Hemiplegic Migraine

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Hemiplegic Migraine
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I'm new here!

Hi, my name is 14fs37. I'm here because I might suffer from chronic hemiplegic migraine. Except my headaches cause me permanent neurological deficits so I’m still very confused!

#MightyTogether

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So Hemiplegic Migraine is Just a Headache?

What do all these symptoms have in common?

Muscle weakness on one side of your body.

Vision changes (blind spots, flashing lights, zig-zag patterns, double vision).

Numbness or tingling sensations in your face, arms and legs.

Difficulty with speech.

Fatigue.

Confusion.

These are the symptoms of hemiplegic migraine that I have been dealing with for over 20 years and in particular, in the last two weeks...

Hemiplegic migraines can affect your muscles, speech and vision in ways other types of migraines don’t. The symptoms can last for a few hours to days and rarely can last up to four weeks. The symptoms resolve completely in a majority of the cases.

You’ll know you’re having a hemiplegic migraine after you lift both arms over your head. One of your arms will likely feel heavy and be more difficult to raise and keep upright than the other. You will probably lose all motor control in your body (for me it's from head to toe on my left side), you'll be unable to speak, or slur your words, feel disorientated and confused and want to sleep for days...

www.migraine.org.au has more information on Hemiplegic Migraine and the other subtypes of Migraine and next time you hear someone say they have a migraine, remember...IT'S NOT JUST A HEADACHE!!

It is a day to day reality for people in the world...just like me!

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Thoughts about Lyrica

Hi there! My name is Robbin and I’m new here. I’m wondering if anyone here takes or has taken Lyrica ? And what are your thoughts on it for #HemiplegicMigraine and/or #Fibromyalgia ?
I’m currently in a drug study for fibromyalgia and metformin so I can’t take it until I’m finished with the study. (Pretty sure I got the placebo 🙄) I don’t like taking meds - most affect me strangely and most side effects are things I already have from Fibro - so what’s the point … I was on a drug for my heart (I have a PFO) that was helping with my hemiplegic migraines and Fibro. But have had to get off of it because of a bleeding ulcer, and have had a long and major Fibro episode since. I know we are all different, but I’d love and appreciate hearing how lyrica has helped or not helped.
Thanks so much for having this space to learn, share and question. 💕

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Finally!

I have polarized sunglasses at last to help my chronic migraine # at last. When I’m feeling a little better, I want to get outside in the early spring sunshine and look for spring shoots and flowers. #HemiplegicMigraine

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New here!

Hi! I joined last night. My migraine is developing from hemiplegic to daily aura w/ hallucinations of clouds and gold lights. Also have ankylosing spondylitis. Then last week I got a positive ANA IFA on my blood work, but no communication from my doc. Needless to say my anxiety/mental health is going through a rollercoaster. Yay.
#HemiplegicMigraine #AnkylosingSpondylitis #Anxiety

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😬Our ‘Public Persona’😬

This is exactly what I, and countless others, do everyday - we put up a ‘public persona’ to hide what we’re truly going through. We pretend that we aren’t: in #AGONY or #depressed or #exhausted or #anxious . We pretend because we are #scared of how others would treat us if they really know what we were going through. The thing is though, by pretending we are something we’re not, we are giving ourselves more #Stress but also denying someone the opportunity to help us deal with the things that are really going on in our lives.
#itsokaynottobeokay #itsoktoneedhelp #ChronicIllness #chronicillnessawareness #ChronicPain #chronicpainawareness #mentalhealthmatters #MentalHealth #MensMentalHealth #CollegeMentalHealth #MentalHealthAwareness #Disability #IntellectualDisability #DevelopmentalDisability #InvisibleDisability #disabilityawareness #invisibleillnessawareness #FunctionalNeurologicalDisorder #FND #FNDAwareness #JointHypermobilitySyndrome #ChronicMigraineSyndrome #ChronicVestibularMigraine #HemiplegicMigraine #Migraine #BipolarDepression #ChronicDepression #Depression #ChronicFatigue #Anxiety #SensoryProcessingDisorder #BrainFog #PanicAttacks #PanicDisorder #notalone #BeYourself

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