ConnectiveTissueDisorder

Do you ever feel the bite
Of the wolves that haunt the night…
Do you ever hate the sting
Of feeling everything…
Cross your heart and hope to die
Look that monster in the eye

Hold on lightning
Don't close your eyes when it's frightening
Let that thunder grow
Through the ages
You open up all the cages and
Hold that spirit
Hold that spirit close

Have you ever felt alone
In the shadow of your home…
Have you ever felt like you
Could fall and slip right through…
Cross your heart and hope to die
Look that monster in the eye

Hold on lightning
Don't close your eyes when it's frightening
Let that thunder grow
Through the ages
You open up all the cages and
Hold that spirit
Hold that spirit close…

Cross your heart and hope to die
Look that monster in the eye
Cross your heart and hope to die
Look that monster in the eye…

Hold on lightning
Don't close your eyes when it's frightening
Let that thunder grow
Through the ages
We open up all the cages and
Hold that spirit
Hold that spirit close
Hold that spirit close

#artastherapy #Music #Lyrics #LifeChallenges #Relationships #ChronicIllness #ChronicPain #CPTSD #audhd #Anxiety #ConnectiveTissueDisorder #Grief #MentalHealth #Healing

#artastherapy #ChronicIllness #ChronicPain #ConnectiveTissueDisorder #Disability #MightyTogether

But the weather is a little cooler in my hot, very humid part of the world. And I can feel the temperature relief inside my house tonight, so that is nice.

#artastherapy #ChronicIllness #ChronicPain #ConnectiveTissueDisorder #Grief #Autism #Anxiety #MentalHealth #MightyTogether #Glimmers

Joint hypermobility (and Ehlers Danlos) is more common amongst neurodivergent people than the general population. I didn’t learn this until adulthood, but it has had an impact on my overall health all my life nonetheless. Due to hypermobility, my right shoulder pops out of its socket while I sleep— not a fun way to wake up!!

Do you have joint hypermobility or consider yourself to be double-jointed? How does it affect you?

#BenignHypermobilityJointSyndrome #EhlersDanlosSyndrome #Hypermobility #AspergersSyndrome #bhjs #EDS #InvisibleDisability #bendy #ConnectiveTissueDisorder

Have you been diagnosed with craniocervical instability? I was diagnosed yesterday and I'm so frightened of it all. If anyone has it or has had it I'd really appreciate if you share your experiences and opinions about it with me. It's always easier to cope with something when you know youre not alone. #CCI #Craniocervicalinstability #EDS #HEDS #hypermobileehlers-DanlosSyndrome(hEDS) #HypermobileTypeEDS #MyalgicEncephalomyelitis #ME #ChronicFatigueSyndromeampME #ConnectiveTissueDisorder #GeneticDisorders #Zebras #MedicalZebra #CervicalInstability

There's a vulnerable post up on my Instagram @theburdenofstars about these puppies, if you folks have any medically or physically specific questions about using them and their effect, or acquiring them, I'd love to answer!

#EDS #ehlers-danlos #ConnectiveTissueDisorder #Braces #fallenarches

I’ve had a multitude of surgeries to repair the damage caused by the 100s and 100s of dislocations I’ve experienced over the course of my lifetime. I read somewhere a while back that surgery was actually not as successful for EDS patients due to it being a genetic condition (which seems to be my experience with repeat surgeries or post-op complications).

👉 So here are my questions for you bendy folks:

• How have your surgical experiences been?
• Have you had success with surgery?
• Have you had more complications post-op?
• How has your ortho team navigated EDS-related complications?

Thank in advance for sharing your perspective! 🙏

#EhlersDanlosSyndrome #HypermobileType #HypermobileTypeEDS #TheBendyBunch #RareDisease #ConnectiveTissueDisorder #Surgery