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What CAN you do today?

Stuck in a 5 day flare. Thoracic Outlet Syndrome affects my entire left side and makes it hard to move. Yesterday, I could barely walk through the mall without stopping and leaning against a wall. It causes such unbearable pain, stiffness and fatigue.

They say get out of the house when you don’t feel well, it will make you feel better. Sometimes, it's better to rest and stay home. I’m still only able to walk small distances today.

Days like these are mental days. Where my hands and body don’t work well enough to do much at all.

Too much time spent in my head day. Watching what others can do.

Fighting back tears day, and trying to be strong.

Dreaming day. Dreaming of the day I can be more than this.

Angry day. Angry that I can’t do what I’m dreaming of.

These days I need people to distract me, but I’m so in my head it’s hard to pretend I’m ok.

Yesterday, I was able to look up and take this photo, even though I was stuck in the chair because I could no longer walk through the mall.

Today, I was able to make this post.

What CAN you do today?
#teetheredcord #ThoracicOutletSyndrome #ChronicIllnessEDS #EhlersDanlosSyndromes #MentalHealth #ChronicPain #ChronicFatigue #RareDisease #Fibromyalgia #Chronicpainsucks #chronicpainlife #chronicpainawareness #chronicpainartist #Hope #Dream #fibrowarrior #ehlersdanlostype3 #EhlersDanlosSyndrome

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How do you cope? #Pain #ComplexRegionalPainSyndrome

On a high pain day I will often make friends with the couch and a soft blanket. Bob (the cat) seems to know. His solution is to insert himself under the soft blanket with me on the couch. The only things that will move him are potty needs, meals and treats. Other than that I've got a furry, immovable brick nurse of a cat. #ChronicPain #Chronicpainsucks

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#iambeautiful #iamsomebody #GoodVibes

#antidepressents #MDD
I have a psychiatrist and a psychologist to help me maintain my MDD. I would be lost without them.
I’m on Topiramate, Trileptal, Pristiq, Clonazepam and Trazadone. I just had a total knee replacement. Pain medication is Oxycodone and Percocets.
I am still me. Pain, anger, anxiety and depression are just triggers associated with me. I am valuable!!

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What does it take to get through to some hardheaded physicians? ##Chronicpainsucks

You know it’s pretty bad when your own physician gets ‘upset’ with you when you are the one with traumatic brain injuries and/or mental health disorders. Geez, I could have sworn that the first line of the Hippocratic Oath states: first, do no harm!
Did that change or is my mind playing a trick on me? ##Whoistherealpatient ?