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    Community Voices

    Missing Friendship - Can anybody relate?

    Feeling a bit lonely today guys, can anyone advise? ❤

    Probably like a few of you on here lots of my 'friends' abandoned me 2 1/2 years ago when I got sick.

    I tried to stay positive as I had 3 separate girls who I thought were 'keepers' I've been hearing less and less replies from them over the past 6 months.

    Yesterday I messaged all 3, and none have replied. I feel even more lonely then before I messaged them.

    There's nothing worse than feeling alone, when having friends is something you want.

    I don't even know where to find anybody new. I find myself talking too much to anyone now doctors, nurses etc. Just because I don't have anybody else. It hurts.

    What is worse is that it's my 'best friends' and my 10 year anniversary since we met this month, we were literally so close this is something we would have celebrated. she doesn't seem interested. She was like my family but seems to have moved on with new friends, as she's moved to another nearby town.

    When she does message me im always hearing about a 'friend' when I ask what she's been up to.

    Messages used to be often but now it's always 'sorry I didn't realise I didn't reply' or 'sorry I didn't send a reply i typed' or 'I completely forgot to reply' daily now. Where she's obviously messaging others and forgets about me.

    I just feel at such a loss. I'm lucky to have an amazing husband but it's not the same as girl time.

    Can anybody else relate? Sorry for rant. Happy Sunday everybody lots of love xx

    #lonely  #Friendship  #Friends  #COVID  #longcovid  #longhauler  #CFS  #ChronicFatigue  #Fatigue  #Autism  #ADHD  #UndifferentiatedConnectiveTissueDisease  #UCTD  #MixedConnectiveTissueDisease  #hiatushernia  #housebound  #CheckInWithMe  #lookingforchat  #lookingforfriendship  #UK  #England

    15 people are talking about this
    Community Voices
    Community Voices

    Nature is My Best Medicine

    <p>Nature is My Best Medicine</p>
    5 people are talking about this
    Community Voices

    Bright colours for a dull day! #knitting #knittherapy

    <p>Bright colours for a dull day! <a class="tm-topic-link ugc-topic" title="knitting" href="/topic/knitting/" data-id="5c477be95afb6900c95380ca" data-name="knitting" aria-label="hashtag knitting">#knitting</a>  <a class="tm-topic-link ugc-topic" title="knittherapy" href="/topic/knittherapy/" data-id="5f4ff04dbfe38000dfdeb848" data-name="knittherapy" aria-label="hashtag knittherapy">#knittherapy</a> </p>
    30 people are talking about this
    Community Voices

    I'm having a very hard time being compassionate towards a vast majority of people who were never compassionate to me.

    I'm having a very hard time coping with anger, bitterness, resentment, and disgust.

    I'm having a hard time staying aware, because seeing "how to cope" information is triggering, since that information was not readily available when I asked for it.

    I'm having a hard time finding ways and places appropriate to express these strong negative emotions, to unpack them, or to process them.

    I am feeling left behind, again.

    As the world plays catch up with itself, desperately trying to learn skills as a community that I had to learn alone, our needs are again dismissed, my anger inappropriate, my criticisms too harsh, my existence, still, inconvenient.

    Disabled and dismissed when my needs are invisible.
    Disabled and dismissed when my needs are seen and understood.

    #ChronicIllness #ChronicFatigue   #MentalHealth  #housebound   #bedbound

    11 people are talking about this
    Community Voices

    Alone with my thoughts

    <p>Alone with my thoughts</p>
    Community Voices

    Secrecy/Buried in Depth/Invisibility

    I bury you, deep beneath the confines of my bones,
    hoping that in time you’ll disappear
    in the dust of a foreign country
    whose Mother Tongue you speak so fluently.
    I bury you, deep.
    I bury you, deep within the shelter of my insecurities
    how could I have known you’d make a home,
    cushioned by lies and blanketed by stigma
    your conniving whispers soon became my identity.
    I bury you, deep inside the only country I’ll ever call Home
    and you spread like wildfire.
    An invisible disease,
    that I could not control, could not articulate
    yet still you waged a Civil War that could not be satisfied by famine
    because you were hungry for blood.
    You waged a Civil War
    inside the country I should call Home.
    You waged a Civil War
    Inside a country I cannot escape/
    /I buried you, deep underneath my consciousness
    believing that if I didn’t give you attention you’d dissipate/
    /but you used that time to your advantage...

    #BorderlinePersonalityDisorder #Anxiety #mentalhealthwriting #BulimiaNervosa #BodyDysmorphicDisorder #HighlysensitivePerson #Selfharm #MentalHealth #ChronicPain #youarenotalone #housebound #MentalHealthStigma

    2 people are talking about this
    Community Voices
    Community Voices

    I’ve had back problems since 15ish and I’m now 23. Nerve pain, numbness, pins and needles, muscle spasms etc. Lower back, hips, pelvis, legs, arms all affected. The most I’ve gotten out of any “professional” for the cause is juvenile DDD possibly early onset of arthritis. I’ve been thrown hundreds of different medications all with horrific side affects. I’ve read every single one of my MRI reports and there is a lot happening to my 23 year old spine that shouldn’t be. But there’s no real help for someone like me. “It’s not an infection or cancer so we’re not likely to do anything” I was once told. I’ve been housebound more or less for 7 weeks now. I can feel the things happening inside my body and the pain it’s causing but if it isn’t visible then I guess it doesn’t really exist, right? What do people like me do. #DegenerativeDiscDisease #ChronicSpinePain #Arthritis #ChronicPain #housebound #Depression

    7 people are talking about this
    Community Voices

    Can anyone explain how fibro symptoms are so unpredictable? #Fibromyalgia #chronic pain #Depression #Anxiety #housebound

    My fibromyalgia symptoms have been progressive over the years but then strangely my symptoms can disappear
    I have gone from needing a wheelchair to barely experiencing any pain or fatigue. I have had relapses in the past but I find it so mysterious

    2 people are talking about this