spoonie

Create a new post for topic
Join the Conversation on
spoonie
40.2K people
0 stories
2.3K posts
About spoonie Show topic details
Explore Our Newsletters
What's New in spoonie
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

TRUE or FALSE: I'm comfortable setting boundaries with myself and others.

Let's continue on our self-care journey, shall we, Mighties? Our next checkpoint is setting boundaries. How comfortable do you feel about setting boundaries with yourself and with others? Does it come easy or do you find it challenging?

Mighty staffer @sparklywartanks shared that she's comfortable setting boundaries, but continuously enforcing them is challenging for her.

What are your thoughts?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 3 reactions 4 comments
Post
See full photo

How do you define “normal”?

Mighty staffer @sparklywartanks was recently having an interesting conversation about the definition of “normal,” especially as it relates to managing a mental health condition. It got her thinking about how she defines “normal” and how she learned to recognize the difference between her symptoms and her true personality.

She realized that her definition of “normal” has changed over time. Ultimately, she feels it’s her relationship with self-awareness that helps guide what “normal” means to her each day.

What are your thoughts? How do you define “normal” while living with a health condition? How does your relationship with your health shape that definition?

Feel free to share your insights below! 👇💭

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 21 reactions 13 comments
Post
See full photo

What’s something about your rare disease that’s often misunderstood by others?

One distinct part of living with a health condition—especially a rare disease (diagnosed or otherwise)—is having to explain, and re-explain, what it’s like to manage it. Fluctuating, changing, unpredictable, and under-researched symptoms can make it difficult for others to fully understand how to support you or empathize with your experience.

What’s something that’s often misunderstood about living with your rare disease?

💌 Feel free to share with us below.

#RareDisease #ChronicPain #ChronicIllness #GeneticDisorders #MentalHealth #Disability #Migraine #SUNCTHeadache #StiffPersonSyndrome #MedicalZebra #EhlersDanlosSyndrome #Spoonie #MarfanSyndrome #EmptyNoseSyndrome #Syringomyelia #Neurosarcoidosis #BehcetsDisease #FunctionalNeurologicalDisorder

Most common user reactionsMost common user reactions 10 reactions 3 comments
Post
See full photo

How similar are your weekday and weekend routines? How are they different?

We're heading into the weekend, Mighties!

Depending on what your weekdays look like vs. your weekends, your routines may look different. What may have been a priority on weekdays may not be as important on the weekends or vice versa.

What do your routines look like on the weekends? Are they similar or different than your weekday routines? If they're different, how come?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 10 reactions 5 comments
Post
See full photo

Imagine your symptoms are the DJ on a road trip today. What song are they putting on — and why? 🚘

Mighties, let’s picture ourselves on a road trip right now. If your symptoms were in charge of the music, what song would they choose to play? What makes that song a good fit for today? 📻🎵

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 10 reactions 7 comments
Post
See full photo

What important factors do you take into consideration when creating a new routine?

When creating a routine that works best for you, your health, and your lifestyle, it’s important to take note of different factors that will impact how effective that routine will be for you.

Mighty staffer @sparklywartanks says the most important factors for her when it comes to creating new and effective routines is always taking into consideration how energy and sleep plays into that routine. Would she need to wake up or go to bed early? How much energy would this routine require to complete every day?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 12 reactions 5 comments
Post
See full photo

What’s the biggest challenge you face with keeping up with a routine?

Keeping up with routines can be challenging. From balancing responsibilities and health symptoms, to time management and scheduling, it's not always easy to maintain regular routines.

What do you find is your biggest challenge when it comes to staying the course?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 31 reactions 15 comments
Post
See full photo

What’s your learning style?

As we take in information from educational spaces, our environments, or our lived experiences, certain strategies, patterns, or methods may work best for retaining and processing that information. This might look like listening, seeing visuals, engaging in hands-on activities, being in specific environments, taking notes, relying on particular resources, or even using a combination of styles depending on what we’re learning.

What’s your favorite way to learn something new? What learning style works best for you?

Share your insights and experiences below and/or choose from the following list:

a. Visual: I learn by seeing 👀
b. Auditory: I learn by listening 👂
c. Kinesthetic: I learn by doing 🙌
d. Reading/Writing: I learn by writing things down and reading information 📝📖

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #ADHD #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 19 reactions 9 comments
Post
See full photo

Share the theme of your week using two emojis.

Happy Monday, Mighties! 🌄

How was your weekend? What’s the week ahead looking like? Share the theme you’re stepping into, a plan you have, or something highlighted on your calendar — all using emojis below!

#MightyMinute #MondayMoji #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 19 reactions 11 comments
Post
See full photo

TRUE or FALSE: Routines help my mental health.

Let’s talk about routines this week!

Whether we’re waking up at the same time every day, going to school or work, or even making sure we’re eating a certain amount of meals, drinking water, and taking our prescribed medication; routines can help us maintain a level of consistency in our daily lives. The routines we practice can determine how we approach each day as well as affect our mental health.

What are your thoughts on setting daily routines? Do you think they help your mental health? Or does the rigidity increase your anxiety or hyperfixation?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #ADHD #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 15 reactions 13 comments