Medical records

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Is Chasing Dopamine Coming At The Cost Of Turning Our Medical Information Public

It baffles me that after having their children digitally kidnapped six times, some of these parents are still refusing to hide their child's face on Facebook, Instagram, TikTok, etc. It's great that your kids are reaching their milestones on time but you don't need to share that stuff with all of your former classmates. The person who you sat next to in second grade yet haven't seen in 20 years doesn't even need to know your child's name. Children can't consent to having their photos and personal lives online. Questions like "What hospital were you born in?" are commonly used when people get locked out of their online accounts. What's crazier is the fact that these are the same parents who preach "stranger danger".

I understand the novelty of your child being named patient of the week at the pediatric medical center. In the 1990s they may have had a star with their picture and name placed in the waiting room but now in this day and age they may have an article dedicated to your child on their medical center's website alongside their photo. One could argue that posting that information is a violation of HIPPA, even with parental consent and their signatures. The ethical dilemma lies in the subconscious psychological tricks people fall for and the lengths people will go to in order to get a rush of dopamine; as when you are searching for a short term high, you sometimes aren't thinking of the long term consequences. Parents want to share the great news with all of their friends that their child has been healed and on the other hand a child thinks "I'm on the news," and both them and their child get a burst of dopamine when they find out their photo has 100 likes instead of, "My (child's) medical information is being posted on a public website online". The medical center also benefits from those parents sharing the updates on social media; as all their success stories are online for the eyes of the parents of potential patients. Even though it's cool in the short run, it may turn into something a child doesn't want their boss to see when they are 25.

I'm not sure about how the hospital commercials are produced but it would be a lot more ethical to have former patients (who are now adults) say, “Here's how the hospital changed my life for the better,” as opposed to sick child actors and their parents in front of the camera at their most vulnerable point in life. I understand that people are more sympathetic when they see children with machines hooked up to their bodies, but at what point does the medical center's website and the parents “go fund me” pages cross the line and turn sorrows into clickbait?

One solution I have is to create a newsletter that you will only send to your closest friends and family and then to post vague monthly updates on social media like, “AJ recovered from a cough and stuffy nose,” instead of daily updates and posts saying, “Aiden is successfully recovering from his three week hospital stay due to Covid.”

#hippa #sharenting #Privacy #MedicalRecords #ethics #Parenting #SocialMedia

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This Monster I Battle Is Not Only My Illness

"I am my Primary Care 'physician'."

Sure I might not have a medical degree but I've had to accumulate, acquire and decipher my medical records - And let me tell you acquiring access to them has not been easy.

Just like the picture above I feel I am a small warrior facing this monster.


I could fill page on page of frustration of the frustrations that come along with requesting #MedicalRecords - the partially filled requests, the "this isn't my department," the "you need to contact that institution," the lack of energy from being #chronicallyill (to top it all off). It is nothing short of frustration that goes to validates the inadequate, understaffed medical care systems not only here but around the world.

Where are the #Doctors

and why should I have to "become one" upon becoming chronically ill, diagnosed with a #RareDisease my oncologist can barely answer my questions - I see multiple different doctors; None which seem to communicate with each other. My request is simple:

I would like my records and images, please.

(So I can share them with every other doctor/specialist that seems to be missing crucial information).

I'm sure some of you can relate, or maybe it's different where you are - in that case consider yourself blessed/lucky/whatever you wanna call it.

Wishing you all a lovely day. Thank you for listening to my vent.



Medical binder

I am incredibly bored and want to organize. So!
Do you have a medical binder? What sorts of things did you add? What do you wish you had included sooner?
Help me make a beautifully organized medical binder! #binder #MedicalRecords #EhlersDanlosSyndrome #LivingWithPOTS #DiabetesType1 #Diabetes #Tachycardia #Migraine #Asthma #MajorDepressiveDisorder #GeneralizedAnxietyDisorder #PTSD


How do you track all your treatments?

Over the years I’ve had many different health providers and taken so many different meds and changed dosage as well as received other treatments. How do people keep track of their medical history? Especially when you go to a new provider how do you get them your treatment history? Is this a problem for anyone else?
#medicalhistory #ChronicIllness #treatments #MedicalRecords


Tracking Medical History

How do people track their medical history? I’ve been through so many different doctors and medications and treatments it’s hard to remember it all! How do you track your meds and doses and any other treatments you’ve had? #Depression #treatments #MentalHealth #medicalhistory #MedicalRecords #TreatmentresistantDepression #Anxiety #ClinicalDepression

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How do you share your thoughts with a therapist knowing that your conversation will be written in detail in your medical record?

I requested my behavioral health records from the behavioral health clinic. I found out that therapy notes are not kept separate from the progress notes. So every time my records are sent to long term disability company the claims adjuster will see the details of my conversations. I do not wish to have those details released but I was told there was no other way to release bits of the record. IF the records are not sent then the claim will be dismissed and I will lose my income. If I don't go to therapy because I don't want my words written down then my claim can be dismissed for not receiving care. Due to my insurance and living overseas the behavioral health clinic is my only option. I feel ashamed, embarrassed, and trapped. Now I have a difficult decision to make. Help! #Therapy #MedicalRecords