Epilepsy

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Can I point this out for family and friends if you have loved one with epilepsy who sleeps in random places and can’t help it but doesn’t do it on purpose. Please DONT wake them up let them sleep until they wake up they might feel embarrassed and also you too and that is ok! I randomly feel asleep at church and i can’t help it, and that is ok.

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I’m new here!

Hi, my name is Dutchie. I'm looking for some socialising since no one in my own network is known with PTSD nor Epilepsy. They all care for me but they really don’t understand how it feels to live with PTSD, so just looking for people who can relate to those feels and are willing to maybe talk about it?

#MightyTogether #PTSD

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I'm new here!

Hi, my name Nicole. I was diagnosed with Focal Impaired Awareness Epilepsy approx. 8 years ago. When I first got diagnosed with epilepsy, the doctors were aware that I would talk, walk and do things that I was unaware of and could not recall anything later. Some of these things were videoed taped by my husband. However, it wasn't until recent that a specialist told us that it was the postictal period, after the seizure where these episodes were happening. The seizure only last two minutes but the postictal goes on after the seizure. My seizures take approx. 30 to 45 min from beginning to end. My husband will start recording when he sees the seizure starting and then starts talking to me. When he finally believes the response sounds current, we know that I am coming out of the seizure. So....I say all of this to ask is anyone else struggling with this and what do you do, or what has your doctor prescribed.

#MightyTogether

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I'm new here!

Hi, my name is jkenniv. I'm here because my daughter, age 4, has cerebral palsy, epilepsy, and is developmentally delayed and I want to learn more about how best to care for her and provide her with the tools she needs to succeed and thrive in life.

#MightyTogether

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I need advice

I’m scared So me and my sister went to a town. We went to a store and I was not talking English. Then I remembered waiting for a seat and then the rest is black and all of a sudden It feels so bright. I was walking and talking from what my sister says I don’t know why I tried google but i could only find alcohol related. I don’t drink I’m on medication #Anxiety #Spoonie #BrainTumor #SeizureDisorder #Epilepsy #ChronicIllness

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Told I was anxious by a homeless man

I do a soup run with my church once a month but due to my social anxiety and psychosis I didn’t do it for six months as i obviously couldn’t leave the house and it took me a while before I was on the rota again. Tonight I was with the group and handing out the food and suddenly a homeless guy comes up to me and says he has ADHD and mild autism and can smell my anxiety a mile off and that I’m doing great and I just need to breathe! I must’ve been more nervous than I thought about doing it!
That was very nice of him! I’ve often wondered whether I have autism though- my mum said I used to have meltdowns as I child and bash my head etc and I still get them now! I’m in my early 40s!
Funnily enough my best friend has just been diagnosed with it, which is a bit strange. She doesn’t have any of the signs.
I have a fascination with numbers too! I’m obsessed with religious life (I was nearly a nun but left and I still go on retreats now!)
I haven’t brought it up with my doctors though- do you think I should?
#Anxiety
#Depression
#Epilepsy
#AutismSpectrumDisorder

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I’m new here!

Hi, my name is kobyedwardschubert98. I have been living with epilepsy since 2009 and depression and anxiety since 2013. I just want to find and talk to other people who have them as well

#MightyTogether #Depression #Anxiety #Epilepsy

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Epilepsy Awareness

I'd love to see more content on seizure disorder & stigmas surrounding Epilepsy, it's not spoken about enough.
I'm very new to this app.
Thanks

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