Kidney Disease

Community Voices

Sav Bachman @savannah_bachman

Do you feel like you’re still searching for the "right" treatment for your rare disease?

1 person is talking about this

Community Voices

EmilyP @em4price

I’m new here! Hello!

I have lived with Fibromyalgia and Chronic Fatigue since I was 14 years old. I was recently diagnosed with CKD Stage 3A (which is scary to me), and a rare condition called Hypophosphatasia (adult onset). I am also immunocompromised and get sick almost weekly or every 10 days with something new. Hoping that being a part of a support community that can understand, will be an encouragement in my life. I am so weary of it all!
#weary #persevere #OnedayAtaTime #exhausted

2 people are talking about this

Community Voices

Sav Bachman @savannah_bachman

How did you feel when you received your rare disease diagnosis?

<p>How did you feel when you received your <a href="https://themighty.com/topic/rare-disease/?label=rare disease" class="tm-embed-link tm-autolink health-map" data-id="5b23ceb000553f33fe99b3c3" data-name="rare disease" title="rare disease" target="_blank">rare disease</a> diagnosis?</p>

4 people are talking about this

Community Voices

Sami46 @sami46

I’m new here!

Hi, my name is Sami46. I've been diagnosed with anxiety depression social anxiety ptsd ocd osteoarthritis neuropathy ckd scoliosis muscular dystrophy diabetes.I want to know how others deal with there diagnosis and how it effects daily life.

#MightyTogether #Anxiety #Depression #Migraine #RheumatoidArthritis #PTSD #BipolarDisorder #OCD