Head Injury

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Head Injury
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    I’m new here!

    Hi, my name is Blue. I'm here because I need help with no muzzles traumas my head injury 50 years ago and living in an alcoholic home it’s causing me a lot of distress I need support

    #MightyTogether #ADHD #PTSD #Fibromyalgia

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    Community Voices

    Hit hard this morning #migraineattack
    #Depression #HeadInjury

    I’ve been dealing with a migraine since I received a head injury at 15. I’m almost 25 now. That’s almost 10 years of finding migraine medicine, body getting use to the amount and starting all over again. That’s 3-4 headaches a week, that’s migraine attacks lasting anywhere from 1-3 days. That’s migraine side effects of nausea, pain in my legs, anxiety, light sensitivity, that’s depression. I’ve been taking medicine in the evenings but sometimes it doesn’t fully help to where the headaches or migraines don’t show up. Sometimes I have to take 600mg Ibuprofen everyday on top of the normal meds I take to try and prevent anything in the mornings. Light headaches I can try catching it in time and vaping some CBD liquid but sometimes a migraine attack suddenly shows up or I wake up in the morning (like today) and it hits. It’s exhausting and I’m debating what to talk to my doctor about because I don’t know what to do and it’s affecting my mental health but I haven’t talked to her about it yet. I’m so depressed lately and worried my future boss doesn’t like dealing with my health issues when I have to call in work (like today) and go to the doctors. I’m worried she won’t fully hire me on for my internship and job training… I’m tired of the pain of the headaches and migraines and everything that goes with that and I am just tired of the feeling it leads to depression and being unhappy…
    Also having to try and find a new neurologist since my old one doesn’t work there anymore. It’s just all so discouraging…

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    Community Voices

    "It's all a lot right now." I don't even want to know how many times I have said that lately. Everyone in my inner circle right now keeps telling me how impressed they are with how strong I've been, but I definitely don't feel that way most of the time. I feel like I am barely staying afloat, have been a prisoner in my own body (moreso than normal), and have been forced to stay in my home as if it were the early days of the pandemic. Dealing with all my chronic conditions and now this injury over the last couple of months has definitely been overwhelming. I feel awful so many days and there is nothing I can do about it most of the time. The head injury I sustained has been super challenging as everything in my body seems to have been injured with it and/or my conditions have just revved up in symptoms as a result. I feel so helpless with everything. I can't be there for my students since I'm not allowed to work, I continue to not speak with my family (see past posts for details on that one), my best friends live in other states, and the timelines of everything are draining in themselves. I have no idea if/when I will be able to return to work before the end of the school year and in what capacity. I have been doing/will be doing various therapies. They are exhausting. For someone who lives in a permanent state of tired anyway, this has made me feel robotic. Everything overall is a lot right now. I am sick and tired of being sick and tired!

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    Community Voices

    Apathy as a Protective Response

    <p>Apathy as a Protective Response</p>
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    Community Voices

    Im still healing from this concussion… spent a couple of days offline. Still minimizing screen time although that is hard for me (I’m sure it is for many of us!). Driving is also a challenge if I travel for more than locally in my town. Definitely trying to take it easy but it’s hard when I have a tendency to put pressure on myself…. #CheckInWithMe #Depression #HeadInjury

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    Why am I hurting my marriage

    <p>Why am I hurting my marriage</p>
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    Community Voices
    Evie

    POTS – More than just a Fainting Condition

    Before we get into the nitty gritty details of life with postural orthostatic tachycardia syndrome, let’s begin this article with a quote from Winston Churchill. It is important for you to get to know me before my health condition, as I don’t like to be defined by my chronic illness; a fun fact about me is that I love reading inspirational quotes. They can be interpreted in many ways and make us feel hopeful in dark times. For where would we be without some heart-felt literature that really speaks to us? As Churchill once said, “if you’re going through hell, keep going.” Great advice! I try to remember quotes like this one to cheerleader myself through tough health days.

    Now, let’s begin talking about what you really want to read about – the struggles of living with postural orthostatic tachycardia syndrome. postural orthostatic tachycardia syndrome is a notoriously difficult condition to manage, as there is no gold standard treatment – it’s a case of trialling various individualised treatment options to find out what does/does not help (Carew et al. 2009: 21-22). Arguably, the most dangerous postural orthostatic tachycardia syndrome symptom is fainting, due to the risk of head injury. According to POTSUK (a UK charity that raises awareness for postural orthostatic tachycardia syndrome) “approximately 30-60% of people with postural orthostatic tachycardia syndrome faint.”

    I am one of the 30-60% of those that faint. It can surprise me at the most unexpectant of moments. I can get out of bed in the mornings, walk to the bathroom and boom! Before I know it, I am on the floor staring at the bathroom ceiling, only now even more desperate for a wee. The fear of fainting and hurting myself is high. The fear of fainting and not regaining consciousness is high. And yes, the fear of fainting in public is higher, with no choice but to accept help from passers-by who may not have my best interests at heart.

    Having heard about such a debilitating symptom, you must think, “fainting must be the worst symptom for someone like you with postural orthostatic tachycardia syndrome, because it’s so dangerous.” Yet in reality, fainting is not the worst symptom for me. Let me explain. Imagine you are walking twenty metres from your car into work – you are panting and feel like you’ve just ran down the street. Then, you climb up four flights of stairs, which you have no choice but to sit on halfway, since you simply cannot catch your breath. Now for the next twelve hours you walk around at work, whilst wearing a mask, feeling completely rushed off your feet and gasping for breath. All you want to do is sit down and catch your breath but you can’t.

    Does just reading this make you feel breathless? That is the reality of dealing with my most severe symptom, breathlessness. Breathlessness from postural orthostatic tachycardia syndrome cannot physically cause me long-term damage, fainting can. But you see, although fainting is potentially hazardous and unpredictable, it is short-lived. I fall, pick myself up and carry on with my day. However, breathlessness is the symptom that makes it difficult for me to get through each day. For me it is the ruthless, draining, persistent nuisance that contributes to my daily struggles.

    There are techniques I try to help deal with my breathless, but I still have yet to find the best way. I stand infront of fans, I pull my mask down and poke my head out the window to be able to feel the cool, crisp air on my face. The cold seems to help, and alongside this I try various slow breathing exercises. Those truly are the best techniques that I have found so far whilst in my postural orthostatic tachycardia syndrome journey, but my journey is not over.

    Thank you for reading this article. I hope that whilst reading this you were able to relate, empathise or learn something. Please remember, people with postural orthostatic tachycardia syndrome‘ experiences differ, some symptoms may be more bothersome for some people than other symptoms. This is just my reality of living with postural orthostatic tachycardia syndrome over the past five years. I did not want to write an article sugar-coating my reality of how living with postural orthostatic tachycardia syndrome can still be beautiful. Of course a life with postural orthostatic tachycardia syndrome is still a wonderful life, but it does not mean I should dismiss the severity of the challenges I face daily. Sometimes sharing your reality can help others feel less alone. Let’s end with my favourite quote for today “If you’re going through hell, keep going” (Winston Churchill).

    References

    Carew, S., Connor, M., Cooke, J., Conway, R., Sheehy, C., Costelloe, A., Lyons, D. (2009) ‘A review of postural orthostatic tachycardia syndrome‘ Eurospace, European Society of Cardiology. available from

    POTSUK (2021) ‘Symptoms.’ available from

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    AskMe: We Asked an Expert All of Your Questions About ADHD

    Attention-deficit/hyperactivity disorder (ADHD) doesn’t just involve being easily distracted and having excess energy — it’s a complex neurological condition that can affect everyday functioning and may even symptomatically interact with comorbid conditions.  We spoke with Dr. Ellen B Braaten, Ph.D., an associate professor at Harvard Medical School and Understood Expert on ADHD, and she answered questions from our Mighty community members who live with ADHD or have a loved one with ADHD.  Here are expert answers to some of your biggest questions about ADHD. Responses have been lightly edited for clarity. Q: How do ADHD and PTSD interact with each other? Which symptoms overlap or clash? Any tips for navigating both conditions together? Braaten: There are a number of symptoms that overlap between ADHD and PTSD, such as feeling restless or distractible and having difficulty concentrating. Problems with memory and feeling cognitively “disorganized” or “brain foggy” might be experienced in both disorders. I wouldn’t say these conditions necessarily “clash” with one another, but there are some clear differences. ADHD is a brain-based disorder that begins early in development, whereas PTSD is a disorder that affects the way the brain functions after a traumatic event. People with PTSD will often experience flashbacks, frightening dreams, and recurrent memories. They might avoid any people, places, or situations that are associated with their trauma. Therefore, they can have trouble with memory,  depression, and may be overly vigilant. When a person with ADHD also has PTSD, the symptoms from one disorder might exacerbate symptoms in the other. For example, one of the symptoms of ADHD is difficulty “shifting set,” which refers to the ability to move easily from one topic or activity to another. The challenges people with ADHD face might exacerbate the recurrent memories associated with PTSD. They might have even more difficulty “letting things go” than a person with PTSD who doesn’t have ADHD. Similarly … problems with memory and disorganized thinking might be more significant in a person with ADHD who also experienced trauma. If you have both ADHD and PTSD, treating the symptoms of PTSD through cognitive and cognitive-behavioral therapy approaches may be helpful. Some of the components of therapy – relaxation and stress management skills, cognitive coping skills, emotional regulation skills, and cognitive processing of the trauma – can also be helpful for symptoms of ADHD. Q: How can a person with ADHD lessen obstinacy and maintain consistency? Is there a certain therapy that helps? Braaten: Knowing yourself – and thinking of ADHD as something that needs to be embraced as opposed to cured – is an important part of any therapeutic approach. Medication can help symptoms of ADHD, including obstinacy and lack of consistency. Therapy that includes life management skills can also be helpful. Therapy can focus on “thing management,” such as managing papers and personal objects, time management, “to-do management,” such as lists of tasks, and money management. Learning which areas of life present challenges – and finding ways to better manage those challenges – can help people with ADHD become more consistent at home and at work. In addition, exercise and mindfulness meditation can be helpful in managing symptoms of ADHD. Q: How can a person with ADHD gain confidence? Braaten: What I said above – knowing yourself and accepting who you are is the best way to gain confidence. Confidence also comes from being successful. It’s important for people with ADHD to find areas in life in which they feel … successful and make those situations a regular part of their lives. Q: What advice do you have about studying effectively with ADHD? Braaten: Some of the best techniques include: • Have a clear idea of what it is you need to study. Know the subject, whether you need to read or write information to study for a test, and know the format of the test. • Don’t expect to do all your studying in one big chunk. Instead, set a realistic goal for the amount of time you want to focus on a task, and set an alarm for that amount of time. When the alarm goes off, ask yourself whether you have been distracted from the task at hand, and if so, define what was distracting. • Break large tasks into smaller ones. For instance, making your first goal “Write the English paper” isn’t very helpful. Instead, decide what you can do in a manageable amount of time, such as “Make an outline for the English paper” or even “Pick a topic for the English paper.” • Keep external environmental distractions, like social media, Internet, and phone, to a minimum. Q: Do certain ADHD medications affect someone’s personality? Braaten: ADHD medications should not affect a person’s personality. In fact, correctly prescribed medication should make someone feel “more like themselves,” not “different.” That being said, when the dose is not correct, it may cause someone to feel “flat” and “robotic.” Q: Is there a relationship between head injury and ADHD? Braaten: There is some data that shows children who have a serious head injury are more likely to develop ADHD, and those symptoms might not occur for up to a decade later. On the other hand, ADHD is a risk factor for head injuries, at least in childhood. It’s likely that symptoms of impulsivity, inattention, and hyperactivity increase the possibility that a child with ADHD will be more accident-prone. Thank you to Understood.org for allowing us to speak with Dr. Braaten! If you’re living with ADHD and want to connect with others with similar experiences, join a community here on The Mighty: Parents of Kids With ADHD The Neurodiverse Crowd Navigating Neurodivergence