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It's Monday

Hi Mighty community. Just wanted to pop on and say hi. No matter who you are or what you do/don't, you matter. #youmatter #chronicillnesswarriors

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What does it feel like? #ChronicPain #InterstitialCystitis #Neuropathy #chronicillnesswarriors

Describing the pain we feel is not an easy task. One day it can feel one way then the next intensified and a completely different pain. What does you chronic illnesses pain feel like?

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Turn that pain into education and awareness. Be a patient advocate. It’s an amazing feeling to turn the bad into good. #ChronicIllness #chronicillnesswarriors #builttoovercome #checkinwith me

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You are freaking awesome! #ChronicIllness #ChronicPain #chronicillnesswarriors #Depression #Anxiety #InterstitialCystitis #iffgd #Gastroparesis

It’s a great day to remind yourself not only are you enough but, you are freaking awesome. The strength God gives us to overcome is powerful in helping not only ourselves but others suffering the same illnesses. Make it great one!


I don’t think I’ve ever been more proud of myself.

I should explain that four years ago I lost a job I loved because of my illnesses. I worked as a theatre support worker during operations at a nearby hospital.

I absolutely loved that job. I tried so hard to always be a model employee, to do my job well. But one day, during a kidney removal I started to suddenly feel hot and tingly all over. When I woke up I was in a hospital bed; the nurses and staff in the operating theatre had carried me onto a trolley and sent me around to A&E.

I discovered soon after that accident that I’d developed Postural Orthostatic Tachycardia Syndrome... I was given time off work but eventually theu decided to cut
me loose. And along with the POTS my bladder condition (insterstital cystitis) started to flare up and I ended up on morphine for a while. Luckily, I managed to kick that habit and now I’m taking Dihydrocodeine for my bladder and the joint pain I get from Ehler’s Danlos Syndrome.

Naturally, after I lost my job I was devasted. I fell into a deep depression. My health continued to get worth. It seemed like every time I went to the hospital for a check up, I was told I had something else wrong with me. Like Non-Alcoholic Fatty Liver Disease thats turned into Cirrohsis, and shortly after THAT diagnosis I was diagnosed with Type 2 Diabetes and I’m currently waiting for an Endoscopy on my stomach because I seem to have nearly all the symptoms of stomach ulcers.

I started to neglect myself. I didn’t take my medication, I stopped looking up and down the street before crossing the road, I stopped showing/bathing regularly. I’d go weeks, (which is gross - I know) without cleaning myself up. Everything was so exhausting. And I just didn’t have the energy.

A few weeks ago, however, I decided to start taking care of myself. I started taking my medication on time every day, I started bathing three times a week (our boiler is small and there are 5 of us in this house), I started styling my hair and putting on my face creams and wearing a little bit of make up. I feel good. But even more than all of this I’m exercising at least once every other day on my new bike.

I know these things are so small and don’t mean much... But I’m so proud of how far I’ve come.

#chronicillnesswarriors #ChronicHealthConditions #POTSUK #EDS #NAFLD #BPD #InterstitialCystitis #Diabetes #feelingbetter #Proudofmyself #Pleased #Being Sensible #LosingWeight #Cycling


Would you like to follow my page?

So, a little over a year ago I created a page on Facebook. I post helpful information about the health conditions I have that other people can then use to their advantage. Like say if they want their parents or siblings or whoever to understand their illness they can use whatever I post. And other people can request what condition I post information about, if that makes sense. It also helps people with chronic illness connect.

The link is below!

#chronicillnessawareness #chronicillnesswarriors #POTS #ic #EDS #BPD #LiverDisease #NAFLD

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#KidneyStones & #Fibromyalgia

I have to have yet another surgery because there are 3 stones in my right kidney. I cried and screamed when I was finally alone with my thoughts because of the frustration. And that's ok. I'm allowed to get emotional because something else is happening. I'm allowed to be emotional because they are inserting a stent that causes me excruciating pain the entire time it's in. I will cope, and handle it like I always do, and be exhuasted and take weeks to recover when it's over- but I'll do it. It's what we do- we face each new problem and fight through it to survive because we ARE #chronicillnesswarriors even though some don't love the term. For some of us, it IS a constant battle💜