 23. I started working at 15, and worked in my chosen career until about 30, then medical issues stopped me from doing that, and I worked in whatever jobs I could handle until 36. Then my body wouldn't let me anymore. I had 10 surgeries from age 27 to age 35. How was I supposed to save any money? How am I supposed to survive without help? Yet I, and many others are expected to figure this out every day. It gets frustrating, and today is just one of those days. Between the pandemic and my father being in ICU most of the pandemic, then passing last month- my situation just sucks right now, and it's all seen as my own fault by many people. Even though I wasn't the one who exposed my father to Agent Orange over and over and over, resulting in his offspring having medical problems. They still see it as my fault, somehow. Smh and I could explain until I was blue in the face and they'll never get it. In their minds, there is always something I should have done that I didn't. While I was trying to fight my body to stay alive. Yeah. Follow me here or on other social media under Written by Dida or visit the link in my profile for more from me #ChronicPain #fibromyalgiawarrior #Fibromyalgia #fibrowarriors #MyalgicEncephalomyelitis #cfsme #spooniewarrior #Spoonie