Alopecia Areata

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#treatments #fibroflareups #Osteoarthritis #PTSD #Anxietyanddepression #Anemia #AlopeciaAreata #CFS #COPD #ChronicPain

Hi Everyone
Has anyone had infusions for the treatment of fibromyalgia? If possible I’d be interested to hear how your treatment went and if it helped at all ? Any info would be much appreciated. I’m getting nowhere with any Drs I see, and trying to see a Dr is becoming a nightmare.
Thank you in advance xx

#Fibromyalgia

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Books With #RareDisease Representation

Many health challenges don’t get enough representation in literature. I think that definitely needs to change. Finding more common conditions in books is hard enough, but when you have a rare disease, it can be even harder to find yourself represented in a book.

That’s why I decided to compile a list of some YA books that contain characters with rare diseases. I hope some people can find a book to relate to on this list!

”Cursed” by Karol Ruth Silverstein Erica “Ricky” Bloom’s life has taken a turn for the worse. As if dealing with high school, her sister’s transition to college, and her parents’ divorce wasn’t enough, Ricky is diagnosed with #JuvenileIdiopathicArthritis . Ricky uses profanity to cope with her #ChronicPain , until her coping mechanisms are foiled by a boy with a diagnosis of#AcuteLymphoblasticLeukemia in his past and a snooty, but well-meaning, teacher. It turns out that not everyone is as they seem.

2.”100 Days” by Nicole McInnes

Agnes is not exactly like every other teenage girl. She likes pretty dresses, sewing, and music. She has a best friend. But Agnes has a disease that makes her appear several times older than her chronological age— #Progeria . With the help of her friend and an unexpected ally, Agnes’s last 100 days are her living her best life. But will the three friends be able to accomplish what counts before time runs out?

3.”How We Roll” by Natasha Friend

Quinn’s life changed when she was diagnosed with #AlopeciaAreata , which is not easy for anyone, let alone a high-schooler. A humiliating experience causes Quinn and her family to move. Quinn attempts to make friends, which proves difficult. Quinn meets Nick, who has #LimbAmputation because of a car accident. Can both Quinn and Nick learn to trust and let each other in before they build their walls too high?

4.”Midnight Sun” by Trish Cook

Seventeen-year-old Katie Price has a rare disease #XerodermaPigmentosu m that makes exposure to even the smallest amount of sunlight deadly. Confined to her house during the day, her company is limited to her widowed father and her best (okay, only) friend. It isn't until after nightfall that Katie's world opens up, when she takes her guitar to the local train station and plays for the people coming and going. Charlie Reed is a former all-star athlete at a crossroads in his life—and the boy Katie has secretly admired from afar for years. When he happens upon her playing guitar one night, fate intervenes and the two embark on a star-crossed romance.

5.”Everything, Everything” by Nicola Yoon

Madeline Whittier has #SevereCombinedImmunodeficiencySCID , which means she can’t leave her house. But one day, she sees a mysterious boy named Olly. And Olly makes her want everything—including things she can’t have. Like love.

Art of Feeling” by Laura Tims

Samantha Herring has been in constant pain ever since the car accident that injured her leg and killed her mother. After pushing her friends away, Sam has receded into a fog of depression until she meets Eliot, a carefree, impulsive loner, who is unable to feel any pain at all. At first, Sam is jealous. She would give anything to not feel the pain she’s felt for the past year. But the more she learns about Eliot’s medical condition #CongenitalInsensitivityToPain the more she begins to realize Elliot’s self-destructive tendencies. In fact, Eliot doesn’t seem to care about anything—except Sam. And as they grow closer, they begin to confront Sam’s painful memories of the accident, memories that hold a startling truth about what really happened that day.

Happy reading! 📚💖

#themightyreaders #RareDisease

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Howdy!

I just wanted to introduce myself as I'm new to the group. My name is Crystal, I'm 43 years old, and I've got multiple autoimmune issues. Pernicious anemia was the first one at 22 years old, rheumatoid arthritis at 27, HS at 38, and alopecia areata at 40. I'm looking forward to being able to share my experiences with you and hopefully offer support for the bad days.

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Distract Me?

So much on the go at the moment that although it’s only Tuesday, I feel like it should be Thursday already! Part of that is that I had to a physical exam at the local MS Centre yesterday before I’m allowed to do any exercise, and now that I’m at 33ft pressure in the hyperbaric chamber, I’m starting to experience the unpleasant but necessary healing crisis.

I’ve written about my hyperthyroidism hair loss journey before, and one of the things that came with it was some sore spots on my scalp. One of which has become darker and more painful, so I’ve just fired off some photos to the dermatologist for her thoughts.

I know we often post things to distract each other, but today it’s me who could use the distracting!

So, I thought I’d subject myself to your mercy… ask me questions , tell me what you’d like me to write about, request a poem or a meme, I’ll do anything I’m capable of for your entertainment, and my own distraction 🤓

#DistractMe #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #Fibromyalgia #PTSD #AlopeciaAreata #HypothyroidismUnderactiveThyroidDisease #Hyperthyroidism

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I Complete Me

Embracing my thyroid hair loss hat look 🤓. Thankful that it’s winter, and a special shout out to my Alopecia and cancer hair loss sisters. You do not have to be brave for me, or inspire me. I just want to say I see you and acknowledge how vulnerable hair loss makes us in a society which places extreme value in all of us with chronic illnesses being “whole again.”

For me, courage is saying I may never be whole again—and that’s okay 🖤

#ThriverThursday #AlopeciaAreata #PostchemotherapyAlopecia #Cancer #HairLoss #HypothyroidismUnderactiveThyroidDisease #ChronicIllness #MyCondition #ChronicFatigue #ChronicBeauty #Fibromyalgia #Spoonie #thisismetrying #iamwhole #wholeself

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Alopecia Areata

Happy Tuesday everyone! One of the many things I've dealt with since being diagnosed type 2, are boils. And man do those things suck!! I've gotten them all over. Little spots of hell after my happiness. A more recent turn of events, has led to these boils popping up on my scalp. I'm not sure which is worse, the ones on the body or the scalp. Both horrible no matter which way you look at it. As soon as they finally go away though, the circular area where the boil was, all the hair falls out. It VERY slowly grows back, but until it does, I wind up having bald spots all over my head. I used to have thick and healthy hair. It was the only thing I liked about myself. As soon as my hair starts to grow a little, boom, more boils. Sadly leads me to giving myself a buzz cut. And too because treating the boil is easier to do with very short hair. So many things have gone wrong since being diagnosed. But I never expected to keep losing the one thing that makes me feel pretty. Yesterday I found a scarf in one of my spare drawers and looked up how to wear it on my head. I normally wear wigs. But when my scalp breaks out or it's hot, this is so much cooler. Is there anyone out there that deals with this too??

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