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How do you all deal with persistent and chronic nausea? I have scopolomine, Zofran, crackers, essential oils, ginger, and mints. Nothing is cutting it. Any tips? #ChronicNausea #nausea


Just saying hello

Just wanted to introduce myself! I’m Jody, a fellow #Potsie I am 56 yo, however I feel so much older as I have a total of 15 dx chronic diseases. Unfortunately, a little more than 2 years ago, I was fainting just a little too much (lol… 🤣), as well as having "gray outs", and my wonderful doctor told me that I could no longer get behind the wheel of a car!! It’s really nice to have to depend on your 85 yo mom to drive you around (who we are not sure if she should/should not be driving distances & freeways) to doctor’s appointments, etc.
#livinglifeinafishbowl #PosturalOrthostaticTachycardiaSyndrome #saltlick #Dysautonomia #SmallFiberNeuropathy #MastCellActivationDisorder #Gastroparesis #EhlersDanlosSyndrome #Subluxations #dislocations #Fibromyalgia #ChronicMigraines #ChronicNausea #ChronicDiarrhea #chronicconstipation #MyalgicEncephalomyelitisChronicFatigueSyndrome #Osteoarthritis #RheumatoidArthritis #Facetarthritis #ChronicPain #Depression #Lonliness #bored #icantpeople

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Weed laws in ID 🙄

I do not understand how it is legal to do methadone in my state and not legal to smoke weed.
I know my insurance wouldn’t cover it in a state where it’s legal but it’s still frustrating. 13 years of chronic pain and a brain injury… pain, nausea and anxiety all responds well to the one thing I can’t legally do ….
Just frustrated and and little annoyed tonight….
Tired of felling sick………... #Neuropathy #ComplexRegionalPainSyndrome #ChronicNausea #BrainInjury #weed


Reassurance for an Expat?

Hello, All. Although my partner and I don't yet live in the UK, we intend to move there by 2022 or 2023 at the latest. I've wanted to do this since I was a teenager, but only recently has it potentially become possible. As we start the process, I have a lot of concerns as a Mighty--finding new doctors, a new psychotherapist, a new chemist who doesn't freak out about the meds I take; whether I'll even be able to take the same meds there; whether or not my diagnoses will be believed, or if I'll have to go through all the tests again; whether I'll even be allowed to come because of all my health conditions, even though I'll actually be coming along with my partner, who has much-needed medical skills. A lot of things swirling through my mind, causing worry and chaos. So I thought I'd ask you all for any wisdom or comfort you feel able to offer. Thank you. 🙏🏻 #CPTSD #Fibromyalgia #POTS #Hypothyroidism #DiabetesType2 #PolycysticOvarySyndrome #ChronicPain #ChronicNausea


Thank Goodness for Super - Soft Blankies; an Invitation to My Pity Party

Welcome to my pity party;
Super-soft blankies to the left, crying fits to the right, & the overall theme is:

Sure, the seasons cange & I "should" get a "happy light". DON'T PUT YOUR "SHOULD" ON ME!!!
(thanks for that line Lola Pickett)

Today, I am focusing on #Depression because my #Fibromyaliga hates changes of seasons & takes it's painful hatred out on me (for frame of reference: a couple days ago it was 60 degrees F & last night it started snowing. I think we have 4 or 5 inches right now). The days have been full of "to do" lists and good intentions; only to be crushed by the reality of #ChronicFatigue , #ChronicPain , #CPTSD , #FibroFog , #ChronicNausea , #chronicunsteadiness , #ChronicIllness , #Highly Sensitive Person or HSP #emotionalempath , #BPD , & all the usual suspects... The days have been crushed by the reality that my life is no longer my own to do with as I please. Sound familiar? Re-read the first paragraph. 😫

I am working on bilateral thinking; instead of saying "this OR that", I am trying to think in terms of "this AND that".
Instead of "I can have depression OR I can support others in a positive way.", I have intentionally changed it to:
"I have depression AND I can support others in a positive way."

I have chronic fatigue AND I can find the energy to do my laundry.

Everything hurts and I'm dying AND I can gather enough spoons to shower today.

I'm trying, right?

AND, at the end of the day, all we can do is to keep trying to do our best, right?

Baby steps.

I'm going to go find my meds & my super- soft blankie... 🥱




"Someone who has the same thing you have is better at their job." (Not to me specifically, but on a live national conference call this morning.) & then he implied that it was used as "an excuse".

Appalled, angry and in tears feeling the loss of my health prior to Fibromyalgia, I'm sharing this rant:

Feeling frustrated that I can't be who I was before #Fibromyalgia .
I can't think clearly most of the time because of the #FibroFog .
I can't speak as eloquently because my nervous system is screaming "PAIN PAIN PAIN" & my brain is so busy trying to process that, that I get mush mouth, or forget what I'm saying WHILE I'm saying it. Most if the time, I don't want to talk at all. To anyone. No matter who they are or how much I love them.
I can't focus on one activity for more than half an hour before getting a headache.
I wouldn't dare try to climb mountains like I used to for fear of the severe flare I would be in for.
Time doesn't make sense any more; probably because no matter what day of the week it is, I'm in pain. No matter what time of the day, I'm fatigued. No matter what the holiday, my biggest concern is getting it over and done with so I can get back home and be more comfortable.
My career used to be a priority. And I could not have more feelings of apathy toward it now.
I have #Anxiety now.
I have #CarpalTunnelSyndrome now.
I have pretty pronounced #Depression now.
I have #BorderlinePersonalityDisorder .
I have #CPTSD .
I am a #Highly Sensitive Person or HSP now.
I am an #emotionalempath .
I suffer from #ChronicFatigue , #MentalHealth issues, #ChronicPain , #chronic dizziness, #ChronicNausea #chronicunsteadiness , falls, bruising I can't explain, memory issues, dry mouth, weight gain, swelling in the legs and feet, sleep disturbances, insomnia... you name it.
Still pissed that I can't be who I was before this. Still wish I could turn back the clock. Still angry. Still venting.

Still reading? Why?


I went to a #Job #interview on Friday, and since then I’ve had a horrible sinking feeling about succeeding. Should I turn down the opportunity?

I have been suffering with #ChronicFatigue , #ChronicPain , #PTSD , #ChronicNausea , and #ChronicMigraines for years now, with no clear cause, and it’s suspected that I probably am on the #Autism spectrum but mask “well” (bleh). This is just to name a few that are more important. Nothing has prevented me from working and I find working generally enjoyable. Previously, I was working for a 4-star hotel, and it was really starting to wear on my body and it made it more apparent to me that my fatigue and pain were just getting worse. Due to #COVID19 I was laid off for “restructuring”, and I’m now #Jobhunting . As a result, I had a second interview for a Patient Care Coordinator position on Friday, which seemed like a great fit for my skill set. It involves putting together financial plans, explaining the cost and the benefits of treatment with patients, and going over insurance. But after going in person, I learned that they actively want me to be getting up and down and going into patient rooms regularly as well as they really are aiming for that whole “type A bubbly personality thing” and I left the interview so exhausted I could not believe it. I usually do really well post interviews and this has not happened before. I ended up having a crash, #nospoons nap for several hours once I got home. And this nagging bad feeling just hasn’t gone away. I think I could absolutely do the tasks of the job, but I don’t know if I have the energy to keep up with that kind of bubbliness. I’m working with an employment agency to take most of the labor out of finding a job so that I can be more particular about the work I’m going into to make sure it’s something compatible with my disabilities and being able to bring my #ServiceDog back to work with me. (Which he would not be able to do in a healthcare setting where I’m entering patient rooms.) I had several hospitalizations while trying to work a job that would not allow my service dog because I “look” able-bodied (even though I use a #Wheelchair probably 30% of the time).

Should I turn down the job if I’m offered it? I’m really conflicted cause this is a feeling I’ve not had before and I just need advice from people who aren’t simply pushing the “you just feel like you couldn’t do it” and are neglecting that I AM #Disabled .


How do your #Gastroparesis flares make you feel??

Hi fellow nighties! I was recently diagnosed, but have been battling with undiagnosed for yearssss. I have Familial Adenomatous Polyposis, and an ileostomy. My flares consist of chronic 24/7 nausea, vomiting to the point of dry heaving, painful gas, it’s belching counterpart, and acid reflux has returned this last (current) flare after a much needed hiatus! This usually lasts at least a day or a weekish. I’m just looking to see how this disease affects us all. Thank you for taking your time to read, and (hopefully) respond.

#Gastroparesis #GastroparesisFlare #ChronicNausea #NauseaAndVomiting #ChronicallyLivingMama

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I wish I could give myself a break

I’m sitting on my bathroom floor because I know I’m going to throw up, I just don’t know when. I’m freezing cold and my head is spinning and I’m in pain. This happens at least once a week, and every time I just deal with it, I go to school and throw up in the bathrooms if I need to. I try not to get up when I’m at my desk. I make excuses for not having my work done because if I explain what’s going on I might get sent home. But I don’t think I can do it today. I’m so tired of just pushing through. I’m tired of teachers thinking I’m slacking. I’m tired of being a buzzkill around my friends. Today I just want to crawl back into bed and stay there forever, I know it’s not a choice though. I can’t just stay home because being sick is part of my life. If I stay home I feel like I’m cheating somehow, everyone has things going on in their lives and everyone still goes to work and school and gets on with their lives. I wish I could give myself a break just this once. #ChronicIllness #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #ChronicNausea