Autonomic Dysfunction

I’m very excited!

I have been working hard on being able to do things independently. I appreciate all the help I get, but cptsd and panic attacks have really taken their toll on my independence and freedom. My boyfriend has been such a significant help and I feel so lucky that he is in my life. He is also very aware of my struggles with my current level of functioning.

Yesterday, my boyfriend was working later than normal and I told him I would make us dinner. This is the first time I have had the capacity to make him dinner since we have been together! I love cooking and used to do it all the time. The last couple of years my symptoms have prevented me from fully getting back in the kitchen. I made pierogis from a local place and maple carrots.

Not only that; today I am going to go kayaking by myself! I found out we have a park nearby the house and they do “drop-ins.” I love being by the water. I love kayaking even if it’s an activity I haven’t been able to do much of. If I enjoy the drop in, there are more scheduled for October. Also- it is actually really affordable: $5 for an hour.

Things are moving and I’m seeing it. I couldn’t do these things even a month ago 💗Thanks to all those who have seen me through all that I have gone through and offered me encouragement along the way. I’m grateful for the community here.

#CheerMeOn #ChronicVestibularMigraine #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #ADHD #PanicDisorder #ComplexPosttraumaticStressDisorder

The weather is starting to cooldown and leaves are starting to change where I live. The colder it gets, the more joint, muscle and neuropathic pain and fatigue I feel. I enjoyed walking with more ease during the warm summer and I would like to be as mobile and pain free as possible this winter. ****What are your recommendations for staying warm and more comfortable during the winter?****
I’m talking specific heating aids you recommend, blankets, special socks, whatever helps you that may help me and others reading this. I know the changing of the seasons can be a trigger with many chronic illnesses, so I want us to try to help each other during this transition to make it a little better than the year before. #ChronicIllness #Fibromyalgia #EhlersDanlosSyndrome #AutonomicDysfunction #RaynaudsPhenomenon

Better at giving good advice than taking it. How can I naturally give sound advice , but I have a hard time using my own advice to help myself . Why do my words tend to help others but it just goes in and out a ear when it comes to me. #depresison #MentalHealth #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #Anxiety