chronicillnesswarriors

Hi Mighty community. Just wanted to pop on and say hi. No matter who you are or what you do/don't, you matter. #youmatter #chronicillnesswarriors

I should explain that four years ago I lost a job I loved because of my illnesses. I worked as a theatre support worker during operations at a nearby hospital.

I absolutely loved that job. I tried so hard to always be a model employee, to do my job well. But one day, during a kidney removal I started to suddenly feel hot and tingly all over. When I woke up I was in a hospital bed; the nurses and staff in the operating theatre had carried me onto a trolley and sent me around to A&E.

I discovered soon after that accident that I’d developed Postural Orthostatic Tachycardia Syndrome... I was given time off work but eventually theu decided to cut
me loose. And along with the POTS my bladder condition (insterstital cystitis) started to flare up and I ended up on morphine for a while. Luckily, I managed to kick that habit and now I’m taking Dihydrocodeine for my bladder and the joint pain I get from Ehler’s Danlos Syndrome.

Naturally, after I lost my job I was devasted. I fell into a deep depression. My health continued to get worth. It seemed like every time I went to the hospital for a check up, I was told I had something else wrong with me. Like Non-Alcoholic Fatty Liver Disease thats turned into Cirrohsis, and shortly after THAT diagnosis I was diagnosed with Type 2 Diabetes and I’m currently waiting for an Endoscopy on my stomach because I seem to have nearly all the symptoms of stomach ulcers.

I started to neglect myself. I didn’t take my medication, I stopped looking up and down the street before crossing the road, I stopped showing/bathing regularly. I’d go weeks, (which is gross - I know) without cleaning myself up. Everything was so exhausting. And I just didn’t have the energy.

A few weeks ago, however, I decided to start taking care of myself. I started taking my medication on time every day, I started bathing three times a week (our boiler is small and there are 5 of us in this house), I started styling my hair and putting on my face creams and wearing a little bit of make up. I feel good. But even more than all of this I’m exercising at least once every other day on my new bike.

I know these things are so small and don’t mean much... But I’m so proud of how far I’ve come.

#chronicillnesswarriors #ChronicHealthConditions #POTSUK #EDS #NAFLD #BPD #InterstitialCystitis #Diabetes #feelingbetter #Proudofmyself #Pleased #Being Sensible #LosingWeight #Cycling

So, a little over a year ago I created a page on Facebook. I post helpful information about the health conditions I have that other people can then use to their advantage. Like say if they want their parents or siblings or whoever to understand their illness they can use whatever I post. And other people can request what condition I post information about, if that makes sense. It also helps people with chronic illness connect.

The link is below!

m.facebook.com/FloorHuggerSince2016

#chronicillnessawareness #chronicillnesswarriors #POTS #ic #EDS #BPD #LiverDisease #NAFLD

YOU ROCK MIGHTIES #mightywarriors #spooniewarriors
Feeling encouraged by all my Mighty Warrior Framily Members today! 💪🥄💜🦁🙏💕
Keep rockin #mighties #mightywarriors #spooniewarriors #rarediseasewarriors #mentalhealthwarriors #chronicillnesswarriors #Chronicpainwarriors #mightyframily #spoonieframily #Friends
Sending you all "LOVE HUGS SPOONS" 💕🥄

#ChronicIllness