Intractablepain

Felt a little defeated today, had to get another PET scan with Radioactive dye. Since my 6th surgery in April, I’ve had swelling in my back and increased bone & breakthrough pain. We are checking for stress fractures from my last surgery.
I didn’t know that 6.5 years after my injury & accident, I would still be searching just an ounce of pain relief😔I’m on a waiting list for a new type of stem cell procedure in my disc.
It just feels hard…
I want to be happy, outgoing, dating, working, getting married, having a social life, experience life’s joys, become a mom, I’m already a fur mom♥️I just don’t have the energy, the pain barely allows me to get through simple tasks each day. How do you make energy allowance for social activities when your symptoms are at an all time high?

For now, I’m going to keep doing whatever I can to find that magic thing that helps reduce my pain. Because I still feel a glimmer of hope that it’s out there 🪄✨

#BackPain #Backinjury #ChronicPain #RheumatoidArthritis #MastCellActivationDisorder #AnkylosingSpondylitis #Intractablepain #Anxiety #SpinalFusion #sacroilitis

I have lived with chronic, intractable pain for over 18 years. I have had to learn how to manage my pain and my life. I have had to educate everyone around me, including most of the healthcare providers I see. The misinformation and/or lack of information about my diagnosis and the use of opioids to treat chronic pain is mind blowing. Especially when I am dealing with the medical community. Most doctors think I am on too many medications and that I am a drug seeker. Little do they know I was completely against starting opioid therapy 18 years ago. It was a doctor who convinced me it was the only thing that would help the pain and he was right. I have tried so many alternative therapies and nothing has helped like the opioids. Yet I was still rapidly tapered to half of my therapeutic dose in 2016. It’s time for the medical community to wake up and truly see chronic pain patients! We should not have to sign away our rights with ridiculous pain contracts to get our medication. We have legitimate diagnosis just like someone with diabetes or heart disease. We are not an ID number in a computer, we are human beings who deserve compassion, respect and proper medical care.