Hereditary Angioedema

Hi, my name is Hank2024. I've been diagnosed with Hereditary Angioedema, and now waiting for either or both diagnosis of MCAS and Fibro.

#MightyTogether #Anxiety #PTSD

Hi, my name is TJKelsch. I'm here because I am seeking a opportunity to display my worth, work hard and make a living without the fear of my medical issues being a problem while working.

#MightyTogether #HereditaryAngioedema #MultipleAutoimmuneSyndrome

Dear friends,
Did you know that we are a master at “faking it”. We have that down. We know how to make ourself seem like we are fine. Makeup is our lifesaver, comfy cute clothes that don’t cause extra pain, and a smile is all we need. Even when we seem alright, check on us. We still need to know you care. 
When you think of us, check on us. Our social media may show that we are having a great day, but when really we are crumbling on the inside. We face a battle that is hard to navigate. We need to know we have someone on our side. 
We always put up a strong front, we push through and fight harder than you know. Most days we are weak, tired, and just need someone to ask “are you really ok?”. We could use your shoulder to cry on, vent to, and just let it out. We need friends. 
So when you think of us please check on us. Really check on us. Make sure we tell you the truth instead of the generic “I’m fine”.
Xoxo-Brittney

#ChronicIllness #HereditaryAngioedema #Friendship

Lately strength has been difficult for me to find. Life has thrown me so many curve balls, and they keep nailing me in the face and abdomen every single time. Why? Why does it have to happen all at once? Why does it have to happen to me every time? It is not fair and I simply want to give up.
When life gets like this and I think I can't handle anymore I always prove to myself that I can. I fight the battles with strength and tears and I always end out on top. I show myself just how strong I actually am. It is never easy I have multiple break downs, but I always end out on top. I always end up stronger than I was before.
This mountain has me thinking back to my first mountain I had to climb. The diagnosis. When I was going through my diagnosis I was seen by 6 different specialist before we found the right one. I was told that I did not have Hereditary Angioedema even though I had all of the symptoms and a strong family history. I was called crazy, told it was all in my head, and that there was nothing wrong with me. I felt like I would never get the diagnosis that I so desperately needed. After a year and a half of this I finally received the magic words I dreamed of hearing, "you have Hereditary Angioedema". Dreaming of getting a diagnosis seems silly, but when you have something incredibly wrong with you it is needed. 
That was just one mountain I had to climb to get to where I am now. It was rocky, I slid down a few times, but I never gave up. I kept fighting and I still fight for myself everyday. I fight for my health, meds, and treatments I need. The mountain that I am facing now is a big hurdle. It is taking so much energy out of my fight, but I am not going to give up. I will find the strength I need, and I will win. 
Once I get over this mountain it will be another memory that I can look back on. I can look back and see how far I have come, and how strong I really am. I will continue on my journey and keep pushing through whatever life has for me.
xoxo--Brittney

#strength #HereditaryAngioedema #ChronicIllness #RareDiseases #Thoughts #rarediseasewarriors #Undiagnosed #lifewithchronicpain #ChronicPain