Hereditary Angioedema

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Hereditary Angioedema
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    Just Need to Vent

    I Just Need to Vent ATM

    •I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community.

    •Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle.

    •I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets.

    •I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups.

    •The Constant Flare Ups Really Trigger My Depression.

    •I’m Tired of being in Pain.

    •I’m Tired of Missing Training/Workshops.

    •I’m Tired of Feeling Nauseous.

    •I’m Tired of Medical Bills.

    •I’m Tired of Shitty Health Insurance.

    •I’m Tired of Fatigue.

    •I’m Tired of Dealing with Vitamin Deficiencies.

    • I’m Tired of Constantly Sleeping.

    •I’m Tired of Chronic Hives.

    •I’ve Tired of Swelling.

    •I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom.

    •I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema.

    •Today I’m also Tired of Crying.

    #ChronicPain #Fibromyalgia #HypothyroidismUnderactiveThyroidDisease #Asthma #AutoimmuneUrticaria #HereditaryAngioedema #AlopeciaAreata #atopicdermatitis #ChronicIllness #RareDisease

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    Rare Disease Day|February 28th 2021

    Me and my teenager got a short walk Sunday night before it started raining 🌧 very hard. I’m still trying to figure out which tracking app(s) I like best. I primarily used to use Nike Training Club. I’d like to participate in more awareness walks. Many organizations tend to use Strava which is why I started using it. I also have Map My Walks. #raredisease #hereditaryangioedema #autoimmuneurticaria #walking #awarenesswalking #autoimmuneurticaria #spoonies #spoonieteen #wellness #fitness #autoimmunedisease #invisibledisabilities

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    Rare Disease Day|February 28th 2021

    Me and my teenager got a short walk Sunday night before it started raining 🌧 very hard. I’m still trying to figure out which tracking app(s) I like best. I primarily used to use Nike Training Club. I’d like to participate in more awareness walks. Many organizations tend to use Strava which is why I started using it. I also have Map My Walks. #RareDisease #HereditaryAngioedema #AutoimmuneUrticaria #Walking #AwarenessWalking #AutoimmuneUrticaria #Spoonies #SpoonieTeen #wellness #Fitness #AutoimmuneDisease #invisibledisabilities

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    When you think of us.....

    Dear friends,
Did you know that we are a master at “faking it”. We have that down. We know how to make ourself seem like we are fine. Makeup is our lifesaver, comfy cute clothes that don’t cause extra pain, and a smile is all we need. Even when we seem alright, check on us. We still need to know you care. 
When you think of us, check on us. Our social media may show that we are having a great day, but when really we are crumbling on the inside. We face a battle that is hard to navigate. We need to know we have someone on our side. 
We always put up a strong front, we push through and fight harder than you know. Most days we are weak, tired, and just need someone to ask “are you really ok?”. We could use your shoulder to cry on, vent to, and just let it out. We need friends. 
So when you think of us please check on us. Really check on us. Make sure we tell you the truth instead of the generic “I’m fine”.
    Xoxo-Brittney

    #ChronicIllness #HereditaryAngioedema #Friendship

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    Pain

    My pain is so bad today I can’t get out of bed. The only thing I can do is struggle to use the restroom and crawl back to bed. My medications aren’t working today and all I want to do is cry. I hate days like this. #ChronicIllness #ChronicPain #HereditaryAngioedema #Undiagnosed

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    Strength

    Lately strength has been difficult for me to find. Life has thrown me so many curve balls, and they keep nailing me in the face and abdomen every single time. Why? Why does it have to happen all at once? Why does it have to happen to me every time? It is not fair and I simply want to give up.
When life gets like this and I think I can't handle anymore I always prove to myself that I can. I fight the battles with strength and tears and I always end out on top. I show myself just how strong I actually am. It is never easy I have multiple break downs, but I always end out on top. I always end up stronger than I was before.
This mountain has me thinking back to my first mountain I had to climb. The diagnosis. When I was going through my diagnosis I was seen by 6 different specialist before we found the right one. I was told that I did not have Hereditary Angioedema even though I had all of the symptoms and a strong family history. I was called crazy, told it was all in my head, and that there was nothing wrong with me. I felt like I would never get the diagnosis that I so desperately needed. After a year and a half of this I finally received the magic words I dreamed of hearing, "you have Hereditary Angioedema". Dreaming of getting a diagnosis seems silly, but when you have something incredibly wrong with you it is needed. 
That was just one mountain I had to climb to get to where I am now. It was rocky, I slid down a few times, but I never gave up. I kept fighting and I still fight for myself everyday. I fight for my health, meds, and treatments I need. The mountain that I am facing now is a big hurdle. It is taking so much energy out of my fight, but I am not going to give up. I will find the strength I need, and I will win. 
Once I get over this mountain it will be another memory that I can look back on. I can look back and see how far I have come, and how strong I really am. I will continue on my journey and keep pushing through whatever life has for me.
xoxo--Brittney

    #strength #HereditaryAngioedema #ChronicIllness #RareDiseases #Thoughts #rarediseasewarriors #Undiagnosed #lifewithchronicpain #ChronicPain