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Stripes & Stars of Rare Disease by Melanie R. #RareDisease #ChronicFatigue #MitochondrialDisease #IdiopathicIntracranialHypertension #ChronicPain #InsideTheMighty

Stripes & Stars of Rare Disease
By Melanie R.

Our faith as our anchor.
Our hope’s guiding light!

Amidst all the struggle,
we share in our plight.

Bringing awareness;
to comfort and guide.

To face rare disease
locked arms-
side-by-side.

A journey set forth,
uneven terrain.

Traveling on suffering,
forged purpose in pain.

A chorus of voices
uniting in song-
ring out together,
but battles go on…

Our trials and triumphs,
resilience and strength,
brought us all here
on rare disease day!

So join us in chorus,
wear stripes to support-
our healing begins,
it starts in our heart.

For stripes shine like stars,
by stripes we are healed,
Restoral by scars
Our voices they hear.

Remember Rare Disease Day is February 29th, 2024!
We share in the suffering and the glory!
Stay strong and God bless you all in a mighty, mighty way!

#ChronicIllness #ChronicPain #IrritableBowelSyndromeIBS #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #InsideTheMighty #MightyPoets #MightyTogether #christiansonmighty

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Mount Calvary by Melanie R.

Mount Calvary

They don’t mind to see me-
my blood and body thinned.
My bruises of the beatings,
physical weakness I’ve been in.
Wrapped up in all their doings,
scoffing-
walking by.
Obscured to all the suffering,
the price –
the prayers I’ve cried.

I’m up here on my cross,
I wish that they could see,
the moments that I suffer through the pain…the misery.
Have they come to mock me?
Rather than reprieve?
Do they like to see me suffer?,
with every breath I breathe?

Said if I was anointed,
meander my way down-
If I’m a chosen one of God,
put on my rightful crown.
They plundered and they pilfered,
all that I had left…
and only came to watch me die
atop this mountain cliff!!

No broken bones
but wounds to bear.
Water and blood,
A scar formed there.
A symbol of true suffering
brought down upon The Mighty King.

It’s done –
it has been finished!
His story that will reign!
If we share in of His suffering,
our glory’s shared in pain.

He kept His scars
hands, feet, and side
to prove His love,
His sacrifice.

To all my friends,
it won’t be long.
Put on your cross,
and just hold strong!
Trust Jesus has the victory,
saved since that day on Calvary!

#ChronicIllness #ChronicPain #MitochondrialDisease #sjogrens #BackPain #RheumatoidArthritis #MightyPoets #Christians #MightyTogether #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies

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