Ankylosing Spondylitis

Hello everyone. I’m a 27-year-old male, diagnosed with Ankylosing Spondylitis nine years ago, and I’m currently on biologic treatment. Last year, I moved from India to Japan for my studies, and I’m now in graduate school. My coursework requires consistency and focus, but I often find myself finishing tasks late. Even when I feel motivated to start working, my body tells me to rest or sleep a bit more. I’m unsure whether this is due to my autoimmune condition or if I’m just being lazy. Has anyone experienced something similar? I would really appreciate any advice on how to cope with this. #AnkylosingSpondylitis #ChronicFatigue

I have Ankylosing Spondylitis, Fibromyalgia, and recently had a bilateral pulmonary embolism. I’m on a million medications which don’t ever really help my pain during a flare up. My specialty doctors have quit hearing me I think because they are so tired of hearing me “complain”. I cannot for the life of me finish PT because I work full time and I just got written up for missing so much work (being I. The hospital for 4 nights, er visits, days where I literally could not move)…. I was recently sick and was forced to come into work with a fever of 101.3. I’m tired. I’ve been told by my rheumatologist and PT that “this is something you’ll just have to get used to”.

I’m ready to give in. I live on a farm, 3 years ago I was able to do all of this stuff by myself but now, ever since my diagnosis, it takes all I have just to brush my teeth and put on clothes.

I’m so lost. I don’t feel seen. I don’t feel heard. I feel invisible. And aside from being in constant pain everyday, that’s the worst feeling.

I am not ready to quit working, but I’m so scared that I’m going to be fired for something I have absolutely no control over.

I’ve tried seeking therapy, I did online therapy and was told by the therapist that I needed to seek out another therapist to help me.

I’m broken.

Just something to remind us all..
#MentalHealth
#Anxiety
#Caregiving
#PsoriaticArthritis
#Migraine
#DistractMe
#Arthritis
#AnkylosingSpondylitis

Never forget that change can be beautiful! The Fall shows us that! Hope this finds you well, and remember to take care of YOU! 🧡
#PsoriaticArthritis
#MentalHealth
#Anxiety
#Arthritis
#Caregiving
#AnkylosingSpondylitis
#ChronicPain
#Migraine
#DistractMe

Remember to show yourself love and kindness. You're important, and I hope this can remind you to show that same kindness to you, as you share with others! 💜
#Anxiety
#PTSD
#MentalHealth
#AnkylosingSpondylitis
#PsoriaticArthritis
#Migraine
#DistractMe
#Depression
#Selfcare
#Arthritis