Did you know I had Cancer #worldCancerDay #Sarcoma
6 months after the Mayo Clinic sent me home to die ( quite literally )
When the miracle of prednisone came , I could eat again .
And I finally felt like I was getting my life back .
I was diagnosed with cancer .
And not just any cancer
Ironically the girl who WAS dying from an unknown rare disease ( later to be diagnosed co-morbidities like gastroparesis from UCTD and CVID. )
I’m tempted to make a vlog sharing my whole crazy cancer story,
How I canceled the surgery I was suppose to have to remove the remaining tissues , the day before surgery . and drove up to the cancer center with nothing but a sticky note in hand. Only to end up getting a doctor at the cancer center who was one of 5 in the US trained to treat this cancer.
Then learning you have amazing odds if DFSP treated right . But treated wrong it becomes crazy aggressive .
Adding to the horror and the miracle that it was inches away from being in my lungs before we caught it .
But This #worldCancerDay
Also being in #raredisease month .
I scroll through photos at the time of my diagnosis and beyond .
And I can’t help but feel gratitude for all the life I have lived since then
I’ve had kind of a bummer day emotionally because I haven’t been feeling good , and I just REALLY want to go see my aligator in the art show .
But As I’ve scrolled through 5 years of photos .
I feel the absolute privilege it is .. just to be alive ❤️❤️.
Cancer taught me to take advantage of every new experience.
Because today , and the ability to live through it . Is a gift ❤️
#smileon🐷 #dfsp #sarcomasurvivor #spoonie #cancersucks #chronicillness #hope #nec #unicorncancer #itgetsbetter