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#Having a bad mental day # #Cycling rapidly # want it to stop # I can’t take much more # 4 weeks now

Never added a new post before. I’m locked in my room because I don’t wanna be around anybody. Because I don’t want them to subject down to my mental horror. One day up one day Down one day up one day down. It makes me so exhausted. My roommates don’t understand me. I have a boyfriend that tries really hard. Been a week since I’ve been in the shower. I would just like to wake up and be normal whatever normal is. And be happy for longer than a day or two. But then when I’m happy and wondering how God when is it going to start again. Or is this for real or is she just my mind playing tricks. I do take my medicine as directed and I do not miss a dose. I couldn’t get an appointment till the middle of September but I need one now. I’m going to close for now

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The Beginning of my Weight Loss Journey!

Just as the title says; this is the beginning of my weight loss journey. I’m cycling nearly every day and I feel better for it. This photo will be used as a “BEFORE” picture that I’ll use against my AFTER picture when I lose weight.

(Please excuse the mess, I was in my mums room).

#ChrinicIllnessWarrior #ChronicHealthConditions #POTS #EDS #BPD #NAFLD #Diabetes #InterstitialCystitis #LosingWeight #Cycling #BeforePhoto


I don’t think I’ve ever been more proud of myself.

I should explain that four years ago I lost a job I loved because of my illnesses. I worked as a theatre support worker during operations at a nearby hospital.

I absolutely loved that job. I tried so hard to always be a model employee, to do my job well. But one day, during a kidney removal I started to suddenly feel hot and tingly all over. When I woke up I was in a hospital bed; the nurses and staff in the operating theatre had carried me onto a trolley and sent me around to A&E.

I discovered soon after that accident that I’d developed Postural Orthostatic Tachycardia Syndrome... I was given time off work but eventually theu decided to cut
me loose. And along with the POTS my bladder condition (insterstital cystitis) started to flare up and I ended up on morphine for a while. Luckily, I managed to kick that habit and now I’m taking Dihydrocodeine for my bladder and the joint pain I get from Ehler’s Danlos Syndrome.

Naturally, after I lost my job I was devasted. I fell into a deep depression. My health continued to get worth. It seemed like every time I went to the hospital for a check up, I was told I had something else wrong with me. Like Non-Alcoholic Fatty Liver Disease thats turned into Cirrohsis, and shortly after THAT diagnosis I was diagnosed with Type 2 Diabetes and I’m currently waiting for an Endoscopy on my stomach because I seem to have nearly all the symptoms of stomach ulcers.

I started to neglect myself. I didn’t take my medication, I stopped looking up and down the street before crossing the road, I stopped showing/bathing regularly. I’d go weeks, (which is gross - I know) without cleaning myself up. Everything was so exhausting. And I just didn’t have the energy.

A few weeks ago, however, I decided to start taking care of myself. I started taking my medication on time every day, I started bathing three times a week (our boiler is small and there are 5 of us in this house), I started styling my hair and putting on my face creams and wearing a little bit of make up. I feel good. But even more than all of this I’m exercising at least once every other day on my new bike.

I know these things are so small and don’t mean much... But I’m so proud of how far I’ve come.

#chronicillnesswarriors #ChronicHealthConditions #POTSUK #EDS #NAFLD #BPD #InterstitialCystitis #Diabetes #feelingbetter #Proudofmyself #Pleased #Being Sensible #LosingWeight #Cycling

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I bought myself a Fitbit Versa Lite!

Whilst it was on offer I bought myself a Fitbit Versa Lite to help me keep track of what I eat, how and when I exercise, etc.

I’m having a rest day today - I really hurt my knees by pushing myself just past my limit on the bike.

My family and friends are being so so supportive and it’s making me feel pretty great.

#chronicillnesswarrior #ChronicHealthConditions #POTS #POTSUK #EDS #BPD #NAFLD #Diabetes #InterstitialCystitis #Exercise #Cycling #feelingfree


I’m being so good and I’m feeling stronger!

For the longest time, I didn’t take my meds at the time I was supposed to. I was always late taking them. But for the last month, since I was put on Gliclazide (a diabetic medication used to lower your blood sugar quickly) I’ve been taking my medication religiously. At the exact right time or on the dot. And I feel so so much better for it.

I’ve been cycling for at least 20minutes nearly every day since I bought the bike on the 19th May. I feel so much stronger. It’s gotten to a point where I actually like the ache that’s left in my legs after I’ve finished cycling.

Just being able to do something that helps my body AND have it be something I really enjoy is amazing. I don’t feel lazy anymore. I don’t feel useless and powerless. I’m truly happy.

#chronicillnesswarrior #ChronicHealthConditions #POTS #POTSUK #EDS #BPD #NAFLD #Diabetes #InterstitialCystitis #Exercise #Bike #Cycling #feelingbetter #BeingGood


I’m in better shape than I originally thought!

It’s been three days since I picked up my bike. I’ve gone out every day on it but I don’t think I’m pushing myself far enough - I don’t have any muscle aches or anything. Which is crazy! I haven’t ridden a bike in probably 10 years or more!

I feel like I SHOULD be aching a bit, and that since I’m not, I’m not pushing myself hard enough to get any benefit from it. My mum says that she’s aching all over from it, but she’s doing less than me. It’s odd.

But I’m loving going out for bike rides. I love the freedom I get with it. 😊

#chronicillnesswarrior #POTS #POTSUK #EDS #BPD #NAFLD #InterstitialCystitis #Diabetes #Cycling #BikeRides #Exercise #freedom

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I picked up my new bike yesterday!

Hey, everyone. For months I’ve been struggling to get the exercise I need to help my various health conditions. So a few weeks ago I started paying for a new bike. I always loved going on bike rides in my teen years - it’s a type of exercise I really enjoy and therefore won’t get bored of.

My mum (who is overweight like me but not sick) also got one. We cycled them home and I have to say... It was the best I’d felt in a long time. The gentle ache and burning in my muscles was amazing. For the first time in a long time I felt like I could do something RIGHT. That things were taking a step in the RIGHT direction. Forwards. Onwards and upwards.

I have about 80lbs that I need to lose and diabetes that needs to be better managed. This will hopefully give me the opportunity to help both. I’m so excited for my journey forwards.

#ChronicIllnesssWarrior #ChronicHealthConditions #PosturalOrthostaticTachycardiaSyndrome #POTSUK #NAFLD #EDS #BPD #Depression #Diabetes #LosingWeight #Cycling #movingforward #Exercise