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Hi, my name is Hank2024. I've been diagnosed with Hereditary Angioedema, and now waiting for either or both diagnosis of MCAS and Fibro.
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Hereditary Angioedema
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Hereditary Angioedema
Hereditary Angioedema
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‘Finding My Voice Helped Me Find My Power’— A Woman’s Journey With HAE
NewWhen Kemmi was little, every holiday gathering led to her being sick all night, experiencing painful swelling in her abdomen. Since these holidays were centered around meals, her family often assumed she over-indulged, labeling her as an overly sensitive kid. “Oh, Kemmi’s complaining again,” they would say. Over time, she learned to internalize her pain [...]
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I'm new here!
Hi, my name is TJKelsch. I'm here because I am seeking a opportunity to display my worth, work hard and make a living without the fear of my medical issues being a problem while working.
#MightyTogether #HereditaryAngioedema #MultipleAutoimmuneSyndrome
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Just Need to Vent
I Just Need to Vent ATM
•I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community.
•Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle.
•I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets.
•I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups.
•The Constant Flare Ups Really Trigger My Depression.
•I’m Tired of being in Pain.
•I’m Tired of Missing Training/Workshops.
•I’m Tired of Feeling Nauseous.
•I’m Tired of Medical Bills.
•I’m Tired of Shitty Health Insurance.
•I’m Tired of Fatigue.
•I’m Tired of Dealing with Vitamin Deficiencies.
• I’m Tired of Constantly Sleeping.
•I’m Tired of Chronic Hives.
•I’ve Tired of Swelling.
•I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom.
•I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema.
•Today I’m also Tired of Crying.
#ChronicPain #Fibromyalgia #HypothyroidismUnderactiveThyroidDisease #Asthma #AutoimmuneUrticaria #HereditaryAngioedema #AlopeciaAreata #atopicdermatitis #ChronicIllness #RareDisease
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Rare Disease Day|February 28th 2021
Me and my teenager got a short walk Sunday night before it started raining 🌧 very hard. I’m still trying to figure out which tracking app(s) I like best. I primarily used to use Nike Training Club. I’d like to participate in more awareness walks. Many organizations tend to use Strava which is why I started using it. I also have Map My Walks. #raredisease #hereditaryangioedema #autoimmuneurticaria #walking #awarenesswalking #autoimmuneurticaria #spoonies #spoonieteen #wellness #fitness #autoimmunedisease #invisibledisabilities
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Rare Disease Day|February 28th 2021
Me and my teenager got a short walk Sunday night before it started raining 🌧 very hard. I’m still trying to figure out which tracking app(s) I like best. I primarily used to use Nike Training Club. I’d like to participate in more awareness walks. Many organizations tend to use Strava which is why I started using it. I also have Map My Walks. #RareDisease #HereditaryAngioedema #AutoimmuneUrticaria #Walking #AwarenessWalking #AutoimmuneUrticaria #Spoonies #SpoonieTeen #wellness #Fitness #AutoimmuneDisease #invisibledisabilities
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When you think of us.....
Dear friends,
Did you know that we are a master at “faking it”. We have that down. We know how to make ourself seem like we are fine. Makeup is our lifesaver, comfy cute clothes that don’t cause extra pain, and a smile is all we need. Even when we seem alright, check on us. We still need to know you care.
When you think of us, check on us. Our social media may show that we are having a great day, but when really we are crumbling on the inside. We face a battle that is hard to navigate. We need to know we have someone on our side.
We always put up a strong front, we push through and fight harder than you know. Most days we are weak, tired, and just need someone to ask “are you really ok?”. We could use your shoulder to cry on, vent to, and just let it out. We need friends.
So when you think of us please check on us. Really check on us. Make sure we tell you the truth instead of the generic “I’m fine”.
Xoxo-Brittney
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Pain
My pain is so bad today I can’t get out of bed. The only thing I can do is struggle to use the restroom and crawl back to bed. My medications aren’t working today and all I want to do is cry. I hate days like this. #ChronicIllness #ChronicPain #HereditaryAngioedema #Undiagnosed
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