I'm new here!
Hi, my name is veebee22. I'm here because I just got hyperacusis and am aware that my life is changing forever.
I'm so confused at this point. I don't know, if my traits and symptoms come from undiagnosed ADHD, puberty or the years of too much stress. The thing is, stress won't get much better for the next 3 years because I'm going to move out to be able to dance more and still graduating school (I'm 16 yrs old). I'm book smart and never had issues with that, but I struggle with always coming late (poor understanding/sense of time...) forgetting that my friends and family existif don'tseeing them, sensory overload and hyperacusis, and putting away my technical devices (but I don't have any withdrawal-symptoms, so no phone/netflix/instagram/tiktok/Youtube addiction, I think it's more something about dopamine). Also setting priorities, making decisions, and a lot of oversharing. I get distracted by everything, constantly losing important stuff and throwing things on the floore by accidents, am still not able to eat/drink completly without spilling or making a mess, always assume that people are honest with me so usually don't get sarcasm right away, super empathetic and struggling to differentiate between my own and others feelings, I love stimming but it could be my body trying to release stress. I'm and always have been very hyperactive verbally and my mom wanted to send me to an therapist/coach when I was 8 yrs old because she got overwhelmed with my temper tantrums (or was I just confused by the loud, fast world?) but didn't.
The stress I'm experiencing comes from dealing with school, perfectionism and intense ballet training since 5 years. The ballet-bubble has some very ugly sides.
What if it turns out, that I'm just a typical teenager who is overwhelmed by everything(like the most)? Who has a lot of potential (A LOT) but got just so screwed by puberty and not having enough discipline to push trough it, that it get lost? I struggled with disordered eating (still, but it's getting better), self harm and bodydysmorphia. I'm super scared of hurting myself again because I know that I'm super capable of that.
That question remains, puberty, ADHD or stress overwhelm? Or a combination?
What are your tips on handling pain? I have nerve damage in my ear causing severe hyperacusis and it means when I have too much noise I get poor motor control (exacerbated by my #Hypermobility ), migraines (with auras and tinnitus) and debilitating fatigue. I just want to feel normal and am sick of being told it’s my anxiety
It was 80 degrees and sunny. Such a nice day. A dramatic change from the days I’ve become to used to lately. While we have been having a nice run of rain free days, today was especially glorious.
I lit the grill on the deck, felt the heat on my face from the sun and then the neighbors appeared. Not to my eyes, but to my ears. They were running the weed whacker. The sound of the small engine whirring and the spinning of the cutting wire through the grass was wreaking havoc with my hyperacusis.
But we needed to eat and I wanted to make a nice meal for wife. I kept at it, going outside only when necessary to check the meat on the grill. I passed inside to the kitchen, then out to the deck. Exposing myself to the pains of the sounds.
My wife has been working so hard lately, I wanted her to sit still and relax. I finished cooking, we ate and I must say it was wonderful. My head was swimming a bit. I felt as though my brain were beginning to slip. Like gliding on a banana peel.
After dinner, I sat down and remembered I was expecting a delivery. I tracked the package and was alerted it had been delivered. I got up to go outside and get it, and my wife asked me to also check the mail. I opened the door. The weedwhacker was not operating so the environment seemed safe. I walked down the driveway to the mailbox. The neighbors were now working on their lawn mower. Trying to getting it started. I new the clock was ticking. I needed to get back in the house before they fired it up.
I grabbed the mail and headed back up the driveway when a car drove by.
It was the kind of car with one of those mufflers that lets everyone in a mile radius know where they are. The driver revved the engine, the power of it amplified through the muffler, carried on the broken sound waves straight to my brain.
I stumbled, but didn’t fall. The world spun. The vertigo was instant. I fought my way through the dizziness surrounding me to get back into the safety of the house. But the damage had been done. I could not make it through the doorways without hanging onto them for stability. The rotation, the spinning, the lack of gravity. The end of a glorious day. This attack lasted 12 hours.
as someone who has grown up with a rare disorder I feel like the importance of this day could not be overstated. we need to raise awareness in the community and the medical field about people with rare disorders. #RareDiseaseDay #Hyperacusis #NORD #invisableillness #ChronicPain
I am so sad and frustrated by the way the doctor spoke to me today. I don't know why he was so dismissive and rude. He offered me nothing for my hyperacusis and tinnitus except "wear ear plugs and change your lifestyle i.e. don't go to concerts, restaurants etc. (which I haven't done in years). As if avoidance and isolation help. I think he thought I was mentally ill. I know about TRT but can't afford it. So depressed and discouraged.