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The difference between exhaustion from exercise and the exhaustion from muscular dystrophy is pretty big. When you exercise and over do it you can rest up and eventually your body will return to normal. When you have muscular dystrophy your body in never rests and even if you were to lay down all day the next day you will still be in excruciating pain. There is no cure or treatment for my type of myopathy so the disease is progressing taking out all my skeletal muscles my legs and arms are getting weaker and the fear of quadrapelegia is in my mind because I don't even know what that looks like.

My point is sometimes there is no healing just a messed up version of ground hog day where I am in pain all day long every day. There is no getting through this or over it the condition will stop when my heart does. Couldn't tell you exactly why I still have a fervour for life I mean I still break down and cry from the intractable pain but life itself is still a gift what an amazing thing to be human. I'm also 58 so I have lived a good life until fourty when the back operations started. I am always looking for healthy distractions I love music, a good movie, the beauty that surround me where I live, and of course my dog Mayak and my Mom. I'm thankful to the mighty for letting me express myself and thanks to anyone who took the time to read this kind of boring tale#MentalHealth #DegenerativeDiscDisease #MuscularDystrophy #Fibromyalgia #ChronicIllness #Anxiety #Disability #etc

The day you find out you have muscular dystrophy might be different for each individual. For me it was the icing on the cake because I already had eight spinal surgeries over the course of ten yrs to address herniated discs. So when my legs and arms started to atrophy my Dr and I thought it was from the surgeries but I was still in pain and getting weaker by the day. After three yrs and three trips to Los Angeles and four Neurologist a partial diagnosis it's never good when the Dr says I have never seen your phenotype before and there is no information on it.

I honestly thought my dues were paid after all those surgeries but I was wrong and I let hope drive me to think so. I'm totally screwed now all my muscles are deteariating and the pain is relentless. What is my take on this? My inspiration to keep going has gotten me far however this development will take everything from you if you let it. The brain isn't wired to handle a 24hr pain cycle so eventually it changes the chemical makeup so now I'm on antidepressants and pain medications.

It's not ideal but I seek pleasure naturally by listening to music or light gardening distractions that are healthy definitely help. I also don't feel cheated on life because the first forty years were pretty good and when I was able I took as much as I could. I also am very fortunate to be taking care of my mom and I live in a beautiful foothill town in the Sierra. Don't let life ruin your whole outlook.🙂#MentalHealth #DegenerativeDiscDisease #MuscularDystrophy #MDD #BorderlinePersonalityDisorder #alodynia #Hyperalgesia #Disability #etc

It's a day to be thankful for the things we do have in life. I am thankful for my Mom and my dog Mayak both I love very much. I am thankful for the beautiful place I live in and the Mighty. Hope everyone has a great Holiday 💙🙂#MentalHealth #MuscularDystrophy #etc

Just wanted to share something that brings me joy planted flowers with my mom on the patio. Life is so rough sometimes it brings sunshine in both our lives. Have a great Sunday 🙂#Anxiety #DDD #OCD #RareDisease #ChronicPain #MuscularDystrophy #etc

More photos #Anxiety #OCD #MDD #etc

Disposable hair caps use for covering leftovers! Plastic wrap is too hard for me to deal with! This is amazing!