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  • What's New in costochondritis

    Another update #ChronicFatigue #Fibromyalgia #Costochondritis #Fainting

    I went to the ER last Friday. I fainted twice Thursday night, probably hit my head on the heater and it was also vinyl hardwood. Roommate said the fridge was pulled out, I was trying to get a drink. When I sat up, the trash can was pushed back a couple feet. The ER did a CT scan, it was clean. All tests were. I got Tylenol and an Ativan because I was scared with the CT scan and hospitals are extremely triggering. They did prescribe anything. They did not look at that back of my head even though it hurt like hell. They didn't even check my eyes. The headache only let up yesterday. I know this may be POTS or something. They want me to wear a heart monitor as well.
    Monday, the doctors appointment was telehealth and I don't drive and the local disability bus is having more delays and with how sick I've been it's impossible. She refused to listen tho. She refused to listen about what wasn't working. She told me to go back to the ED. I said something similar to this: I seriously was debating ending my life due to pain and the treatment I've been receiving. Got cut off here and was told: are you threatening suicide? I will call the cops.
    I said no. I'm safe. I have a lot of things going on. She also didn't mention any of the ED notes or anything I told the nurse, the appointment was about 5min.
    My psychiatrists medical assistant was confused as to how that was a threat. I also fired my counselor yesterday due to him on Monday flat out ignoring a trigger then saying he only does 12 sessions but gave me more. Sunday had stuff happen too but I don't want to get into it.
    It's been trainwreck after trainwreck going on two weeks now. Mom, dad and brother also have covid. I don't live with them or am near them.
    #SuicidalIdeation #SuicidalThoughts #MajorDepression #ChronicAnxiety #CPTSD #Autism #ChronicPain #help #PanicDisorder #MedicalTrauma

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    Just moved #CFS #Costochondritis #Fibomyalgia #ChronicDepression #Anxiety #CPTSD

    I'm about done lately. All the month I moved I had the CFS, Costochondritis and Fibromyalgia flaring to the point I went to the ER. They did nothing since it wasn't deemed an emergency. I don't have a PCP because they've treated me badly and basically told me it's in my head. My parents are making things worse and treating me like an idiot (I do not live with them). They told me I have to be nice to them because they're my parents. They're not nice to me. I rely on them for money or I'd be homeless. They don't understand chronic illness or mental health at all and make things worse. They are cruel.
    The whole month of the move I was flaring and in extreme amounts of pain. I had one friend and two days her other friend helping and I couldn't keep pushing myself. I'm getting a cleaning fee and my apartment complex is trying to add on other fees. My parents are going to be pissed. I want to cry. I want to die. I'm talking with my psychiatrist tomorrow morning and my counselor Friday. I just don't know if I can make it that long. My cat is my anchor right now.
    Any kind words or advice would be appreciated.
    #Advice #Autism #SuicidalIdeation #Selfharm #Selfhate #Selfblame #Arthritis #Spoonie #ChronicFatigueSyndrome #ChronicIllness #MyalgicEncephalomyelitis #ChronicFatigue

    8 reactions 4 comments

    Costochondritis Flare Up

    I experienced a flare up of costochondritis symptoms after several hours of work that didn’t involve any breaks in between the tasks.

    I first cooked tea and chicken curry for my family, and then studied for nearly two hours. At the end, I had an autistic lockdown.

    I took medication to treat it, but because of the lockdown, I took it slightly later than usual and my symptoms persisted for longer.

    My pain was an 8/10.

    I realised that on days when I cook, I generally need to take medication as I experience flare ups, more frequently.

    My flare up involved ear pain, which was rare and highly uncommon.

    #Fibromyalgia #Costochondritis

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    Me during every fibromyalgia flare up through Fall/Winter….! :-/ :-)

    Does cold weather flare up your fibromyalgia pain? #Fibromyalgia #ChronicPain #ChronicIllness #MyalgicEncephalomyelitis #Costochondritis

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    Inspirational quote and thoughts about my journey with chronic pain/illness so far…

    I was diagnosed with fibromyalgia, chronic fatigue, and costochondritis about 11 years ago. It has been quite a journey with lots of trials, tribulations, tears of sorrow/pain/fatigue, feelings of loss, defeat, helplessness, and hopelessness. But what this journey has taught me over the years is ‘life (however it is now) is a matter of perspective’.

    Fibromyalgia and all it’s associated symptoms changed me and my life to the point that I could not identify with ‘who I am today and what my life had become’! I just could not get over the sense of profound loss - losing my identity (who I was), independence, career, hopes, dreams, physical health, emotional well-being, family relations (especially with loved ones who could not never understand/empathize/support), etc. However, I have reached a point in my journey, where I have learned that life does not ONLY have to be about pain, misery, sorrow, self-pity, anger, frustration, and being in a constant state of agitation.

    Life can ALSO be about consciously choosing to be hopeful, graceful, and grateful; choosing to see the light at the end of the seemingly never-ending, dark, scary tunnel; choosing to see, feel, and experience the beauty, joy, laughter, and love in the smallest of things; and most importantly striving to develop a sense of peace, calm, and acceptance about how life IS rather than how it should have been.

    This journey has not been easy and I don’t expect it ever will be, but I am happy to see it progress from ‘I just can’t do it/take it’ to being a ‘cautiously optimistic and hopeful work-in-progress! Stay strong my fellow-spoonies and never lose hope! You all are amazing, strong, courageous, and so worth it!!

    #Fibromyalgia #MyalgicEncephalomyelitis #Costochondritis #ChronicPain #ChronicIllness #spooniesareawesome #StayStrong #choosehope


    Advice for Returning to Work?

    I've been off of work since August 2020 with a combo of #Fibromyalgia #ChronicEpsteinBarrVirus #Costochondritis #EctopicHeartBeats and #ChronicFatigue and after 10 months of sleeping, graded exercise therapy and brain training, I've finally been given the go-ahead to try a phased return to work.

    I'm terrified and excited in equal measure!

    Does anyone have any tips for returning to work? I have a desk job and will stay working from home for a while, but my brain isn't nearly as functional as it was before this flare and I'm still struggling with fatigue.

    I'm hoping that returning to work will form part of my recovery, rather than setting me back, but I am concerned that I'm going to get worse again before I get better, as I did with the graded exercise.

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    I've got a follow up appointment tomorrow after doing a ton of labs and an MRI, and...I'm scared.

    I'm not sure if I'm more scared for a serious diagnosis, or that they might find nothing. Again.

    And to my frustration, my nerves are showing up as physical symptoms, and I'm worried I won't be well enough to make the journey to my appointment. Which stresses me out.

    I'm living in a circle of doom.

    Any suggestions for distraction or staying calm?


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    Monday Message 🤍🙏🏼 #ChronicPain #ChronicIllness #Anxiety #BackPain #RheumatoidArthritis #MastCellActivationDisorder #Insomnia

    They say one positive thought can change your whole day! So here’s a reminder about YOU…You are fierce, you are strong, you are a warrior who’s fought great battles and is still fighting 🙌🏼👏🏼 Keep fighting and let’s cheer each other on!! I also needed this for myself so I wanted to share with everyone 🤍😇 Sending love to you all this week, keep hanging in there! #ChronicPain #ChronicIllness #Anxiety #Insomnia #BackPain #RheumatoidArthritis #MastCellActivationDisorder possible #ComplexRegionalPainSyndrome #Disability #Costochondritis

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    Disability shaming again?! Ugh👎🏼 #Disability #InvisibleDisability #ChronicPain #ChronicIllness

    Have you guys seen this story making its rounds in the news, TMZ and NY Post? A young man in Australia was at a McDonald’s, in a handicapped parking spot with his placard displayed and had an elderly woman confront him to ask if that was his placard and If he legitimately needed that spot. He then gets out of his car and shows his prosthetic leg… She claimed she had “the right” to ask him if it was his placard or not and if he needed it. What are your thoughts? 💭
    How many have had this happen to them or a friend? 🙋🏼‍♀️ Where someone assumes and questions the validity of your handicapped placard and the need of a spot or the need of a mobility aid? ♿️
    I know I have, being a young person having a placard and mobility aid I’ve gotten so many dirty looks and head shakes. It use to bother me more when it happened to me but usually I’m in too much pain to care!!! 🤣🤷🏼‍♀️ What infuriates me is when this happens to others in our disabled community. Haven’t we come further as a society with our education to know that not all disabilities are visible?! This can be so damaging to us. I figured until someone has limped a mile in my walker and in our place, they don’t have the right to question our validity. Just my hot take 🙌🏼♿️ We are stronger and mightier together, wishing the best week for you all ❤️🙏🏼 #ChronicPain #ChronicIllness #BackPain #MastCellActivationDisorder #RheumatoidArthritis #sciatica #Migraine possible #ComplexRegionalPainSyndrome #Costochondritis #SpinalFusion #Anxiety #Insomnia #CyclicVomitingSyndrome