juvenile rheumatoid arthritis

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Another Rosie pic for your Monday! Because everyone deserves a Rosie pic to start their day 😉 See how she sticks her whole nose in the rose? Lol

I would feel the same way....except on the days when she wakes me up with her grumbles about my sleeping late 😂 and yes they literally sound like a tiny frustrated person is trying to politely grumble someone awake 🤣

She is a Very talkative pup! Her sassy grunts of unhappiness if we don't pay her as much attention as she wants are the funniest things!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #PsoriaticArthritis #PanicAttack #PanicAttacks #Psychosis #plantarfasciitis

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Years ago I came across this powerful phrase: Don't let the world make you bitter, be better ✨️

At that point in time I was bitter at how much I had lost. My teenage years were wasted in a hospital post surgeries and I was in a wheelchair and in so much pain, a LOT more than I had ever experienced. I was 15 and after school when my friends got to have fun, I had to go to physical therapy. I did love exercising so that wasn't what I was disenchanted with.
I saw these adults struggling and wincing in pain. They are weak! I thought in anger.

And then I saw this old lady who couldn't walk she hurt so bad she sobbed and they brought out a wheelchair for her since it was too painful. In that moment I saw myself. I had been there too. My mom had said "suck it up Tierra" "sometimes you just got to fake it til you make it"
Those phrases cost me so much. When she finally had bad pain, I told her the exact same thing, suddenly her attitude changed and she was much more charitable when it came to my pain. But that is a story for another day.

After watching that old lady hurt so bad, it hit me how awful I had been -even if it was only in my head. Later that day I came across that quote: Don't let the world make you bitter, be better!
I felt like it changed my DNA it was so perfectly timed! God helping change me for good ❤️

Don't let the world teach you to be cruel, because YOU are better than that. Dare to be optimistic and positive and spreading kindness around!

Have The Audacity To Hope 💕✨️✨️💖

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PsoriaticArthritis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MemoryLoss #MightyTogether #Migraine #Grief #Headache #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints #sciatica #CheerMeOn #Upallnight #IfYouFeelHopeless #musclespasms

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This is something I still tell myself to help me get through the low and deep dark times in my life.

I don't have flares because my pain is CONSTANTLY level 10. It has been for many many years.
BUT no matter how small my good times are, they are worth waiting for.
The good and bad change. Different opportunities come. But we never know what life will bring! That is why we must fight on.

As a fellow Mighty advised me many years ago: If a cure comes tomorrow, won't you wish you had hung on one more day? 💕💕💕

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #JuvenileRheumatoidArthritis #Lupus #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints #Psychosis #PsoriaticArthritis #BoneSplints

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I don't totally agree with this one as I have found joy in other people and happiness in helping others

Though I understand the point that it is good to make that happiness when you know you need it.
When my depression gets dark and deep I make an effort to PLAN fun things so that I look forward to the future again plus having fun things often no matter how small (like a mini art session or reorganizing a small drawer(I LOVE organizing, always have, I find so much peace and reassurance in it) or going to get ice cream or try a bunch of new snacks with the fam(I love that salted caramel Twix ♥️ 💖 😋😋😋))

You know best what your real limits are, plan those things you love to add joy in your life-with and on purpose!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Insomnia #Lupus #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #bedbound #JuvenileRheumatoidArthritis #MentalHealth #MemoryLoss #Migraine #CheerMeOn #RheumatoidArthritis #MightyTogether #RareDisease #SuicidalThoughts #Scoliosis #ShinSplints #Upallnight #musclespasms

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