Kidney Disease

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Kidney Disease
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    Community Voices

    Do you feel like you’re still searching for the "right" treatment for your rare disease?

    <p>Do you feel like you’re still searching for the "right" treatment for your rare disease?</p>
    1 person is talking about this
    Community Voices

    I’m new here! Hello!

    I have lived with Fibromyalgia and Chronic Fatigue since I was 14 years old. I was recently diagnosed with CKD Stage 3A (which is scary to me), and a rare condition called Hypophosphatasia (adult onset). I am also immunocompromised and get sick almost weekly or every 10 days with something new. Hoping that being a part of a support community that can understand, will be an encouragement in my life. I am so weary of it all!
    #weary #persevere #OnedayAtaTime #exhausted

    2 people are talking about this
    Community Voices

    How did you feel when you received your rare disease diagnosis?

    <p>How did you feel when you received your <a href="https://themighty.com/topic/rare-disease/?label=rare disease" class="tm-embed-link  tm-autolink health-map" data-id="5b23ceb000553f33fe99b3c3" data-name="rare disease" title="rare disease" target="_blank">rare disease</a> diagnosis?</p>
    4 people are talking about this
    Community Voices
    Community Voices

    True or False: I feel like my doctor listens to me and values my opinion.

    <p>True or False: I feel like my doctor listens to me and values my opinion.</p>
    2 people are talking about this
    Community Voices
    Community Voices

    What’s in your rare disease “toolkit”?

    <p>What’s in your <a href="https://themighty.com/topic/rare-disease/?label=rare disease" class="tm-embed-link  tm-autolink health-map" data-id="5b23ceb000553f33fe99b3c3" data-name="rare disease" title="rare disease" target="_blank">rare disease</a> “toolkit”?</p>
    4 people are talking about this
    Community Voices
    Community Voices

    What helps you get better sleep?

    <p>What helps you get better sleep?</p>
    Community Voices

    What Questions Do You Have About PH1?

    <p>What Questions Do You Have About PH1?</p>