Kidney Disease

Our Mighty members have shared how primary hyperoxaluria type 1 (PH1) and chronic pain can negatively impact their relationships with family, friends, and romantic partners. How has PH1 affected your personal relationships? Share your experiences in the comments below.

#RareDisease #KidneyStones #KidneyDisease #PH1 #ChronicIllness

Mighties, let’s give a shout-out to the amazing people in our lives who have made a difference in our PH1 journeys.

Is there a medical professional who has helped you better manage your condition? Someone close to you who doesn’t judge and is always a thoughtful sounding board?

Give a round of applause to them in the comments below. ⬇️

P.S. If you’ve felt alone in your life with PH1, just know our Mighty community is here for you!

#RareDisease #KidneyDisease #KidneyStones #PH1 #Parenting #Caregiving #ChronicIllness

Balancing self-care and daily responsibilities while managing the symptoms of PH1 can be challenging, especially when you're experiencing increased levels of stress.

How do you relieve stress as it relates to PH1? Share and help one another in the comments below (who knows, you might just pick up a new technique!).

#KidneyDisease #KidneyStones #PH1 #Parenting #Caregiving #RareDisease #ChronicIllness

We’re creating an #AskMe video with one of our partners, Alnylam Pharmaceuticals, about life with primary hyperoxaluria type 1 (PH1), a rare disease that mainly affects the kidneys. We’re calling for community questions that may be answered by an expert physician in this upcoming video. That’s why we’re asking: what questions do you have about PH1?

Add yours in the comments below.

Your questions may be used in an upcoming sponsored video with Alnylam featuring a physician with deep expertise in PH1. This video will be published on The Mighty’s Facebook channels. Your questions will remain anonymous in the video. You can read The Mighty’s full privacy policy at themighty.com/privacy

#PH1 #KidneyDisease #RareDisease

We’re creating an #AskMe video with one of our partners, Alnylam Pharmaceuticals, about life with primary hyperoxaluria type 1 (PH1), a rare disease that mainly affects the kidneys. We’re calling for community questions that may be answered by an expert physician in this upcoming video. That’s why we’re asking: what questions do you have about PH1?

Add yours in the comments below.

Your questions may be used in an upcoming sponsored video with Alnylam featuring a physician with deep expertise in PH1. This video will be published on The Mighty’s Facebook channels. Your questions will remain anonymous in the video. You can read The Mighty’s full privacy policy at themighty.com/privacy

#PH1 #KidneyDisease #RareDisease

Although we have learned more about PH1 in recent years, many misconceptions and myths about the condition still remain.

Which ones do you encounter most often or wish would be debunked?

Share it with us in the comments below. ⬇️

#RareDisease #KidneyDisease #KidneyStones #PH1 #Parenting #Caregiving