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Rest Can Be Triggering

If you have spent a lot of time in hospitals or institutions or forced to lie in bed, rest can be very triggering. When you spend long periods of your life forced not to do anything, rest can feel like a punishment. Medical and psychiatric trauma are real.

At this time of year, we can get a lot of messaging about rest and productivity that lack nuance. So this post is a shoutout to all of our sick, crip, mad, and disabled community out there who struggle with finding Crip space for rest. You are valid too.

ID: Rest can be triggering. Background photo of mountains against the sky on a full moon night.

#Disabled #bedbound #Bedrest #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Spoonie #SpoonieProblems #SpoonTheory #Holidays #PostexertionalMalaise

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World gone topsy-turvy: How many here struggling with vertigo (BPPV)?

Spending a lot of time in bed lately. My wife/caregiver is having another bout of benign paroxysmal positional vertigo (BPPV). It's an inner ear condition that goes away in days or weeks. Since she's been getting this 18 months ago, we've met several others who do too.

We already visited the ENT specialist. He prescribed exercises (Epley maneuver) and waiting it out. It's tough on her but keeping spirits up.

#multiplesclerosis #BPPV #Vertigo #Wheelchair #Bedrest #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

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Persistent Back Pain

I was a fitness freak and had an athletic build 13 years ago. But due to back injury I had to avoid strength training. I have been on antidepressants for the last 17 years. In 2015 I got married. We didn't have baby until 2020. But recently the pain in my joints have become constant and more acute. Earlier one painkiller or 2 day's #Bedrest could ward off the pain for months. But now neither is working. Rehab exercises cripples me. Doctor says I don't have major internal problems other than the #Creatinine level above higher side.
I am 36 and it pains me a lot when I see my newly arrived 5 months old miracle baby smiles at me. Holding her taxes my body. I and my wife, who is also suffering wrist pain, are alone and we haven't got help. If I attempt to give some helping hand to my wife, a vicious cycle of pain and helplessness begins. I am also facing financial crisis. I am afraid that either my life is going to be a short one or I am heading towards disability very fast, which I never expected some months ago. I needed to vent this out.

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Persistent Back Pain

I was a fitness freak and had an athletic build 13 years ago. But due to back injury I had to avoid strength training. I have been on antidepressants for the last 17 years. In 2015 I got married. We didn't have baby until 2020. But recently the pain in my joints have become constant and more acute. Earlier one painkiller or 2 day's #Bedrest could ward off the pain for months. But now neither is working. Rehab exercises cripples me. Doctor says I don't have major internal problems other than the #Creatinine level above higher side.
I am 36 and it pains me a lot when I see my newly arrived 5 months old miracle baby smiles at me. Holding her taxes my body. I and my wife, who is also suffering wrist pain, are alone and we haven't got help. If I attempt to give some helping hand to my wife, a vicious cycle of pain and helplessness begins. I am also facing financial crisis. I am afraid that either my life is going to be a short one or I am heading towards disability very fast, which I never expected some months ago. I needed to vent this out.

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Feeling sad, upset and emotional today. #CheckInWithMe

Having a low day today, I’m upset about something, but my mind can’t figure out why. It could be because I’m exhausted. Haven’t slept well in days, weeks even. It could be because my operation failed within 3 days, so my recovery feels like it’s for nothing. It could be because I’m sick of having this endless flare up. The one that every coping method I have, isn’t working at all. It could be everything combined.

I want to be the one most people see. The positive, smiley one. The one that doesn’t show the agony she’s in, and never complains. The one that’s positive all the time, and helps others before herself, no matter what she faces. But the truth is, when I’m not at work, college or with friends, I’m a moody bitch. I’m in bed, in tears, trying to hide them from the rest of the family because I want no sympathy. The one that’s angry, mad, annoyed, fearful of what’s to come next. I’m not always happy. That’s the truth.

#Osteoarthritis #CerebralPalsy #Hemiplegia #ChronicPain #DDH #Upset #sad #SleepDeprivation #Operation #ChronicIllness #Recovery #Bedrest #FeelingAlone #Feelingoverwhelmed #feelingscared #Arthritis

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