Ankylosing Spondylitis

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Ankylosing Spondylitis
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    Why Less Is More in My Life With Ankylosing Spondylitis

    Since getting diagnosed with #AnkylosingSpondylitis (AS), I’ve learned that it is better to undershoot than overshoot. Living in a capitalistic society, we’re encouraged to push ourselves beyond our limits to achieve success. This is unhealthy for a myriad of reasons but is especially harmful when one has a #ChronicIllness .

    My approach to doing things used to focus on speed and efficiency. I would try to complete tasks as fast and efficiently as possible, often at the expense of missed meals, less sleep, ignoring pain and stress signals, and minimal exercise. While I would get things done, it was detrimental to my health and exacerbated my symptoms. This was before I understood what my triggers and limits are.

    Now I incorporate pacing techniques into everything I do and follow a priority mindset. I divide up all my tasks based on importance and their deadlines and then break each task into chunks and rest as needed.

    Oftentimes I have to skip some tasks entirely and leave them for another day or have to leave a task incomplete and finish it when I am able to. Doing less has made my disease more manageable and has helped me become more productive.

    Changing my mindset and approach has been an essential lifestyle change that has helped me cope with AS.

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    Why me? # I have three disabilities not one!

    #BipolarDisorder not just bipolar disorder but Ankylosing Spondylitis and brain trauma. They are the mighty three. They have ruled me since 1974. They tell me there a trigger for my bipolar disorder, and that brain tumor AVM deadly until the surgeon removed it and replaced it with foam, and included a titanium plate in my skull, and doctors say it was there from birth and a trigger made it grow. Two triggers and one that hit me hard one morning when I couldn’t get out of bed. I just thought I had slept crowded up against the wall. That one has grown worse and worse over my life from age 39 until now age 71. If I live long enough I won’t be able to move. I am truly disabled with three serious illnesses and I have to fight the insurance company for my pain medication!


    I’m new here!

    Hi, my name is Six. I'm here because my world is lonely and sad with my new diagnosis.

    #MightyTogether #Anxiety #Depression #AnkylosingSpondylitis

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    Perfect Cronic Illness analogy....

    This is awful 😖 Yes our health care system in the UK is reasonably good. But I still can't afford not to work to keep a roof over our childrens heads.Times are tough and with these increasing fuel prices we #TheMighty are going to be the ones hit the worst. #AnkylosingSpondylitis #EhlersDanlosSyndrome #MyalgicEncephalomyelitis #Fibromyalgia #Depression #Anxiety #InvisibleDisability

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    Little victories!

    Can't believe I used To do all these things in one day, hold down a full time job and workout #Fibromyalgia #AnkylosingSpondylitis #JointHypermobilitySyndrome #EhlersDanlosSyndrome

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    Think we can all relate to this one #Fibromyalgia #EhlersDanlosSyndrome #AnkylosingSpondylitis

    So glad I found this social media platform 😊