Hi, my name is Kindnessoverconditio. I'm here because I have lived with multiple physical and mental health conditions and want to raise awareness of these conditions.
#MightyTogether #BorderlinePersonalityDisorder #Syringomyelia #FunctionalNeurologicalDisorder #Epilepsy #ChronicPain
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7 Epilepsy Self-Care Tips to Try in 2025
7 Epilepsy Self-Care Tips to Try in 2025
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PCOS ( polycystic ovarian syndrome)
is defined as “A hormonal disorder causing enlarged ovaries with small cysts on the outer edges.”
And causes symptoms such as irregular periods . Irregular hair growth . Issues with fertility, acne , and obesity.
has been a suspect on the list of “ What is wrong with Megan “ for years because of my strong family history of it , and the fact since the age of 14 I have had had every single symptom .
But one .
And with the unstoppable edema I’ve been having ( to a point I was gaining 10 pounds of fluids every 2 weeks )
My pcp decided to try
Me out on Metformin .
And I don’t think it’s helped the edema ( I can fit into sneakers now so MAYBE it’s helped .. )
BUTTT, it’s improved my brain fog and epilepsy symptoms . One of my BIGGEST seizure triggers is low blood sugar , and as you all know my sugars will just dip into the 40s and 50s .
When that starts to happen ( which would be pretty regular )
I’d get dizzy . Lightheaded, Nauseous . My vision would go spotted / funky ( which are all symptoms I have and I’m about to have a seizure)
And I can think of 2 times that has happened during the 2 weeks I’ve been on metformin !
My mom has wanted me to be on it for YEARS but no one would take our thoughts on it seriously becuase without prednisone I’ve Always been naturally thin.
But now im on it and things are improving What a win !!!
Do you have PCOS?
How long did it take you to get a diagnosis?
#smileon🐷 #PCOS #polycysticovariansyndrome #newdiagnosis #metformin #ChronicIllness #keepgoing
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Hey guys, I don’t think this will get lots of attention, but I wanted to share my story of an experience I faced yesterday.
I’d like to share an experience I recently had at a local restaurant where I was mocked and insulted by the owner and her friend. They called me “weird” and “creepy,” claiming I “intimidate locals” because I walk around town. The truth is, I can’t drive due to my disability and medication—walking is how I stay independent.
They also accused me of not paying for food, even though I do most of the time, or bring friends/family who order. Others in the community do the same or even keep unpaid tabs—but I’m the one singled out. I’m on the autism spectrum and live with multiple disabilities.
I believe this treatment was not only hurtful, but a clear example of ableism. I’m hoping to raise awareness and start a broader conversation about how businesses treat neurodivergent and disabled people. I’d be grateful if you could help share my story or guide me to the right place to tell it.
Thank you for your time and advocacy.
For context, the restaurant is called “The Dale” in Mountain Dale, NY. I have schizophrenia, epilepsy, Asperger’s disorder, and a essential tremor disorder which makes it hard for me to walk, do things independently, and makes me act quiet or very talkative in certain circumstances. I do not have a record of any violence, I just take lots of medications so sometimes I stare off into space or look grimaced.
#Ableism #SchizoaffectiveDisorder #Bipolar1 #EssentialTremor #PTSD #AspergersSyndrome #AutismSpectrumDisorder #AutismSpectrum #MightyMoment
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The world 🌎 seems so harsh at time but it can also be soft if we let it be. What moments of softness can we notice today?
#PTSD #BipolarDisorder #BipolarDepression #AutismSpectrumDisorder #Addiction #Anxiety #ChronicFatigueSyndrome #Depression #Epilepsy #ChronicFatigueSyndrome #Lupus
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Hi, my name is CareBear95. I'm here because I’m an epileptic who’s fighting on her own and needs help finding the right path to a good healthy life.
#MightyTogether #Anxiety #Depression #Migraine #PTSD #Epilepsy
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Hi, my name is Heidi. I'm here because I want to support others and have support myself due to having epilepsy mingled with mental health conditions. It has been a difficult road to navigate. I didn't start with a seizure disorder until I was 18years old. After living that long with a "normal" life it was challenging to begin to have to change everything and watch others, especially my mother, give up part of themselves to help me. Mom has been in this battle since the beginning and watched my thinking process and behaviors change. I know she has cried in private and been worried that each day will be my last. I have also had many moments to laugh about along the way such as, trying to take off the over door after a seizure, talking to random people and coming to with a look of confusion, or coming to and having my kitchen clean after frying sausage on the stove stop and trying to find the sausage and finding it weeks later in a Tupperware dish in the cabinet I kept them in.....needless to say I did not consume the sausage. I just want to be an advocate and educator not just for people with epilepsy (which I do think is desperately needed), but people with co-morbidities and how they affect the person's mental health. At times we are not treated as a whole person, but as our disability and when we describe other symptoms to our doctors, they can be dismissive and talk down to us saying such things as what you are feeling isn't an actual symptom of your illness. As a social worker and formally working with many populations I saw this type of treatment among them. I would see the brokenness within others when they just kept being told they were not good enough or their past and their disability define.
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