Ankylosing Spondylitis

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Ankylosing Spondylitis
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I'm new here!

Hi, my name is lemonskinn. I'm here because I’ve just gotten another diagnosis. My doctor can’t help me, he said it’s just inflammation and chronic pain. The same type of things you’re already dealing with. So I wanted to find a community, that will help me feel not so crazy, when I’m outta my mind with pain.

#MightyTogether #Anxiety #Depression #Migraine #PTSD #MultipleSclerosis #AnkylosingSpondylitis #EhlersDanlosSyndrome #Fibromyalgia #Insomnia #ChronicPain #ChronicIllness #InvisibleDisability

12 reactions 8 comments

I’m new here!

Hi, my name is jonestra. I have Complex Regional pain syndrome, as well as 8 more chronic pain diseases. I hope to find others who have what I have . Fibromyalgia, Ankylosing Spondylitis, Psoriatic Arthritis, Trigeminal Neuralgia, Gastroparisis, Hypothyroidism, Cervical Dystonia, lymphedema, I hope to meet others with my diseases so I can learn more about each of them I have had Complex Regional pain syndrome for 23:years this June. I was healthy until getting this and now I live daily with something flaring.


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So far, pajama pants are the only thing I’ve found that I can wear everyday. Sometimes when I go out of my house, which isn’t very often, I will wear not-too-tight, softer jeans or sweatpants. But 99% of the time, due to my GI and spinal symptoms, I am in pajama pants.

#ChronicIllness #spondylitis #AnkylosingSpondylitis #Gastroparesis #ChronicPain #Arthritis

28 reactions 14 comments

Sometimes, pain is not temporary

For years, I’ve heard people say that pain is always temporary, and I’ve struggled to understand it because for me it’s really not. Maybe, when one has some help for what is causing the pain, then it can be more temporary. But I don’t have that help, so my symptoms and pain are constant and permanent until I do. ~

I do everything I can to try to manage the pain, but none of those things are treating the cause of it. Doctors are the only ones who have access to and can prescribe what can treat the cause of my pain. My potential relief is completely dependent on them. For years now, my pain has not been temporary even though treatments do exist. ~~

Anyone having a similar experience?

#ChronicIllness #AutoimmuneDisease #AnkylosingSpondylitis #ChronicPain

99 reactions 33 comments
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“Seeing the beauty through the Pain…You break me down and build me up”

From song “Believer”—> Dan Reynolds himself has Ankylosing Spondylitis, and has struggled with anxiety and depression

#ChronicIllness #AnkylosingSpondylitis #MentalHealth

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Happy 'You' Year!

It's a brand new year loaded with lots of blank pages ready to be written!📝
Make this a great, 'You' year! 🙏Take care of you physically and mentally! ❤️

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I'm new here!

Hi, my name is Tony_Simpson. I'm here because I have been living with Ankylosis Spondylitis for ten years, although I was only diagnosed with AS a year ago. I want to share my story and read about others living with chronic pain and/or disabilities/diseases.

#MightyTogether #AnkylosingSpondylitis

3 reactions 4 comments

Starting to flare...

Some days I think I have a hold on my conditions, then they hit me. Little reminders that I'm not well. I was doing basic organizing in my room, nothing too taxing, then ran mild errands. Came home, walked up stairs and could hardly breathe. Most days I'm a midshift supervisor at a busy starbucks, doing a bunch in my 6 hours. But today, my ankylosing spondylitis said nope! Did a little stretching, felt better, husband wanted to go on a walk, made it 10 minutes. Been on the couch now for 2 hours with my water and heating pad, under blankets. Freezing, neck and back hurt, leg muscles hurt. Most of all, frustrated. Sometimes knowing I'm only 42 and this is what the rest of my life is going to look like is hard to think about. #AnkylosingSpondylitis #ChronicIllness #ChronicPain

10 reactions 5 comments