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"You Never Know" by Blackpink sounds like a chronic illness anthem

If you are a kpop fan or even just a music fan, I recommend listening to You Never Know by Blackpink. It genuinely sounds like an anthem for people with chronic illnesses/disabilities. It really reminded me of the last good days I had back three years ago. It's such an amazing song in general but it sounds like the feelings you feel after a truly devastating life event like getting sick forever.
#ChronicIllness #Fibromyalgia #IrritableBowelSyndromeIBS #ObsessiveCompulsiveDisorder #Depression #Anxiety #Chronicsinusitis #Chronicbronchitis #Spoonie #warrior #MightyTogether

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Living is dying and dying is living

So, having 3 chronic lung illnesses with severe persistent daily asthma as the worst of the 3, it is a daily decision to live for the day and risk dying or by not doing anything being dead to the world to ensure survival again for another day.

Some days I'm all for living my life as full as possible with as many interactions with others as possible. But this comes with greater risk. The risk lies in the issue of the more active I am, the more likely I have a fatal asthma attack. So to live is to risk dying. If I decide to do nothing and stay home away from the world, it's weather, it's people, I most likey dont have a fatal asthma attack but this is dying inside to me as I am a social butterfly and love participating in life to the max daily. Then throw in constant 24/7 labored breathing at best. Most days I try to find a balance between the 2, dying to live or living to die.

I have come to a peace about it all though. I have already lived a life enough for 5 lives. I have already completed a very full bucket list and have started a second bucket list. I should not be alive if justice was served because of everything I have been through. So I am already very lucky to be alive let alone be able to live a somewhat full life still even though my lungs are really bad. I need to live life as free and full as possible while trying to accommodate my illnesses. This is where my heart and soul is. This completes me.

So when I go about my every day doings and have 1 of daily several asthma attacks and am faced with "is this the one that takes me... " I try not to panic, use rescue inhaler ASAP and do everything I can to make it througn the attack no matter how severe which usually my attacks are moderate to life threatening. most attacks it gets to the point of not being able to breath at all for at least 20 seconds. Some attacks I end up in emergency room. Mysevere doctors have told me the more active I am, the more likely it is that I will have a fatal attack.

So living is dying and dying is living. This is my daily struggle with how much do I want to risk dying to be able to live life comfortable for me.

I hope this can bring comfort to other asthmatics. Our struggle is real but life is more real to me so I will be there in life... to live as full as possible. #Asthma #ChronicObstructivePulmonaryDisease #Emphysema #Chronicbronchitis #ChronicIllness

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Christmas sucked

Been sick as hell. Can’t stop coughing. Costochondritis is flared up and hurts SO BAD! I am just so dang sick and tired of this mess! But I guess not enough to actually wanna take better care of myself. Ugh! #Costochondritis #Chronicbronchitis #Sarcoidosis


Pain Dr Taking Me Off Of My Anti Inflammatory Medicine

#Fibromyalgia #ChronicPain #Migraine #Arthritis #Osteoarthritis #bulgingdiscs #PinchedNerve #spondolyosis #PostconcussionSyndrome #BipolarDisorder #Anxiety #AnxietyAttack #Fainting #Heartoperatingatonly62 % #Asthma #ChronicDailyHeadache #Chronicbronchitis #Spinalcervicaldiscectomyfusion
This is my first post on The Mighty and I just want to introduce myself and then explain why I’m not having a good day right now. I went to the pain doctor on Thursday morning and they decided that after being on my Celebrex anti inflammatory medication for well over 10 years, that I had to take a break immediately. This month and then next month also. Only problem is that the winter weather is coming up and I don’t do well with my pain during that time. I also passed out in August and smacked my right side of my head against the kitchen table, who knows how many times, because I’ve got a spinal fusion in my neck-it actually held up when I hit the table, unfortunately that’s the only good news. The disc above my fusion is bulging out one side of my neck and then the disc below my fusion is bulging out the opposite side of my neck-major whiplash was what I sustained from the hit plus a concussion and then it turned into post concussion syndrome. I don’t see a neurologist until November 8th, my fainting spell happened in August. Even when I told the neurologist office what was going on they wouldn’t work me in any sooner. I’ve been on a heart monitor for 3 weeks, had an echo of my heart and a sleep study already done in those 3 weeks. The cardiologist has said that my heart is only working at 62%. I have no fluid around my heart but I’ve got a couple of different places that have leaky areas in the valve and arteries. Nothing to limit my ability for a procedure or operation. My lung and sleep doctor is working on the idea that I might have narcolepsy. The sleep study that I had done the other night probably will show that I have insomnia. I do suffer from insomnia a lot. I’m just trying to keep my faith in tact. My faith has been a strong part of my life since 1999. I was baptized on a Sunday night and then on Thursday night I was in a terrible auto accident where I was T-boned and both of our vehicles were going at about the speed limit of 55 miles per hour. Just to give you an example of how much faith has played a part in my life, no ambulance was called to the scene of the crash. That’s why my faith is so strong. I’ve been through many other different things in my life and my faith has always been the same. Strong. I’m just trying to get a diagnosis on what’s going on right now because of the multiple fainting spells that I’ve been dealing with. Any ideas on what I should be getting my doctors to look for would help me out a lot. I have on my list POTS, Dysautonomias, Chronic Fatigue Syndrome, Mixed Connective Tissue Disease, Stiff Person Syndrome, Lyme disease, EDS, Sjögren, Lupus, Alpha 1. Any other ideas welcomed. Thx for listening.