We're so glad you're here. Scroll down to find some of the Crohn's conversations happening in our community. The more, the merrier—jump in anytime!
1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!
You can search the groups to join. #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #IrritableBowelSyndromeIBS
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
The Mighty is a safe, supportive community for people living with disabilities and the people who care for them.
These past four months have been one of the worst times of my life and I'm at a point where no doctor is helpful at all. The "it's all in your head" bullshit is stronger than ever right now. From both my family members and the doctors. I can't find any doctor at all that'll take me seriously. What do I do? I'm really desperate.
#Fibromyalgia #ChronicIllness #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #ChronicPain #Anxiety #Depression #ObsessiveCompulsiveDisorder
Hi, my name is InChristAlone1. I'm here because I was recently diagnosed with Celiac a month and a half ago. I've had the symptoms of celiac all of my life, yet I had no idea I had the disease. It was not until November 28, 2024, that I became more aware of my symptoms. I always had anemia. In my 20s, I struggled with depression. It never really occurred to me that I actually had a chronic illness. I thought my abdomenal cramps were just ovarian cysts, that my fatigue and body aches were just age. The day before Thanksgiving of 2024, I had an appointment to check for ovarian. I remember walking into that office and sitting in the ultrasound room. The room was silent as the tech took measurements of what she saw on the ultrasound. I remember just how quiet and thoughtful she was, but I did see a concerned look on her face. They then had me get dressed and sent me home, only to call me a few hours later and tell me that I needed to head to the hospital. A mass was cutting off blood flow to one of my ovaries.
A few doctors went in and out of my hospital room, each, after much encouragement and advocating, agreeing that I needed have emergency surgery to remove the mass. Then, dressed in a thin button up, hospital gown, I was brought into the OR, while my husband waited in the waiting room. What seemed like a second later, the anesthesiologist woke me up. (Yeah, I know. Surgeries do not last just a second.) This turned out to be benign, but just this moment changed me from a woman who held off seeing a doctor's, to a woman who became more aware of her body. Even though I got the benign news, and was happy with this, still something was not right. My body did not feel good. I had my kidneys checked, found masses on my breast that were also benign. All blood work and pathology came back benign. Still, something was not right. I met all kinds of specialists, from oncologists, to urogynecologists. Again, all was normal. All looked well. Still something was off. Finally my PCP referred me to gastroenterology. It took me a few months to get in with gastroenterology. When I walked in for my appointment, this sweet nurse practitioner came in and introduced herself, then went right to work on asking me about my symptoms and looking over my history. I'll call her Mindy.
After Mindy had listened to me and read over my history, she looked at me and said "I don't think that you have this. I mean I'm pretty sure the symptoms you are describing actually fits well with IBS, but I would like to run some blood work just to be on the safe side." She then explained to me that she was going to run a few blood panels on me, 2 of which were the celiac and alpha gal panel.
5 days later, all results came in. To my shock, I tested positive for both celiac and alpha gal, which was confirmed 2 weeks after, via endoscopy.
Friends, it has now been a month since my diagnosis, and believe it or not, this disease is not easy. But God is still good, no matter what.
Our next #Maladiemon is Spew Spew! People living with #chronicillness often get #nausea from their condition or medicines. #gastrointestinal problems like #Gastroparesis , #UlcerativeColitis , #CyclicVommitingSyndrome , and #crohnsdisease all collect #spewspew as a symptom.
Crohn’s and Colitis Foundation: www.crohnscolitisfoundation.org
Hi, my name is Lilyana. I have autoimmune issues and symptoms that seem to be IBS, but have not been diagnosed as such after several different tests. Doctors simply don't know what is going on. It's frustrating and scary, and it's affecting my social life.