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Stripes & Stars of Rare Disease by Melanie R. #RareDisease #ChronicFatigue #MitochondrialDisease #IdiopathicIntracranialHypertension #ChronicPain #InsideTheMighty

Stripes & Stars of Rare Disease
By Melanie R.

Our faith as our anchor.
Our hope’s guiding light!

Amidst all the struggle,
we share in our plight.

Bringing awareness;
to comfort and guide.

To face rare disease
locked arms-
side-by-side.

A journey set forth,
uneven terrain.

Traveling on suffering,
forged purpose in pain.

A chorus of voices
uniting in song-
ring out together,
but battles go on…

Our trials and triumphs,
resilience and strength,
brought us all here
on rare disease day!

So join us in chorus,
wear stripes to support-
our healing begins,
it starts in our heart.

For stripes shine like stars,
by stripes we are healed,
Restoral by scars
Our voices they hear.

Remember Rare Disease Day is February 29th, 2024!
We share in the suffering and the glory!
Stay strong and God bless you all in a mighty, mighty way!

#ChronicIllness #ChronicPain #IrritableBowelSyndromeIBS #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #InsideTheMighty #MightyPoets #MightyTogether #christiansonmighty

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I Surrender All #ChronicIllness #ChronicPain #IrritableBowelSyndromeIBS #RheumatoidArthritis #MitochondrialDisease #CheckInWithMe #christiansonmighty

🎶I surrender all! How great is thy faithfulness!
I surrender, and lay upon your feet not only in pain, but in praise for how great your faithfulness is.
You Lord are my praise!
I'm upheld in your righteous hand, and have already been restored! Although scarred and healing, you have bound my wounds. I have been spared, and you heard me when I called out to you in my distress. Each tear was bottled. My spirit was not crushed in pain.

Mark 5:34
And He said to her, "Daughter, your faith has made you well; go in peace, and be free from your suffering!"

Mark 9:23
"If you can?”, said Jesus. "Everything is possible for one who believes."

3 John:2
Dear friend, I pray that you may enjoy good health, and all that may go well with you; even as your soul is getting along well.

Romans 8:15-17
So that you have not received a spirit of fear that makes you fearful slaves. Instead, you receive God’s spirit when He adopted you as His own children. Now we call him, “Abba, Father.” For His spirit joins with our spirit to affirm that we are God’s children. And since we are his children, we are His heirs. In fact, we are heirs of God’s Glory! But if we are to share in His Glory, we must also to share His suffering.

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Scars and Healing #ChronicIllness #ChronicPain #RheumatoidArthritis #MitochondrialDisease #SjogrensSyndrome #IrritableBowelSyndromeIBS #CheckInWithMe

Scars and Healing

Scars by definition are a healed wound. Think about the scars you’ve collected on your body throughout your life.
The painful bumps and bruises, falls and surgeries that formed raised cuts that were once bleeding, and needed tending to in the process toward ultimate healing.
You cleaned, bandaged, checked to ensure there were no infection, and overtime witnessed, and experienced the miracle of healing. A lasting symbol of pain, time, and healing forming a perfect imperfect scar now in its place.
Resurrected Jesus chose to keep the scars in His hands, and feet, even after ascension, as a reminder to us of all he endured for us as a living sacrifice.
A sign of victory over death!
Jesus knew the doubting Thomas’s of the world would not believe unless they saw with their own eyes the scars of His suffering.
A correlation to some of the struggles of invisible illness and chronic pain itself, as some symptoms cannot be seen.
I scan my body over the countless scars,…seen and unseen. Some on my body, and some on my heart, but through life’s suffering, I have been transformed to a scar of healing.
My scars are victory over pain! An overcoming with unabounding strength (chadzek) to persevere in chronic illness, and life’s true purpose!
My countless surgery scars are a reminder of my calling to use my voice, and all I’ve healed along the way.
Each scar was painfully earned through a process of long-suffering and healing; and my voice will give praise, honor, and glory!
In my story, as I sing this song of hope of full restoration, I too, have chosen to keep my healed scars as my testimony of sealed faith to our Glorious Father!
My question to you is, will you keep your scars?

#christiansonmighty #IfYouFeelHopeless #InsideTheMighty #CheckInWithMe #Caregiving #Gastroparesis #BackPain #CentralPainSyndrome #ComplexRegionalPainSyndrome #MightyTogether #christiansonthemighty

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