Foot Drop

Hi, my name is GolfinwMS. I'm here because I’m so depressed and angry about my MS journey. I’m struggling to find meaning hope and compassion for myself. I was diagnosed a year ago after ignoring symptoms for 10 years that developed into foot drop and then forced to resign a career I loved after pressure from employer of underperforming while being diagnosed. Oh and how could o forget the chordoma or spine cancer growing at the base of my spine that was diagnosed at the same time as the ms? I’ve fought through a second opinion and the healthcare system as a whole just to have a DMT I feel has been working over the last five months. Now I’m pending MRIs of the pelvis, spine, and brain while losing myself to the madness of being alone, scared, unemployed, and falling apart in front of my family. Just trying to find a way to get back on track.

#MightyTogether #MultipleSclerosis

I've been at this debilitated state for about 15 yrs several spinal fusions and now I have late onset muscular dystrophy. It's a complicated rare genetic mutation that slowly but surely is taking my muscles and keeping me in chronic pain. My Dr and I searched for a diagnosis for the past three years as to why I was loosing muscle mass and at the beginning of this year a diagnosis was partially reached.

The purpose of this boring prelude is to show how lucky I am to have such a caring Dr one who thoroughly takes the time during each visit. He actually spent time after work to study my case and is frustrated there is no cure or treatment just showing how much he cares.#DDD #MDD #OCD #MuscularDystrophy #Rare disease#Bilateral footdrop#Anxiety #IntrusiveThoughts #

It's a daily thing I wake up go to the bathroom then the pain starts. It feels like I was hobbled over night because my ankles,my feet, and calves are dysfunctional causing feet and hand deformity. The genetic disease i have will progressively take out all type 1 skeletal muscles.

There is a cardiac involvement but I'm awaiting to see Cardiologist at Cedar Sinai to evaluate the pathology of my variant.

Ten yrs and eight spinal surgeries gave way to neurogenic muscle atrophy and beginning this year finally diagnosed with muscular dystrophy at 58yrs old. I have been wearing full leg braces due to bi lateral foot drop for over 15yrs.

Don't know why I posted such a detailed description and to whoever reads this I'm grateful you took the time.Sometimes because of my age I don't think me or my condition is important and that if there is ever a cure or treatment for this rare affliction it should be for children and congenital complications.#OCD #BPD #chronic pain#myocodritis #MuscularDystrophy #Peripheral neuropathy #MDD #

I joined this group a little while ago but didn't feel like using hashtags but I imagine for social forums that are geared for relatability it's a good thing so I decided to use hashtags but no need to respond just getting it out there.

#BPD #chronic pain#mobility problems #Muscular dystrophy #perpheral neuropathy #Hyperalgesia #OCD #distal and proximal myopathy #Facial neurolgia#bi lateral foot drop

Hi, my name is Kim Meinerth. I turned 70 last Spring. I have worked for major computer and graphics companies since 1978. I currently live in south Santa Clara county, CA. I am currently working for AMD as a Senior Fellow System Architect. I've been diagnosed with Primary Progressive MS this past summer. I am currently on medical leave to focus on my health.

Vertigo started in my early 30s with week-long episodes. I believe that my balance started to deteriorate then too. Had an MRI (1985), but my Neurologist in MA could not find MS lesions. He did find an issue in I believe my brain stem. Had a spinal tap and found no signs of MS.

In early 2018 Stanford HC MS specialist neurologist Dr. Lock studied the 1985 MRI and found the MS lesions.Dr Lock confirmed my MS diagnosis with more brain & spine MRIs in early 2018.

I also had a bad case of mononucleosis in 1971 that was likely the trigger for my MS journey.

We believe that my walking gait issues started in my early 40s. Balance started getting very bad, as well as, weakness, pain in my left hip, ankle. Foot drop and swinging my left leg out to avoid tripping developed later. Progression was very slow and I did not notice it until I started tripping and falling with friends asking me what happened to me.

Left arm and hand weakness started in my 60s. Left arm and hand numbness, weakness, no coordination started in June of last year after 3rd Covid virus. Left leg and arm got significantly worse with each of my 3 Covid viruses.

I was diagnosed with Primary Progressive MS this past summer 2024.

Vertigo seems to always be the result of intense stress, mostly self-imposed from my career.

I am looking forward to joining a MS support group.
Kim

#MightyTogether #MultipleSclerosis

Hi, my name is delightfulgal4. I'm here because I was born with hip dysplasia and have had hip surgery at 48. Last year May 2022 I dislocated my knee and my peroneal nerve was severed. Now I have foot drop and have to wear an AFO. not the easiest but it is helping me with my gait and lifting my foot

#MightyTogether #HipDysplasia

I’m new here. Interested in #spinal #Fusion #mobility #Neuropathy
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