RareCancer

For the first time ever, I am premiering a video. This video is more important than I can put into words! You, my sweet friend are invited to my Pheochromocytoma Attacks and More watch party on YouTube: Monday May 17th at 10 am est. Be sure to bring a friend and share the link!!! Don’t forget your party gear: a drink, fun snack, and cute and comfy outfit.

An amazing YouTube friend (subscriber), recently asked what happens during a Pheochromocytoma attack? I wanted to sit down to explain a little more, what is a Pheochromocytoma? I also talk a bit about the Adrenal glands and Adrenal Insufficiency. What is an attack? I go into as many symptoms as I can with as much detail as possible (with my foggy brain). There are tons of resources in the description for curious minds, care givers, patients, or anyone with a heartbeat.

www.youtube.com/watch

#Awareness #Cancer #RareDisease #adrenalgland #adrenalinsufficency #addisions #ButYouDontLookSick #InvisibleIllness #RareCancer #MedicallyComplex #MentalHealth #MentalIllness #mystory #symptoms #ChronicPain #attacks #Pheochromocytoma #pheo #NETCancer #NeuroendocrineTumor #Tumors #Pain #HighBloodPressure #AdrenalGlandCancer #AdrenalGlandTumor #Caregiver #Education #notalone #Hope #ChronicallyHopeful

Did you know #OvarianCancer is a rare cancer? It is. What's even more rare, is I survived at 19 and then had children at age 31 and 34, naturally. I'm the face of rare cancer. rarediseases.info.nih.gov/diseases/7295/ovarian-cancer

I remember the day I got the call from my doctor confirming I had a rare cancer. I was 21, trying to finish a master's program, and the emotional weight of that diagnosis was traumatizing. I lost friends. No one could really "get it." I didn't tell acquaintances -- when they saw the staples and scar, I said I had fallen off my bike because I didn't want to explain. It was a rollercoaster of emotions: embarrassment, sadness and confusion. To anyone coping with cancer, have hope. I wish better days ahead for each and every one of you. #RareCancer #CopingWithCancer#MentalHealth#RareDisease