Irritable Bowel Syndrome (IBS)

I’m a longtime member of the chronic illness crew—been navigating Crohn’s for almost a decade now. On top of that, some of my closest friends deal with things like IBS, food allergies, bloating, etc…. If you’re here, you probably know how much of a struggle it can be to figure out what foods help and what foods hurt.

Recently, I started working on something I hope can make a real difference in our community. I’m building an app to help people like us without just relying on medication, hopefully leading to have fewer bad days and more control over our choices! 💪

But here’s the thing: I don’t want to base it exclusively on my experience or just guess at what other people need, I want this to benefit all of us so would love to know:

What problems do you face when it comes to food and symptoms?

Are you already using any apps to manage your health? If so, which ones? What do you love or hate about them?

What features would make the perfect app for you?

If you could have a dream solution for managing your food triggers and symptoms, what would it look like?

I know this struggle all too well, and I want this app to actually help people - not just be another thing that sits unused on your phone. If you have a minute, I’d love to hear about your experiences. Your input could really help shape this into something that works for all of us. 🙏

Thanks in advance for sharing your thoughts, and sending you all a little extra patience and strength for the journey. 💚

Looking forward to hearing your stories,

I’m a longtime member of the chronic illness crew—been navigating Crohn’s for almost a decade now. On top of that, some of my closest friends deal with things like IBS, food allergies, bloating, etc…. If you’re here, you probably know how much of a struggle it can be to figure out what foods help and what foods hurt.

Recently, I started working on something I hope can make a real difference in our community. I’m building an app to help people like us without just relying on medication, hopefully leading to have fewer bad days and more control over our choices! 💪But here’s the thing: I don’t want to base it exclusively on my experience or just guess at what other people need, I want this to benefit all of us so would love to know:
What problems do you face when it comes to food and symptoms? Are you already using any apps to manage your health? If so, which ones? What do you love or hate about them? What features would make the perfect app for you? If you could have a dream solution for managing your food triggers and symptoms, what would it look like?
I know this struggle all too well, and I want this app to actually help people - not just be another thing that sits unused on your phone. If you have a minute, I’d love to hear about your experiences. Your input could really help shape this into something that works for all of us. 🙏Thanks in advance for sharing your thoughts, and sending you all a little extra patience and strength for the journey. 💚Looking forward to hearing your stories,
#MightyTogether #Crohn 'sDisease

2020... I had an IUD taken out thinking my severe sharp cramps were because of the IUD. Doctor put me on estrogen birth control and my menstrual cycle took a turn for the worst. I had a plague of symptoms that all were so severe. From severe lower back pain(I could not sleep on my back, had to sleep on my side, I couldn't just roll over, it hurt to even sit on the toilet. When I drove I had to sit on a circle pillows to keep my tailbome off the seat) I also had heavy peirods(clots, severe cramps then went into my inner thighs and would hurt my already painful back, light spotting carried on after peirods and in between periods, it was as if I only had a week off of bleeding a month) I had the worse bum cramps, peeing hurt all the time(burning, having to urinate often) Sometimes if I didn't pee I'd get sharp pains. Id have either constipation, diarrhea sometimes, depressive episodes. I couldn't wear a tampon(I ALWAYS wore them with no problem) but suddenly they didn't sit up there anymore, they'd get lodged sideways and fall out. I was forced to wear large pads. I couldn't physically go anywhere. It was a big deal to leave the house. Anyways fast forward. 2021-2022 I found a lady doctor who put me on Visanne, said if it worked it is likely Endometriosis. It worked. 98% symptoms gone. But I began getting severe left sided pain(and lower abdomen pain) She told me I needed the diagnostic surgery. Met the gyno. Specialist (who doubted it was Endo, thinks its IBS which I'm not against but that doesn't answer my menstrual issues) she put me on Myfembree. Which worked like gold! Fast forward again(after arguing with a gynecologist, I thought, "I just want to make sure it is endo and if we can get ahead of it") I had my surgery last week, they didn't find anything. She said it was just painful periods. (Btw, she BARELY read any of my history the lady doctor wrote down for me over the years, this specialist didn't read barely anything.) She isn't looking into my issues anymore. She said we will do a six week follow up on your surgery incisions and that's it. It sits so wrong with me. The medication is working, but I discussed with her before the surgery that the last med stopped working and I'm concerned about that happening again and she agreed. But now it's not a concern? I'll probably go visit the woman doctor again but I feel like I'm being ridiculous now. I feel like I'm overboard or I shouldn't be worried. Is there not other conditions this could be? Because I looked up the confusing word(painful periods) and that does not tick off my symptoms. Anyways, that's my very shortened story. Sorry about that.