GastroparesisFlare

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    So. Much. Pain.

    I have only been diagnosed since March, and in that time I’ve had a few weeks that almost seemed like normal. But nearly the entire rest of the time Ive been in pain, with a day or two reprieve here and there. I’m so fucking tired of being in so much pain that walking is hard, sometimes just breathing is hard because it hurts to move that much.
    It’s been especially bad for the last 3 weeks since my wife and I got in a fight and my guts completely froze for a full 7 days. Completely. Frozen. That was the worst pain yet, and the unfreezing process is a close second.
    Has anyone else responded to stress like this? I have severe complex PTSD, so it makes sense that stress would cause this, but damn. This is too much.
    Has anyone else experienced this much pain this frequently? What do you do? What do I do?

    During the 7 days of hell my Dr. switched me from trulance to Linzess, and I’m wondering if that might have something to do with the continued high level of pain.

    Thoughts?

    #GastroparesisFlare

    1 comment
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    What do you do to distract yourself while in the hospital?

    Here I am, once again, in the hospital. Repeat cultures off antibiotics came back positive, ugh... Frustrating after doing a month of IV antibiotics that infection didn't fully clear... Of course GI bleed is acting up and had ti get yet another transfusion... Due to covid only allowed one visitor and only certain hours, so lot of down time alone... Hard not ti focus on the pain so trying to find distractions. What do you all do while in the hospital or when alone? Suggestions?Looking for ideas! TIA #Hospital #Sepsis #Infection #Gastroparesis #ChronicPain #ChronicIllness #Dysautonomia #OrthostaticHypotension #Lowbloodpressure #nausea #Vomiting #transfusion #GastroparesisFlare

    16 comments
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    I haven’t given up yet

    Just had my 40th birthday. Feeling really overwhelmed and miserable not due to my age, but it’s another year in the books that I’ve been sick. I’m struggling with #Gastroparesis flare ups, struggling with pain and misery so much so that I have suicidal thoughts at times. I’ve not been sleeping well which certainly makes things worse. This is really just my first post. Middle of the night and I am in pain. Just reaching out. #suidicalthoughts #GastroparesisFlare #ChronicPain

    3 comments
    Post

    Brain fog...

    Having coffee this a.m even though it’s going to make me sick. I just can’t deal with the brain fog at work anymore. I need something else. #GastroparesisFlare #newlydiagnosed

    2 comments
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    Sad Panda #lonely #ChronicIllness #Depression #Gastroparesis

    Was in the ER for 4 hours last night not counting waiting room time. They for once were very through. My pain over my stomach was too much, and I’ve had nausea, vomiting, and diarrhea for 3 days. Today I’ll try puréed foods.
    What’s your favorite baby food either that you make yourself or store bought? #GastroparesisFlare #gastroparesisdiet #GastroparesisFlare

    13 comments
    Post

    How do your #Gastroparesis flares make you feel??

    Hi fellow nighties! I was recently diagnosed, but have been battling with undiagnosed for yearssss. I have Familial Adenomatous Polyposis, and an ileostomy. My flares consist of chronic 24/7 nausea, vomiting to the point of dry heaving, painful gas, it’s belching counterpart, and acid reflux has returned this last (current) flare after a much needed hiatus! This usually lasts at least a day or a weekish. I’m just looking to see how this disease affects us all. Thank you for taking your time to read, and (hopefully) respond.

    #Gastroparesis #GastroparesisFlare #ChronicNausea #NauseaAndVomiting #ChronicallyLivingMama

    1 comment