Blindness

Today I went to the ophthalmologist that did my congenital cataracts surgery to ask her for an opinion on what might have happened to my eyes for me to lose so much sight.
I was already low vision before but then I got legally blind, but no answer given from any ophthalmologist I’ve visited so far.
She told me, she gave me a name for my condition, a diagnosis and that’s so much relieving as now I have an answer.
Retinal/Macular Dystrophy is the condition. She told me usually congenital cataracts comes with something more, but my condition was from a genetic form that would only show signs at the age it started back in 2021, so it slipped undiagnosed.
Unfortunately I now know I can never have the little sight I had back, I will have to remain legally blind, but that’s fine.
Retinal/Macular Dystrophy is degenerating so what I can do is support with some vitamins that aren’t found in food, unfortunately they’re a bit expensive but I’ll see what I can do. But having the vitamins I can stabilize and slow down my condition, I might be able to retain the very little sight I still have.
So yeah, great news and I can finally rest in peace about it, I now know it’s not likely I’ll sleep and wake up to nothingness. Also my vitreous humour is almost fully detached and she said it’s not a bad thing, it’s actually good, because it prevents a potential retinal detachment so even me having a high tendency for one, it won’t happen so easily.

I heard about this method for over a year. Had to answer maths questions about it with those classic problems “x is using pomodoro method and is studying for h minutes and resting for k minutes. When will x be resting based on the info x will study from 9:00 to 18:00.” and then 5 alternatives to choose certain moments.
This method got me spiteful for hearing about it so much, but here I am, preparing to sleep, having more stuff than I should to study tomorrow, and needing an entire day for that. Will go for 45min studying and 15min rest.
I might not see my grandpa as a wise person for a LOT of reasons. But one phrase he told me when I was little “you got a first time for everything”, and of course not taking the every absolutely, he’s right so far.
Those are moments we surely bite our tongues and comply. 😴

Time Blindness
Most neurodivergent people struggle with something called time blindness, which is an impaired ability to perceive and manage time accurately. This means that time blindness can cause neurodivergent people to experience issues like procrastination, keeping track of time, and getting to places late. Thankfully there are some strategies that can help people overcome time blindness like creating a schedule or routine, setting timers and reminders, breaking down tasks into more manageable steps, and seeking professional help.

I've been in a very dark moment, I am living with government aid and it's barely enough. Family is basically pressuring me on getting a job and they don't realize that I try, and I try, and I try! They don't live my reality, although some of my family members are also autistic, they handle it way better than me, since I'm level 2 of support, I am far from able to get a grip and hold tight when things go south for me. I have severe depression alongside with anxiety and PTSD, that in my opinion slow even more my life.

But that's not the worst, although it does harm my career choice or any social related situation. The worst is the prejudice I get... I have a great resumé, full of experience, I speak three languages and I am learning four more for gods sakes! I've been to courses and done a lot of online learning to buff my skills. But as soon as a recruiter see I'm blind, I'm turned away, they think I'm useless, they think hiring me will mean having to basically hire a babysitter to lead me to the restroom when needed, they probably think that all accessibility needs will be expensive when just by installing a free screen reader on a computer (NVDA) is basically everything I need.

I got to work in a library targeted for blind people, but the amount of abuse I got, and an almost death experience that was brushed off and my boss told me that I should have stayed in the library waiting for my allergic reaction to go away, I was in biomedical science uni at that moment and my pathology professor told me I was really lucky to survive.

I apply for job opportunities I'm very capable of doing the requirements, but apparently I'll always be dismissed because I'm disabled, or worse, I recently found a job opportunity that I didn't apply for because our minimum wage is BRL1,518.00 and the salary they were proposing was BRL1,500.00; it feels humiliating and also make me feel in a position that I don't have the dignity of being treated as a human being, because just by being disabled I'm not worth paying the BRL18.00 to achieve a minimum wage. By the way, that job opportunity was targeted for disabled people as here in Brazil we have laws that protect disabled people from not being hired, well at least in theory, because in real life, prejudice will always exist and hiring teams usually will pick the "less" disabled person. Because a person that lacks a single finger is disabled so let's hire the person missing a finger instead of hiring the person on a wheelchair, a blind person, a deaf person, and so on. I don't want to sound bitter against those that are hired because they don't have a finger, that must be very uncomfortable to live without, but it take the chances for people that need higher accomodations to work and surviving by government aid is basically impossible.

I’m here, darling. Lost with blindness and also maternal German measles or rubella and microcephaly and other conditions do this related to reading memory and cognition, learning performance and coordination, balance, and gate specifically and gate issues and coordination issues among other things with other comorbidities. I want to get involved with others who may have had these conditions fallen into the cracks and or have not have opportunities to be diagnosed in childhood and or I’ve had problems during school although I thought I was smart. I have had problems getting around keeping all and navigating and navigating and and reading. I’m also interested in Technologies Therapy and Technologies to help for these types of issues. I’m interested in for other people I’ve had other experiences and what they have had. And I’m 57 years old with no light perception and also with a circadian irregular sleep disturbance and irregular circadian rhythm disorder with sleep and difficulties with executive functioning focus, hyper focus, and switching from one task to another low tolerance for frustration and other mannerisms. I have also had difficulties in adulthood, trying to find professional, occupational therapist and professionals who worked with people with non-vision with these difficulties and to get resources and help. And some wondering what other experiences people have had with these types of conditions and how you get help or how they got help and what they did. I have some difficulties with expression have had speech therapy as a child, but have a speechless that I’m somewhat unaware of that I’ve been told so I have that. I also have difficulties typing and using touch screens and dictating soft keyboards and using AI assistance. So I do have disturbances in the brain no seizures, but disturbances and difficult planning and doing routines and mental scattered and those types of issues. I’m not a role learner and many more since experience perception and Can say action movement hands on motor sensory and other ways of learning, drama and metaphor and association in using association for and I am not a role learner I am not good with memorization so that I am not. So I do learn differently and I’ve had not very good experiences in either residential or public or higher educational settings. Sometimes I have to re-read and listen to things being described several times to pick it up. I have a slow process speed. What experiences of others had in this situations and what and how they dealt with them in what experiences I’ve had. No heart issues or hearing issues of those type of things but no muscle tone I think. In the other questions for me, let me know. Questions for you again what experiences of others had with these conditions or any of these conditions and what do you do? How do you abdicate and how do you doit difficult for me to do because a lot of people don’t listen to somebody unless they are professional, even if they are ex experien And I’ve tried to do some drawing and other things dancing and some other things. Sometimes difficult to learn things with my work memory issues. So how do you compensate for for that if anybody has had those issues? What do you do. So that’s so that’s me. Interested to hear back in any of the forms.

Hello! I haven’t been active in a couple of years! But I think I’m going to be active once again. So I hope you guys don’t mind but I would love to spread awareness about blindness and other disabilities and, I was on next-door and literally they’re not the best for disability. What happened was I was sending informational links about disability and links that led to such as things such as applevis I asked if anyone around my neighborhood would like to volunteer at the Anaheim Braille Institute center, basically my links had no way of staying there and mind you that they were all informational but, that didn’t matter to them so, I hope you guys don’t mind if I do that sort of thing here. Oh and foster sense of community I mean I know it’s not in my own neighborhood which I don’t know if anyone lives in the Orange County area that is on here but if you guys do, I can actually create a group for my neighborhood if there’s anybody in my area.

I thought that this was something I didn't suffer from but having an ear blocked with wax over several days has made me reconsider the symptom. With the wax I can still hear but in a muffled way. It's like the migraine. When I used to have it, it was like it was one eye and although I could see out of it (not blackness like I assumed it was meant to be), it was like everything was two dimensional (no depth/ flat).