juvenile rheumatoid arthritis

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day is still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM and then 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You are the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️

I do love my puppy snuggles 💕

Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.

We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.

One day, tomorrow a new dawn. Deep breaths, bring it on!!!

Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #Psychosis #PanicAttack #PanicAttacks #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

For my brother after his two year mission for the Church of Jesus Christ of Latter-day Saints.

So proud of him!!

The sword is acrylic and the background is watercolor, my favorite art style!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #PanicAttack #PanicAttacks #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts

Her hair is so fluffy from the humidity. She is considered a toy dog but our neighbors dog-and Rosie's boyfriend is a big great dane.
She was scared of him but once I loved on him she knew he was safe. They love playing up and down the gate between them.
Who knew Rosie was a romance at heart?! 😅💖

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #AnkylosingSpondylitis #ComplexRegionalPainSyndrome #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #MightyPets #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #SuicidalThoughts #RheumatoidArthritis #sciatica #ShinSplints

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Upallnight #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyTogether #MemoryLoss #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts #Sleepwalking #Scoliosis #sciatica #ShinSplints

If I told you I see the beauty in you, Would you begin to see it too?

Please feel free to comment!

Proof the hurricane was very very bad but not so bad that we gave up.

It was absolutely scary but soooooo blessed to have a house, candles, water, food, and that our power was turned on 2 days before we had estimated. Hallelujah for that my friends!!!

And I kept Rosie close so we would both stay safe if not melted from the insane heat in our area and with extra humidity. Yuck!

Just suck in some air but try not to choke as humidity tries to drown you 😅

I prayed and pray still that all of you can quickly get any help you need.

The best thing EVER was being able to cancel appointments from this week- whoop whooop!!! 🥳🤭

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #Eczema #Upallnight #gallstones #MightyPets #WakingNightmares #Sleepwalking #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

I love to try new teas though only herbal. There are SO many I love how the world has millions of flavors to enjoy!!

My favorite is mint and sleep teas.
That incredible peace your first sip gives 👌

I have gotten everyone I know into teas and my mom has become obsessed with her Chocolate tea. On her hardest work days she takes her tea to work.

(I like my Chocolate cocoa tea best lol but hers is okay too and she has become a humongous fan of coconut creamer with it.)

She is lactose intolerant so tea makes her happier than cocoa with milk though she very much misses indulging.

My body is slowly becoming intolerant too so I can have milk every once in a while.

Peppermint hot cocoa always just makes me so happy!

Soothing goodness on any rough or easy day 😋😋😋

Do you prefer tea on rough days or easier self-care days?

Yay to the best self care aka tea 😁❤️✨️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #musclespasms #MemoryLoss #MightyTogether #Migraine #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking

Cutest little Rosie pup!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #plantarfasciitis #Psychosis #PanicAttack #PanicAttacks #PTSD #MentalHealth #MightyPets #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #musclespasms #MultipleAutoimmuneSyndrome #Sleepwalking #Scoliosis #sciatica #ShinSplints