Ankylosing Spondylitis

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Ankylosing Spondylitis
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    I’m new here!

    Hi, my name is SoundExcape. I'm here because of my health

    #MightyTogether #AnkylosingSpondylitis #Depression #SleepApnea

    10 reactions 5 comments

    United Health Care Pushing Opioids Instead of Covering Procedures

    Now let me start by saying I'm not adverse to opioids in the right circumstances, but we all know what a mess Purdue Pharma and others have made. Anyhow, my partner's back conditions continue to worsen. He's tried every single treatment available to him. Nothing works except a Radio Frequency Ablation which has to be done every 6 months. At the end of the 6 months period last time he had a job change which of course means a change of health insurance. He went from BCBS which was amazing for him to United Health Care and Oxford. They have basically tried to kill him over and over again.
    Their latest idea was to put him through unnecessary test injections before the RFA which they openly approved as medically necessary. Then even though he had over 80 percent reduction in pain, they denied it as not medically necessary. They did it all through the appeals process and it is abhorrent.
    Then the other day we get a call from one of the insurance reps asking about his conditions and openly pushing opioids as an alternative to the surgery when he first off can't take them because the interactions with his medications (which he had just finished confirming his med list with the rep) would be catastrophic. It is just beyond horrific honestly. And after the first no I'm good on Opioids, that should have been the end of it. In fact it shouldn't have even been brought up by them as a suggestion. It was terrifying honestly to think that this is still happening despite court cases and the amount of public backlash and everything. Direct from the of course publically traded United Health Care (and of course the whole Optum Pharmacy management branch who they own). I am appalled. I am disgusted. I am beyond enraged.
    #opiod #medications #AnkylosingSpondylitis #MentalHealth #Fibromyalgia #CPTSD #ChronicIllness #Migraine #UnitedHealthCare #HealthInsurance #ADHD

    14 reactions 6 comments

    I’m new here!

    Hi, my name is Faith. I'm here because I need inspiration and support from my community, a community who knows what I'm going through and facing. it's comforting knowing I'm not alone. I appreciate you all. Thank you. ❤️💙💜

    #MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #PTSD #ADHD #RheumatoidArthritis #AnkylosingSpondylitis #Lupus #CeliacDisease #Grief

    35 reactions 10 comments

    I'm new here!

    Hi, my name is Rafael Laranja. I'm here because

    #MightyTogether #AnkylosingSpondylitis

    5 reactions 2 comments

    The tank is empty

    I know that in December many people are feeling tired and overworked. The problem with ankylosing spondylitis is that I feel that week even after a month's holiday.

    I am so unbelievably tired. Tired in my bones and in my mind and in my heart.

    This morning my legs feel like they are filled with lead. I can hardly walk from my car to my classroom. Colleagues literally speed by me calling out greetings.

    It occurs to me how different our day is going to be. Oh, I'll smile, make jokes with the kids, chat with my colleagues but I'll be doing it from an empty tank.

    My little energy tank is empty. Unlike most people I can't just top it up- I have tried. I'll be using one of my strategies today, one that I use often: Fake it till you make it. Or in my case: Fake it till you can go home and lie down.

    How do you explain this level of exhaustion? You can't. And so I don't try anymore because it just sounds like whining. I do my best and most days that is enough to get me to the end of the school day.

    Then my pain and exhaustion and I go home and lie down.

    Until we have to do it all again tomorrow.

    Sending love and light to all of you with whom this resonates.

    2 reactions 4 comments

    I feel alone

    I have ankylosing spondylitis and fibromyalgia. People can't see how difficult some days are. If I'm walking ok they think all is well. But on the inside is such pain and fatigue. Some days are hard to function at all. I am so tired of having to pretend everything is ok because I don't want to be that annoying person who is always complaining. It gets to me not being able to share how I'm feeling. Also going to work every day is so difficult. People haven't got a clue what it's like.

    2 reactions 1 comment

    I’m new here!

    Hi, my name is SleepySquirrel. I want to connect with others who suffer from chronic pain, illness, and fatigue

    #MightyTogether #AnkylosingSpondylitis #Asthma

    5 reactions 2 comments

    A rough year

    It’s been a very tough year for me! I lost my husband to Glioblastoma 3 years ago. I miss him terribly but I know I will make it.
    Then my Stepdad’s Pancreatic Cancer came back mid-2021 and Mom started drinking heavily and not taking care of herself. She should have probably been in therapy and/or antidepressants years ago. She is a narcissist and always in competition with me my whole life. She ended up in the hospital in November 2021 with Wernicke’s Syndrome and Stepdad died in December 2021.
    Being the responsible oldest (and only daughter) I moved her in with me…it was a disaster!! She was verbally abusive and basically has dementia now. She needed more care than I could provide. My brother actually cussed me out, telling me “I told you not to move her in” and I had a full-blown panic attack.
    I’ve moved her into a Memory Care facility and she’s much nicer to visit, although I still feel anxiety every time. She has no concept of time, where she is or who is alive or dead…but she’s taken care of and healthy. I’m still trying to unravel my Stepdad’s estate, bills, investments, etc so I can start using HER money to pay for her care. I’m currently paying until I wrap this up.
    I’m feeling very overwhelmed and overloaded with my own stuff, my bills plus her bills, taking care of my house AND her house (until we can clean it out and sell). The worst is the feeling of being so alone…my husband is gone, my stepdad is gone and my Mom is gone!! I feel like a juggler who keeps getting balls added. Ever time I “waste” time I feel so guilty…like I should have been being productive (despite my body telling me to take a break).
    I’m just so tired of this awful anxiety and responsible feeling. 💜

    #AbuseSurvivors #ChronicIllness #AnkylosingSpondylitis

    19 reactions 7 comments